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Daughter's Behavioural Problems

17 replies

RabbitsMakeBrownEggs · 12/08/2012 20:24

I posted this elsewhere and felt that perhaps it was more suited to being here. My DD is very difficult and I've had a feeling she may have ADHD or ODD or something along those lines since she was very little, before 2yo with the behavioural stuff, and since she was very little with the lack of settling/irritability.

I am at an extremely low point today with her and had called the crisis helpline for myself even, my post was really about how desperate I was. If this is the worst bit, then I have some hope for the future, because that is something that is difficult to find when you can't seem to find solutions for all the problems your child has.

You are scared that you are actually a poor parent, that what everyone is telling you is right and that you should just batter their bum, except you've tried smacking and when your own child is laughing at you and telling you it didn't hurt, you know there's a point where you have to stop and say that physical punishment isn't appropriate, no matter how much people say that they'd never get away with that behaviour with them, they'd have a bum so raw they'd not be able to sit down. I am at a parenting class, I have the 123 Parenting Magic book, I keep being told by Homestart and the school I am a great mum, I do so much with my children, they have such a lovely home. So how come I am such a failure at parenting my DD?

Yes I am a single mum, yes I am disabled, but to me poor parenting is abuse and neglect and not giving them what they need; mine have everything they need and more, I give them time and attention, they go to school, they are well dressed and well fed. My discipline may depend on my fitness to do so that day, but I raised my son fine with it and my daughter is so completely different and has been since day one.

But getting help is like screaming into the darkness. Age appropriate behaviour, wait until they do XYZ and you should see some improvement. Except XYZ comes and goes and you are still getting up several times a night with a four year old who is difficult to settle and wakes from anytime after 12am onwards, often for the day. You fight to feed them, they want it on their terms and they always want sweets sweets sweets, except sweets send them hyper, as does sedative antihistamines, other children, even fruit. I fight to get her to sit down for a meal, she is literally up from the table on her feet the whole time. I've tied her to the fricken chair to get her to eat a meal. The same with getting her to sit down quietly, except it's climbing, doing headstands, rolling around, lying on top of other people, up down up down shout shout shout.

If I close my eyes, Mum open your eyes MUM MUM MUM MUM. The revenge attacks for being firm and putting her in time out, drawing all over walls, all over herself, ripping and tearing, throwing things at me, hurting her brother, letting the animals out their cages, breaking my stuff, it never ends. And the same reply I get all the time, she is your responsibility and this is your fault, if you just spanked her/timed her out/disciplined/put her in her room/grounded her and was CONSISTENT she wouldn't be like this, give her to me for a week, I'll sort her out, she'll have a bum so red raw she can't sit down, blah blah blah! They have no idea!

I find out in a social services report (she basically lied about being touched in school, she did it herself and blamed it on someone else) that the school have concerns, I've been saying all year that I need help, they've been saying no concerns. So I have to go through the trial of thinking she's been sexually abused, having doctors look at her, having social services come into my home, talk to my children, being excluded from the school while this is happening, having all my parenting skills checked, and only then do they think to support the fact that I need her to be assessed for behavioural problems.

All the time this is all happening and I am stressing with worry about my daughter, will she have friends, will I be enough to parent her, will she do well in school, will she end up like me and waste her talents, will she grow up with a mental disorder that rules her life and takes away all her opportunities. And trying to prove that I am good enough, jumping through hoops, doing courses, taking the criticism, trying to adjust my parenting to cope with her, sacrificing personal relationships, sacrificing having my animals, sacrificing having a personal life, sacrificing my sleep, my sanity, my physical well-being.

The finger points straight at me for not being good enough, lets not forget I did a difficult pregnancy alone, with a toddler in a wheelchair, then a birth and the subsequent difficult baby stage, all on my own, no financial support, no emotional support from her father at all until I had it taken from his wages when she was nearly three. I ask for help when I need it from all the appropriate places, Homestart, the school, the health visitors, my GP, even social services, I read the books and I take on the advice, but apparently I don't listen ever (thanks mum).

I'm in debt trying to keep up with being a disabled mum to a behaviourally challenging child, my mental health is battered, my physical health done in, I do my best.

I love that girl with the essence of my being, she is what kept me going in tough times, but loving her is bloody hard work, especially when I am the one to BLAME for her being this way, except I just think she is herself, and she needs to be parented differently, in a way that suits her. She's a one of a kind, doesn't fit the normal mould.

I am sorry this is garbled, I am extremely emotional today. I want people to see what parents have to go through, it may just be naughty child syndrome, but it's not through lack of trying to be a good mum, it's how her brain works, it's a bit different.

OP posts:
Ineedaflippinmedal · 12/08/2012 20:55

Your Dd sounds like my Dd1, from the minute she walked at 10 months she was like a whirl wind. she was destructive, violent and always damaging stuff.

She argued the toss over everything, didnt care about sanctions and pushed every boundary, all the time.

I tried to get help but this was a long time ago, she is 23 now. She was first seen by a psychologist at 4 but he said I should shut her in her room. I tried this but she trashed it and wee'd on the floor everytime i put her in there.

She was nearly diagnoses with ADHD at 9, she met nearly all of the criteria except the bonkers proffs thought girls didnt have ADHD. In the end they discharged her saying it was my parenting style that caused her behaviour.

I still beleive to this day that she has ADHD and probably aspergers as well.
She has no idea of the implications of her actions and cannot see what they do to others around her.

My Dd3 has aspergers, I had to fight to get her a Dx it took 3.5 years because she didnt fit the proffs view of autism.

Try keeping a diary of her challenging behaviours, what causes them and how you deal with them. My diary made the proffs finally sit up and take notice of what we were dealing with every day.

Please try to be kind to yourself, we know how hard it is on here and we try to support each other.

Keep coming backSmile

RabbitsMakeBrownEggs · 12/08/2012 21:18

Oh yes, the weeing on everything. Her bed when I don't get up with her, or let her into my bed. The floor when I asked her to tidy up her toys. Her brother's bed when she was told not to wee her bed. The stairs and carpet just because she can't be bothered to go up the stairs.

I downloaded an app for my phone last night it is traffic lights and lets you record their behaviour with a time and date. I am using that for now. And trying to remember back to all the things she does so I can use it as examples.

Personally my mum thinks I have some form of Aspergers(I work to social scripts I have made up in my head, have very rigid rules and beliefs, and have great difficulty living "normally"), and I see a lot of likenesses to my behaviour in childhood in my daughter.

OP posts:
TheLightPassenger · 12/08/2012 21:35

some of the hyperness could be sensory seeking behaviour (she might be hypo-sensitive, so crave being on the move), which can tie in to some form of Autism/Aspergers. Sorry you have not had proper help from the professionals, am sure many of us on here have been fobbed off at one time or another.

RabbitsMakeBrownEggs · 12/08/2012 21:44

Would that fit in with having some inappropriate sexual behaviour at school? I assume they mean too much touching as I can't imagine what else.

OP posts:
TheLightPassenger · 12/08/2012 21:46

I can't really speculate, as if the school aren't making clear what the issue is, so you are having to guess, it's hard to comment!

There's another current thread on this board, called sensory seeking that you might find useful/relevant.

bonzaii · 12/08/2012 21:53

im sorry the proffessionals are taking such views, with my ds i get similar from them although they haven't blamed me it feels that way when i have to go to parenting stuff to then be told my parentings fine grrrrr....

my ds does sounds similar too although with ds he has a couple of passions that can work as a distraction, when he is being good he is very good but when he loses it he really does, i think a diary is a good idea it as helped me i the past with ds finding triggers to his tantrums s i can try avoid them in future

RabbitsMakeBrownEggs · 12/08/2012 21:56

I don't know about her, but I tick a scary amount of boxes when I looked at SPD. Is it something passed down do they think?

OP posts:
Ineedaflippinmedal · 12/08/2012 22:21

Too much touching could be a lack of awareness of personal space although that wouldnt necessarily be sexual behaviour. You need to get them to clarify what they mean by that.

Autistic spectrum disorders can run in families there are many of us on here who have many family members who have varying degrees of difficulty.

One of the reasons I was so determined to get Dd3 dx'ed was that I could see many similarities is her to other family members some of whom have had addiction issues and MH problems, due to undiagnosed ASD, IMO.

What is the SENCO like at school, if he/she is helpful they might be the key to getting an assessment. If not go through your GP and ask for a referral to a developmental paediatrician.

RabbitsMakeBrownEggs · 12/08/2012 22:31

It's a school with a proper special needs department, but I haven't met the SENCO lady yet, she was mentioned during a CAF meeting to help me out, and a referral to a psychologist was also mentioned, but nothing came of it. I intend to start her at school and go in all guns blazing to ensure she gets proper support this year though.

I've gotten nowhere with the GP so far, so I intend to use this paperwork from SS to get my foot in the door for CAHMS referral and I desperately need help with her sleep issues for school times.

I'm incredibly sensitive, hate to be touched, can't wear certain things, hate being out in public too noisy, hate smells, and noise, and too much going on. I have problems with pain tolerance, incredibly sensitive to pain. I also like rigid routine and find disturbances very difficult, and with DD all of this is challenged.

OP posts:
Ineedaflippinmedal · 12/08/2012 22:42

You sound a lot like my Dd3, she has a lot of those issues.

FWIW, i would try to get the SENCO onside, your Dd is going to be at school for a long time.

Be assertive and ask what they are going to do to help your Dd but try to stay calm and polite. Believe me after 19 years of dealing with school and SN issues I know this is the best way.

CAMHS can vary from place to place but ours was good although they only Dx'ed Dd3 and then handed everything back over to the school, so didnt offer any support other than a phone number to ring for a course about ASD. We have been on the waiting list for the course for 6 months nowHmm.

bonzaii · 12/08/2012 22:49

is there no other gps? i would go and ask for a referral for sleep and behaviour and development... keep a diary before you go with specific incidents to show them, also health visitors can do the referrals mine did goodluck xx

mariammariam · 12/08/2012 22:50

This isn't about your disability, even if you have got asperger's and/or SPD on top. You have a child with serious difficulties. Anyone would deserve a medal for coming this far, let alone a single parent with her own health problems.

She sounds very like DS at the same age. I really thought all I could do was count down the days until someone took him away. He's an absolute delight much of the time now (age 8y) partly due to medication for his adhd and poor sleep but also because I learned to give myself credit for all the things I'm doing to help him.

mariammariam · 12/08/2012 22:53

btw, he has asd as well, including lots of sensory stuff, plus a high IQ which made the awful behaviours worse when he was little because he could outwit me! Music therapy was great cos he can tolerate a bit of noise now. Also they 'saw' what I saw and so their reports stopped me feeling I was losing my mind.

Ineedaflippinmedal · 12/08/2012 22:56

I agree with maria,

Things do get better, with the correct diagnosis and strategies in place Dd3 is much easier to manage. She doesnt have the massive meltdowns any more. I can pre empt difficult situations for her and she is becoming much more aware of her own needs.

Dd1 still pushes the boundaries, she still doesnt understand the implications of her actions but she holds down a full time job, looks after her little girl who is 4 and has a flat of her own.

Dont beat yourself up, try to get a break when you can and eat chocolateGrin

RabbitsMakeBrownEggs · 12/08/2012 22:59

We knock heads a lot. All of her behaviour seems so very focused on me.

I count down hours until bedtime, and then days until school starts again, because we seem to manage better with the routine, the structure and the stimulation. It seems the less I see her, the better we get on together when we do see each other. We actually manage to connect and enjoy our time. But it makes the summer very difficult as she doesn't understand why I am sick and that it makes me slower and more tired, and doesn't like the change of pace from school, to mum. Even though I arrange trips and activities, I can't give her the same as nursery did.

She has a great report at nursery, despite their concerns, but I am worried about how she will do at school now. There will be a lot of rules and she is very defiant about getting her own way. I ran away from school a lot, and had teachers bringing whole classes to the toilet to stop it, plus I would refuse to come in to school unless I was first in the line. It's knowing I was defiant like this and like she is, and knowing how much it impacted on my life at school that has me worried at the moment. It's a big step to start school, with no diagnosis, and me struggling like this.

OP posts:
RabbitsMakeBrownEggs · 12/08/2012 23:06

DD actually sleeps better with the radio and fan on, we seem to be polar opposites. Where I am anti-touch, she is over touchy, where I am hating noise and smells, she can't get enough, where I need more sleep than normal, she needs and wants less. It's very hard to parent your complete opposite (and yet so similar), especially alone. I am fortunate I was able to call for help and have a break today.

OP posts:
Ineedaflippinmedal · 12/08/2012 23:12

Her behaviour is focussed on you because you are the constant figure in her life, you love her unconditionally and will always keep coming back for more.

Many girls with with ASD type issues learn very quickly to hide their issues at nursery/school which is good for the settings but not for the parents because they bare the brunt of bottled up feelings when they get home.

Both my Dd's had some issues when they started school and they both had a move to get them into the right environment. Hopefully your SENCO will be on the ball and get things moving for you straight away.

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