Hi all, have posted on here about a year ago, but am a long-term lurker as well! Apologies in advance about the v long post...
Bit of background: DS is 18 months old and has severe VI (with a small amount of useful vision, tho'). He also has a very serious long-term illness that has required a lot of hospital treatment over the last year - we still have frequent appointments/interventions, but nothing like last year.
I went back to work a year ago, but managed to find a job working part-time from home, which I fitted around DS's treatment/hospital stays. DH was also working part-time so very involved with childcare. We also had help from GPs, which was great and meant that it wasn't just me trying to look after DS. This is relevant because DS has always been extremely clingy, and I was really pleased to see that he was getting to trust other people looking after him. He's still quite clingy and whingy, a lot of which is normal for children with his level of vision and medical history. He's also developmentally delayed compared with sighted children (again normal - at least, according to his QTVI
) so is not yet walking independently and doesn't have any speech. Unfortunately, he's getting to the age where he's finding this very frustrating, so he probably does come across as quite 'whingy', 'needy' and 'difficult' when he can't convey to us what he wants. He's also not great at playing independently, although I'd say he can play on his own for about 50% of the time at home.
A couple of months ago I went back to work properly, two days/week outside the home. We dithered for ages about childcare, but eventually found a CM who seemed great - care experience of various sorts, including lots of experience working with children/adults with ASD. She seems very kind and caring and (which was important for us) only has 2 or 3 children at a time, all of whom are quite young.We had several short settling-in sessions and although DS was very upset when we left him, he was ok when picked up. We've now had a couple of months with CM, and I'm not really sure how well it's going or whether we should radically rethink the whole childcare situation (including my working at all
). Some days the CM seems pleased with how it's gone, but most of the time, she tells me that it's been a bad day and that DS has spent most of the day being whingy and upset. She seems taken aback by how much attention he needs and says that he's far more demanding than other children his age. (I've tried explaining that she should think of him as an 11- or 12-month old baby, not an 18-month old, but not sure if that's sunk in yet.) In particular, she seems bothered by his 'noise' (constant low-level whinging) and seems to feel personally bad about this, although she does concede that this is just 'him' and he's not necessarily unhappy - he just can't express himself in other ways yet.
So I feel we're caught on the horns of a dilemma now. In the long term, we need to encourage DS to socialise with other children and to move gently towards more independence. All the indications are that he will be educated in a mainstream primary school (with literacy/braille support from his QTVI and probably other 1-to-1 help) and we need to work towards making that possible for him. On the other hand, I know he'd be happiest staying at home with me (I wouldn't, but that's another matter...). But although I know he'd prefer that sort of intensive, high-attention care in the short term, I don't think that's best for him in the long term. He's already missed out a lot on socialising through being in hospital/isolation care so much last year and I feel it would be good for him to get out of the home and into a quiet, but more busy environment. But I feel crap every time I pick him up from the CM and she says he's whinged all day.
SO sorry about the epic post! I'd be very grateful if some of you could share your experiences of childcare (whatever your child's SN), because I suspect that I'm not the only person to have gone through this. Please help - what is the best way to resolve this?