Research questionnaire on ASD diagnosis if anyone fancies participating.

[SilkStalkings]

Goldsmiths college research
Anonymous online survey.

Done.

I have done it, but some of the questions puzzled me.

Me too! Pehaps someone thinks ASD mums are all a bunch of suicidal depressives dissatidfied with our lives!!

I wouldn't have chosen ASD for my son but it has brought some great people into our lives and changed our outlook an many things.

They were rather strangely worded. They are trying to get certain answers (that we're all depressed and suicidal because our child has ASD) I didnt like the fact that they didn't give us an area to explain out feelings. I mean, I'm RELIEVED to have a diagnosis, and I have more patience because I know there is a reason behind the behaviours and that I'm not a shit mum. But it would have been nice to tell them that.
Also wtf does going light headed have to do with having a diagnosis? Very strange.

Done it. I can see why they ask all the after questions iyswim.

I dont think they think all the mums are suicidal. I think they are trying to work out if things have changed in the path of dx and support since the last survey a few years back. If it has improved or not and the general experience of it and results if it caused anxiety or not.

I agree with frustratedpants in that it would have been good to have a section where we could make comments.
And why wasn't there a box for "I am more interested in sex?" Sadness sometimes drives couples together as well as apart.

Email the chap, he needs to know these things to understand it all. Feedback is good.

From the last page of questions, you'd think they boys' ASD diagnoses had caused my HMS.

I started it and have stopped. It keeps twisting my answers.

I had answered a question that that i was 'Very satisfied, with the information given at diagnosis'

You have indicated you are VERY SATISFIED with your child's diagnosis why is that?

WTF I'm pretty cross now.

Ouryve, I thought that.

There was no option to explain that I have many of the symptoms they are asking about, but for clear medical reasons, rather than as a result of anxiety and depression. Anyone who has Fybromyalgia/ME/MS/HMS or a number of other conditions would totally skew their results.

If you ignore all the questions in the diagnosis sections and just keep pressing next it eventually gives you a box to explain the dx process in relation to your child. I assume to allow for people who have had to go a different route to dx.

I have done it, just because I think any survey that asks me about how crap the dx process was has to be good.

I agree though some of the questions are odd

I had a feeling it was going to end with those sort of questions anyway seeing as it was how you were told, dealt with and support etc. So in the parts of reasons i was disatisfied etc I also put in the amount of turmoil it all put me through.

I'll be interested to see the results and what they do with them.