ds just diagnosed with hemiplegia, MRI to look forward to...

[disguisedeb]

ds aged 4 has just been diagnosed by paediatrician following various consultant visits over the years, who told us his walking would get better and peer pressure would sort him out!Thankfully Nursery referred him to Ot, who then referred to physio who saw the signs. So next step is mri, what will that be like? Apparently he'll be sedated.

Would appreciated hearing from others in a similar situation

Bump

Hi I can help with experience of mri!
My dd had an mri back in feb she was 4, it was ok, had to starve beforehand, got to hospital for 8am, she was given an oral sedative which made her fall asleep, we got taken down to mri machine but when she was lifted onto the machine she woke up a bit and started wriggling etc so in the end was given iv sedative. My dh was allowed to go in with her and i waited outside. Hers was a brain scan and it took about 30 mins i think. Then we just had to wait for her to come round which took ages! Once she was awake we had to get her to eat etc we were allowed home once she was steady on her feet.
Good Luck!

Dd2 has cp as well, and has had a couple of mris. The one when she was around four was a bit grim, tbh, and we went for GA, because there was little chance she would be able to lie still. 4yos are v little to go through this without GA tbh.

The actual MRI is easy peasy. Usually only about twenty minutes out, then brought round and a wee while in recovery, check obs, and then home.

There is a cp support thread you might be interested in? Quite a lot of us on there now.

Thanks for the replies, madwoman I would be interested int he support thread, direct me to it would you?

Did you get to hear the results from the mri scan then or later?

Later. They get sent to neuro for reading, and then you should have a follow up either with neuro or paed to discuss results (neuro will send info to paed). Do you know who will be doing yours? Our first one was just paed, but we had paed and then neuro appt after second.

I'll bump the cp thread for you if I can find it! Sn moves pretty quickly these days!

Thanks, I don't know who's doing it.

Will look out for the thread

MRI scan through for ds, Friday 13th July! Poor boy can't eat for 4 hours before so thankfully it's at 9.00 so he only misses breakfast, we've promised breakfast in a cafe afterwards

they sometimes want them to eat/ drink something on the recovery ward before discharge - so make sure you take something you know he will eat/ drink, in case. Then you can go to the cafe! The cp thread should be on the first page of sn at the mo, so should be easy to find.

Thanks madwoman, are they queasy afterwards?

Dd2 wasn't - it isn't like surgery where they do potentially feel rough. That said, some kids are more susceptible to the anesthetic than others, so not impossible.

Dd2 is far worse on oral sedative than GA. She takes hours to come round and is all over the shop. GA is pretty quick.