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Autism and a tremor.. anyone else?

4 replies

MedusaIsHavingABadHairDay · 26/06/2012 22:47

DS2 is 15, has ASD and learning difficulties..and a tremor. DH has a severe hand tremor which they call a 'essential tremor' ie no idea what causes it, but doesn't appear to be degenerative. Gets MUCH worse with activity ..which as he is a very active bloke is a real pain..he does a bit of DIY or sport and can't hold a cup afterwards!He was prescribed beta blockers but had to stop them as his heart rate became dangerously slow!

Now DS2 has developed one. I suspect he may have had it for a while but we have been working on independence skills.. making a drink etc and quickly realised his is as bad as his Dad's:( While DH can compensate because he has normal abilities otherwise, DS2 can't..and it is hampering him and us in trying to get him to learn basic skill.. for example he can;t carry a cup of coffee, he can't hold a pan of food... etc etc

He also has low muscle tone and I wonder if this is connected (DH is mindblowingly hypermobile too)

Basically I just wondered if anyone else has this problem and if so what do we do? Should I ask fo a neuro referral? It is going to seriously affect his chances of being remotely self caring on top of his other difficulties:(

OP posts:
porridgelover · 27/06/2012 10:23

Has DH been investigated? Has he had muscle biopsy etc and cleared that its absolutely nothing else? Could it be restless leg syndrome (which can also appear in the upper limb and is exacerbated by exercise/tiredness).

As DH has the same issue as DS most people are going to look at it being a genetic thing and possibly not related to the ASD.

If DS has low muscle tone, his upper limb is also going to be affected especially if he has poor shoulder girdle stability. How good is DS at doing wheelbarrows for example? How does he manage overhead tasks e.g. cleaning a window, washing a car?

MedusaIsHavingABadHairDay · 27/06/2012 16:06

DH has had very limited investigations.. he used to be in the RAF..they sent him to an RAF neuro who first told him he had DTs, then on establishing he didn't actually drink, decided it was a benign tremor.. so no biopsy or anything. Generally he just gets on with it and we don't let him carry hot drinks!

DS HAS had a biopsy..years ago when he was tiny but it was inconclusive.. 'mildly abnormal but not diagnostic' He was a VERY floppy baby and hypermobile. Now a very thin gangly 6 ft teen , wears splints on his awful rolled over deformed feet, has mild scoliosis and looks like the old mr muscle ads. He couldn't do a wheelbarrow and he gets very tired (then slurs and drools too..:/) but he is functional.. refuses to use his wheelchair any more! He's a bit of a mixed bag of 'not quite right physically but n one knows why' and I have no idea whether to chase up his tremors as part of HIM or assume it's being his father's son!!

OP posts:
EveryPicture · 27/06/2012 16:21

I would ask for a Neuro referral.

My DS with ASD (age 8) has developed hand tremors which seem to be getting worse. They are especially bad in the mornings but I am assured he is not diabetic. He did have a muscle biopsy years ago because of GDD and learning difficulties. It was a non-specific result.

I would push to get it looked into if it were me.

porridgelover · 27/06/2012 18:03

Definitely sounds worth investigating. But I imagine that you will have to push for it with your DS profile of such overall low muscle tone, learning difficulties and ASD.
But if the tremor is interfering with him to such an extent that he cant carry a hot drink, then that warrants being looked at properly IMO. Very limiting day-to-day.

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