Brainwave

[babiki]

Sorry for all these discussions, just discovered these pages so full of questions. Have you got any experience with the Brainwave therapy, is it worth the money and effort?

DGS with Cerebral Palsy goes to brainwave every 6 months and we found it very useful with giving an overall picture of his condition and an identification of his weaknesses, which we could then work on. They are lovely and friendly and devote the whole of the centre to your one child (!) for the course. Its lovely to get this whole picture as the NHS gives snapshots of what they see individually, and Brainwave pulls this all together. They give you detailed exercises to work on the weak areas, including a DVD of your child doing them with the staff. You can also contact them at any time.

DGS has been very lucky and has got a lovely sponser to pay for him for a year. This is not unusual I think. In fact we only paid the full amount the first time

Hi, we have used brainwave for the last couple of years and it suits us well. It is important to remember that at the end of the day you are the one who has to actually do the physio day in, day out. It works for us as I fit it in with daily activities but I know other people who have found it very hard. Any other questions ask away.

Another vote for Brainwave here! We too have almost never had to pay the full amount since the first time (and the last couple of visits we didn't pay at all). We are not very good at doing the therapy every day (so I would say not to beat yourself up if you can't), but have still found it immensely helpful to structure the bits and bobs of therapy we do, plus when we go there every few months we have always found that it has remotivated us, and helped us to understand my ds's condition (CP) much better. We have found that the Brainwave therapist has been much more honest with us and told us stuff that the NHS bods decided to keep to themselves! We find them a great source of support and advice.

Thanks a lot guys! I suspect mild cp with my son, he has the gait and walks extremely unsteady ( only started - will be 3 in November). But as he is behind in everything, they just labelled him global development delay for the moment. We are still waiting for results from Gosh ( nerve conduction, MRI, lumbal punction). Can I ask you how did you get the dx for your kids? Would they tell me in Brainwave if they thought it's cp? And is there a waitlist?