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Here are some suggested organisations that offer expert advice on special needs.

Meeting with ed psych next week-nervous

7 replies

JackJacksmummy · 17/06/2012 15:02

I have written a long list about all the things we have noticed our son does but am wondering what you think and if there is anything that just seems normal for a 6 year old....

In no particular order:

  1. Has always needed to have a routine - without one is behaviour declines rapidly, if he knows what is going to happen and approximately when they he is a lot calmer. If something happens to disrupt it then the rest of the day can be written off!
  1. When he was about 9 months old (co-incided with when he began to walk) he dropped his daytime naps and then just seemed to be constantly on the go and got bored very quickly.
  1. Always falling over, tripping over his feet, gets bruises and doesn't know how. He'll instantly get up and announce "I ok" and carry on running. I would expect him to at least come for reassurance if it looks like a nasty fall but he doesn't seem bothered.
  1. Rarely makes direct eye contact - he gazes to the sides. He will make eye contact if he initiates it but does not maintain it for long.
  1. He prefers not to be touched, hugged or be kissed, will begrudgingly accept it from people he is familiar with - only immediate family- he will offer cuddles when HE wants them and if he feels it is the thing to do to get what he wants.
  1. He is unfazed by other peoples emotions and feelings
  1. He does not like to be looked at, we have had a few episodes where he has shouted at strangers on the bus for looking at him
  1. He cannot handle lots of different noises at once.

9, he doesn't appear to be bothered to play alone, I think he prefers his own company and is more relaxed and content.

  1. He has always walked on tip toes.

  2. He hates wearing clothes - he knows he must wear them outside of the house but as soon as we are home and he knows no-one is coming round he will strip off.

12 he doesn't play with toys using role play or imagination - he'll hold on to them as an object or tool.

  1. He collects rubber bands

  2. He has a really good memory and eye for detail and will remember everything.

15 he has to wash his hands as soon as they become sticky or dirty and won't touch anything even himself until they are clean.

16 he sorts familiar things into groups e.g monopoly money has to be in the correct order and right way up.

He is 6 next month, almost in year 2 at school and still doing work they did in reception, he hasn't made much progress this year.

His teacher has been amazing with him, she has so much patience and time for him, same with the TA.

He has one to one for 15 mins every day Nd also speech and language therapist once a week as well as the external senco coming in once a week.

I'm not sure what the ed psych will decide the next course of action is so am hoping you guys will have a better idea?

OP posts:
JackJacksmummy · 17/06/2012 15:08

Just wanted to add he excels in things he likes doing - he is a fantastic swimmer and shows no fear of the water. He has never had any formal lessons but has taught himself how to swim underwater, eyes open and just goes.

He is great at IT, art, running - he is like Forrest gump and will run forever!

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littlelegsmum · 17/06/2012 21:31

Hi Jack

I'm marking my place here and hopefully someone will be along shortly who can help you. I'm also seeing EP this week and i'm nervous!! Confused

Sender · 18/06/2012 15:42

I read your message with interest. I work with SEN at a secondary school. The symptoms you describe sound to me like ASD (Autistic Spectrum Disorder). The EP will conduct specific tests and write a report confirming his/her findings.

I would urge you to ask the school to apply for a Statement of SEN and do not take NO for an answer. There is a tendency for Primary/Junior schools to leave it for secondary and you must not let them do this. They will be required to gather evidence, including the EP report, and submit their application - you should be kept informed and provide your evidence including any referrals by your GP - request copies of everything and be a real pest to your Local Authority and School. The Statement will list objectives to be worked upon to enable him to access the curriculum. I hate to say this, but it is my experience that it is those who shout loudest that get things done. Speech and language therapy is vital and often by the end of Year 6 it stops. Insist on this, perhaps more of it now.

Sender · 18/06/2012 15:43

Don't be nervous about seeing the EP. They are lovely people, don't worry.

littlelegsmum · 18/06/2012 16:32

I don't know about Jack but I have no idea on what to ask the EP . . Mind block for the second time in as many days!

AttilaTheMeerkat · 18/06/2012 16:35

I would take this list to the GP and ask this person for a referral to a developmental paediatrician.

Ed Pysch cannot make a formal diagnosis; this person can make recommendations re educational needs. This person too can be useful when applying for a statement of special needs from the LEA; infact one of the things the LEA needs is the report from the Ed Pysch. The level of extra support he is currently receiving cannot always be relied upon so he needs a statement.

If DS does not have a statement in place I would apply for such a document from the LEA asap. If you make the application yourself you know its been done then. Use IPSEA's website, there are model letters on there you can use.

www.ipsea.org.uk

JackJacksmummy · 19/06/2012 14:44

Thank you for your messages.

I went to the doctors about 7 months ago and asked for a referral but not heard anything since.

The school has been really good though so after our appointment and I know a bit more I will be going back to the doctors.

The senco haven't specified what they think it is but on what I've read here, the fact my cousin is severely autistic and what a few teacher friends have said I know these are autistic tendencies so I'm just hoping they see what we see and agree to do more for him.

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