Thread when the *crap* really hits the fan

[2old2beamum]

Reading and writng here makes me realise some parents are living on the edge. DS has an awful year (and I know I am not alone) If I am not woken in the night I am terrified I am going to find him dead through a seizure, choked or whatever. Please tell me I am not alone

Oh, 2old. Good days and bad days here since Dickhead left, but nothing like that sort of worry.

Would you like some honks?

Honk, HONK, HONK

2old have lots of ups and downs here, too many downs at the moment for my liking but don't have the stress of physical disability with my two. :(

Can I add a few honks? HONK! HONK! HONK!

Thanks need a bit of support as DS 4's birthday tomorrow he was 13 when he died and DS5 so vulnerable, You are so lovely here XX

I'm sorry, 2old. Anniversaries and birthdays are always tricky times.

Thoughts are with you tonight and through tomorrow x

Life can be so hard. Sending you my best wishes - will think of you tomorrow.

So sorry 2old Loads of (((Hugs))) Will be thinking of you :(

Thinking about your and your family 2old

Honk honk

thinking about you here too both for the past and the present. How old is Ds5?

Thinking about you, 2old.

Honk Honk 2old

Thinking of you and sending an invisable hand hold xxx

Also worry about waking up and finding DS dead. Sleep in same room as him but do not sleep deeply and stay awake late and wake early. Was chronically sleep deprived. Requested evidence of choking vomiting epilepsy incidents recorded on respite nights and with this evidence presented to committee now have nhs funding for 3 waking nights a week Am thinking of you 2old.

Thinking of you 2old

Hope you get through the day okay.

Honk Honk 2old.

Thinking of you.

Take care.

everybody I really appreciate your thoughts I find writing easier than talking. He was adopted by us and I always think of his birth parents on this day.
The strange thing is his "girlfriend" died 3 years ago today, odd
NoHaudin DS is 13 bless him but does scare me some times as his seizures are usually silent and I don't trust him.
Thanks for listening it has been cathartic.

Thinking of you today 2old

2old. I used to dread going into DD's room in the morning and would often lie in bed waiting for any sound of life on her monitor so that I knew she was still breathing. Have spent 17 years sleeping inches away from a baby monitor and somehow I manage to wake up in response to any changes in her breathing pattern. DD sleeps permanently in the recovery position - and isn't able to roll onto her back as we put supports behind her, otherwise she would be in danger of choking on her own secretions.
DD had a really bad year health wise last year ( we nearly lost her) but has been much better this year (touching wood as I say that) but we are currently reducing one of her anti-epilieptic meds, so all on tenterhooks a little at the moment.
As you say, you are not alone and it is hard to remember the slightly easier times when you are living through the more stressful ones.
Hope you are managing to remember some of the happy times you had with DS 4 today.

2old How was today. Still thinkingof you. (Don't answer if you would rather not)