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My beautiful DS may be dyslexic, but he's only 5.5, so we have a long wait.

42 replies

minouminou · 12/06/2012 15:27

He's six in October, is v bright indeed, with great emotional intelligence and abstract thinking (he asked recently why it is that we can't feel the earth spinning, and if birds think, for example). He's approaching the end of reception (or early years unit as we call it).
However, there is a huge, ever-widening deficit between all his other skills and abilities and his reading and writing.
He. Is. Just. Not. Having. It.

His teacher has been talking to us for a while about the possibility, as there's such a marked discrepancy between his reading and everything else, and the group assessment a couple of weeks ago has shown that he's made "minimal" progress in phonics while steaming ahead in everything else.

We do phonics at home, and DP (almost) always reads a bedtime story for DS and DD. DD was three in April and TBH, is picking up letters more than DS is.

We're looking at initial action now, apparently. I had a brief chat this morning with teech and while she couldn't say for certain that it's dyslexia (obviously it's too soon), it seems they all strongly suspect it.

DP has severe dyslexia (although thankfully he's done v well for himself and has never let it hold him back. I have ADD (was on Ritalin for years before children) and I guess we're not too surprised that one of the kids has taken the bullet!

The thing is, I can see that DS is aware there's something going on and he's becoming very despondent about it all and it's knocking his confidence.

Despite the way in which I may come across here, I'm v sensitive to learning differences, and am gearing up to prepare DS for what may be in store for him....accepting that his brain is wired a bit differently etc etc.

Err....just realised I'm rambling! The reason I'm posting all this is because I'd like to find out just how soon we can get him tested, what initial action is (we're in Oxfordshire) and....well....anything else you can throw at me!

Many thanks in advance, guys.

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minouminou · 04/07/2012 11:22

OK, quick update.
Had a meeting with DS' teacher, TA and the EYU leader on Monday.

I asked if there were any other signs that have alerted them to probs. Apparently he's noticeably poor at following instructions (not from awkwardness, I might add!). He most often has to ask several times and seems to have grasped half of an instruction and forgotten the other half. He's aware that this is the case, which is why he asks again. However, these instructions are ones that are given daily (say, put your book bag in the right box and stand with such and such a group etc etc) but they just don't sink in. I haven't really noticed this before because I've lived with DP for so long......but I can see where he gets it from!

Also, his fine motor skills aren't all that, but obviously this may all change as he develops.

The general feeling I get is that we're waiting for the diagnosis to happen at seven, rather than waiting to see IF there's one (IYSWIM). They handed me a leaflet about making a classroom dyslexia friendly, for a start, and the EYU leader was telling me about her husband and two children who all have it, so I wasn't to worry......

Is it unusual for a teaching team to have it cut and dried at this age? A friend of mine here has said that it's a SN quota/funding fiddle, and I am bearing this in mind.

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saintlyjimjams · 04/07/2012 11:31

DS3 couldn't read at all at the end of the first term in year 1. Bright, no problems in other ways. Just could not read. Not the, not they, not cat, nothing. He could memorise books, and could memorise them backwards. I went to see his teacher, we discussed possible dyslexia etc.

I already knew Marion Blank so signed up for her Reading Kingdom program online (for starters compared to a lot of things out there it was cheap). The first session I realised what the problem was - he was trying to read from the centre of words outwards. The Reading Kingdom starts by teaching children to look from left to right. As soon as he did that he started reading. We didn't actually do all that much of the Reading Kingdom because we didn't have much spare cash at the time, so as soon as he was reading I stopped it, but the early stages were enough to get him going. A term later he was on chapter books.

DS3 does has some slightly weird outwards turning squints and long vision - so that may have been why he had particular problems reading left to right. However, I really do credit the Marion Blank approach with getting him reading.

minouminou · 04/07/2012 11:36

Reading from the middle of the words outwards?! So, trying to read left and right at the same time? Bonkers!! But then I guess people who've been reading for decades just take it for granted that you read from left to right (or right to left or top to bottom depending on where in the world you are).

How did you suss out that he was doing this?

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Badvoc · 04/07/2012 11:48

Don't hold your breath for a dx at 7 op.
I was told the same.
In the end I had to pay a private ed psych to assess my ds1 and - surprise surprise - he is severely dyslexic.
I have known this since he was yours sons age - he has just turned 9.
We have been following the tinsley house programme - as advised by indigo - with spectacular results...this time last year da1 was 2.5 yeast behind in reading and writing which was of course impacting on his other work.
Since staring at tinsley house he has made 2.5 years progress in 2 terms.
Still lots of work to do on his spelling but he is now reading appropriately for his age and I would never have believed that this time last year...his writing wa so bad his y3 teacher had to take it to the y1 teacher to decode :(
He has won "star writer of the week" at school twice since January!
Up to you what you do but please don't dismiss indigos years of experience just because you don't like her posting style....

Badvoc · 04/07/2012 11:49

Sorry for typos - on iPad....

minouminou · 04/07/2012 11:57

Thanks for your response, Badvoc. So what happened with your school that meant you had to go private? Was it funding-related?
Were you noticing the same things I've mentioned?

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saintlyjimjams · 04/07/2012 12:20

Because the first stage of the reading kingdom is to give the kids some nonsense symbols which they have to copy. Every time he copied from the middle out, so started with the middle symbols. You are told to correct that, so we did - I just stood next to him and reminded him to copy left to right. Once he was doing that routinely (very quickly) he started to be able to read. I honestly think he was looking at words in the middle out, and that's why he just didn't 'get' reading.

minouminou · 04/07/2012 12:32

OK - that's interesting. DS doesn't do this, but thanks for your input, and I'm glad you sorted this out for your DS.

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saintlyjimjams · 04/07/2012 12:43

Marion Blank's book is worth reading anyway imo. She breaks down reading and writing into all the different processes that have to happen.

Badvoc · 04/07/2012 15:34

OP...yes it was funding. Its always funding. I feel sorry for the teachers in a way - sen budgets are miniscule For example, at my sons school it is £500 FOR THE WHOLE YEAR (thats over 150 kids) over 25% of whom have sen. Do the math Sad

I saw lots of the things you mention in your op...very very common in kids with dyslexia HOWEVER dont just get dyslexia in it own as far as Robin Pauc in concerned and IME...there will be others issues too, whether they be dyspraxia, asd, ocd traits etc...

I knew from my son being really quite young that he had sen. Once I got over the shock and upset I just got on with it.

The schools wont so you have to I am afraid Sad PLEASE dont leave it until he is 7 (y3) I did and I bitterly regret it. I trusted the school to help him but - once I had my epiphany - they cant. They havent got the resources or training.

Do check out the TH support thread...see if you think any of it applies to your son.

(NB: my son also completed a course of AIT and RRT which also really helped him)

Good luck.

Badvoc · 04/07/2012 15:35

sorry for typos yet again Blush

Badvoc · 04/07/2012 15:49

Oh, and another thing I would say is that although there is a lot you can do at home (dancing bears and apples and pears are the best workbooks you can get IMO and I have tried em all!!) BUT if your son has tracking and convergence issues (which he will have tbh to varying degrees) then its pretty pointless trying to teach him to read and decode as he wont be able to see properly and track left to right.

Honestly, I cant believe where my ds1 is now as opposed to last year If is helps get an idea of how bad he was this time last year he was a;
1a for reading
1b for writing and
2c for maths.

I have a meeting with his teacher tomorrow and I am pretty sure he is a level 3 across the board now...

FleetofHope · 04/07/2012 18:33

51/2 isn't too young - of there's a family history it's really counterintuitive to suggest anything else is going on! I'd worked out DS1 was dyslexic by the time he was five, but wasted a valuable year believing school that it was all on the spectrum and he'd catch up...

Badvoc · 05/07/2012 10:04

OP

When ds1 was at his old school - and in Y1 where his difficulites were becoming obvious even to the teachers - I asked for a meeting with the head.

I was also told they wait til age 7 to asses for dyslexia. I asked why. She didnt know. I said "well, if a child is having problems at 5 then thats 2 years too late isnt it?" She agreed Shock

She got the Senco (a teacher who has done a course) to assess him and she told me he was at "very low risk" of dyslexia Hmm

Fast forward 3 years - at a new school in Y3 and is now 8 but reading and writing at a reception/year 1 level. I ask for him to be assessed again as he is so far behind his peers and still finds reading and writing very hard.

They say no. He "is not bad enough" to warrent an assessment by an Ed Psych or spld team.

I do not agree with this.

We pay to get a private Ed Psych assessment done (£600) and - hey ho - he is severely dyselxic.

Sigh.

Even with the assessments recomendations, ds1 still gets no 1-1 interventions or specialist dyslexia help. He gets 3 x phonics sessions per week (but I question their effectiveness for a child with dyslexia tbh...)

Its all down to money/resources and the fact that most teachers dont even know what dyslexia is, let alone how to help a child with it.

I am sorry to be so gloomy BUT this has been my (and many many others on MN) experience of having a child with dyslexia/sen.

Please dont wait til he is 7. You will have wasted 2 years which - if you try some interventions yourself - could be used to ensure his dyslexia does not stop him acheiving his potential.

Good luck.

minouminou · 05/07/2012 11:48

We're already on the case, Badvoc, and DS is already getting 1-1 phonics at school. In fact last night he said he really wanted to try to read better and is really working hard to write some simple words and names.

We really won't be wasting the next 18 months. Thanks for your advice, and I shall be updating here from time to time.

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Badvoc · 05/07/2012 12:24

If you are working with him at home then do look at sound foundations stuff...dancing bears, apples and pears etc

Good luck

minouminou · 18/09/2012 15:27

Hi there - just a quick update.
DS started back on Sep 4, and seems to be more proactive about reading. On Sunday we were cutting up an old cornflakes box to make a birthday card and he blurted out "Look, that says 'No'!"

OK he didn't get '....artificial colouring.....' but he got 'No'!

He's having a routine assessment in the next couple of weeks and then he'll be having more 1-1 help with an LSA.

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