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BAD reaction to Eye Q supplement. Anyone else got experience of this?

32 replies

detoxneedednow · 11/06/2012 19:26

Hi everyone

Well it's only been about 5 days on the stuff and most of what i've read has been really positive. Lots of stories about dc's on the spectrum becoming less agitated and being able to concentrate more etc. I was trying to hold back with my excitment and enthusism as dd had a bad to the Eskimo Kids brand about 8 months or so ago.

Like I say, it's only been 5 days so I wouldn't necessarily have thought things could become this bad so quickly, but thinking about it, it was pretty instant with the Eskimo brand too.

Her random speech has become much more random and out of context. Her tantrums have become physically violent again and she just wont stop talking and jumping. It's CONSTANT!!! I spent the last hour needing to restrain her as she'd completely lost it ie kicking, biting, hitting, growling. She kept saying things like " I don't know what's happening to me. I feel really strange. I don't know how I feel. I can't say the words mummy". Heartbreaking things to hear.

Yesterday, although her behaviour had already become like this, we tried to do some spellings with her for school, assuming that it would end in tears. However, she remembered everything and her handwriting has never been so neat. I nearly cried because it was such a lovely surprise.

So obviously i'm reluctant to stop the Eye Q if there have been some positive changes, but it seems to come with a price of completely uncontrolable behaviour. I'm not sure what to do.

Has anyone got any advice?

Thanks

OP posts:
ouryve · 11/06/2012 19:43

They made no difference at all to DS1, but gave me horrible heartburn when I tried them. Maybe that sort of reaction is affecting your DD.

mycarscallednev · 11/06/2012 19:45

Could it be as the homoepathic meds work whereby its expected to 'force' the issue - thereby making it sometimes worse before it gets better?

chocjunkie · 11/06/2012 19:53

DD's stims increased massively under eye q and tantrums were awful. we stopped after 2 weeks. I read somewhere that the primrose oil in eye q can send children with asd into overdrive (no idea if that is true though). having said that - eskimo really helped DD.

as you only used it for 5 days i would maybe stick to it a bit more...

mycarscallednev · 11/06/2012 19:55

Can someone tell me more about Eskimo please? x

chocjunkie · 11/06/2012 20:03

well, it is liquid and does not taste very fishy/foul. the adult version tastes lemony and they also have a fruity kids version. contains more epa than dha. i get it here

detoxneedednow · 11/06/2012 20:19

Sad Was really hoping everyone was going to say that that's normal in the beginning but it stops after a few days.

Am tempted to go back to the Eskimo kids range because last time she was taking it, she wasn't taking Zinc and magnesium which she is now.

choc, isn't there Omega6(evening primrose) in Eskimo too though? Do you just give your DD the one spoonful of that a day? Can I ask what your DD struggles with the most? What did the Eskimo oil help with mostly?

OP posts:
chocjunkie · 12/06/2012 00:40

nope, there is no promrose oil in eskimo.

DD's speech improved ( she has severe s&l delay), more alert and toiletting accidents decreased a lot within 3 weeks of starting it. we use the adult version, just the one spoon (mixed in juice or yakult).

HolyCalamityJane · 12/06/2012 08:01

In the Eye Q it has EPA and DHA if you Pm Indigo she will explain better but there is some evidence that the DHA is not helpful and EPA only is better. That is why we take the Barleans ultra EPA it has no DHA in it.

Have also sent you a pm xx

detoxneedednow · 12/06/2012 09:07

I was dubious about getting her to take it because i'd heard before about EPA only being better, but after reading all these reviews online, it just sounded too good to be true. Maybe it is. I would say from I read it was about 90% positive. Will pm you later HolySmile

choc, how many mg's are in the adult version? I think the Eskimo kids was 1200mg per 5mil, but i've thrown it away now so I could be wrong. Does that have DHA in it?

Thanks everyone by the way.

OP posts:
chocjunkie · 12/06/2012 09:42

The label says the adult version contains per 5ml: 1500 mg Omega-3 fatty acids (of which are 750 mg EPA, 500 mg DHA, 14mg Vit E).

detoxneedednow · 12/06/2012 09:59

Thank you! Sorry, I could have just looked on their website couldn't I. How lazy of meGrin What does this one taste like? The kids one actually wasn't too bad.

OP posts:
chocjunkie · 12/06/2012 10:07

is tastes of lemon and slightly fishy but is yummy compared to the eyeQ stuff

detoxneedednow · 12/06/2012 10:42

Well i'd tasted the Eye Q before, but I mean just a taste and I didn't think it was too bad so didn't feel like a terrible mother for giving it to her. After the second time I gave it to her, she said "mummy, you try it then cos it's NOT yummy!!" So I had a whole spoonful and I should have got an Oscar for my performanceGrin I was nearly sick, but managed to pull off a 'I don't know what you're talking about, it's delicious' face. To be fair though, she doesn't really mind it too much now. Does your dd take it straight off the spoon atall? Or do you always have to disguise it? Did you always notice an improvement in her concentration?

OP posts:
bassingtonffrench · 12/06/2012 12:49

DS has been taking the EyeQ with no ill effects and possibly quite a lot of positive ones. It's hard to get scientific about it on sample of one though.

detoxneedednow · 12/06/2012 13:44

Ooooo, positive effects! How long has your ds been taking it for bassington and what specific improvements have you seen if you don't mind me asking?

OP posts:
detoxneedednow · 12/06/2012 13:45

choc, sorry I meant did you also notice an improvement, not "always"

OP posts:
IndigoBell · 12/06/2012 16:34

I think you should try yet another brand of Omega.

Like holy said, vegepa and barleans are ones I can recommend.

No idea what she's reacting to, but it has to be something.

Does sound like she needs omega - if you can ever find the right one.

bassingtonffrench · 12/06/2012 17:24

he started sleeping through the night and stopped having tantrums where he passed out Smile.

he's been taken Omega 3 in various forms for a year (flaxseed, boots and now EyeQ). I think he got worse before he got better but it is hard to remember as his behaviour has always been quite spikey. But mostly its been improvment. Smile. I'm now trying to get him to eat fish but it is a struggle!

detoxneedednow · 12/06/2012 20:14

Thanks Indigo. I think i'll keep going with this for a week or so and see how it goes. She has really calmed down today, but of course it could be a different story tomorrowConfused If things don't improve overall though, i'll definitely be giving the Barleans a go next.

bassington, i've always described dd as spikey. So up and down and unpredictable. I'm glad to hear that it's mostly been an improvement. I hope we have the same outcome. How much are you giving your ds now? 3 spoonfulls a day for 3 months seems like a hell of a lot to me. I've heard that once you drop it down to the 1 spoonfull after the initial 3 months, that behaviour can start to gets worse again and so parents put up the dosage again, but at 800mg a spoon, taking 3 a day on a permanant basis seems excessive.

OP posts:
bassingtonffrench · 12/06/2012 21:05

Currently I give i capsule a day which I think is 400mg so well below the levels you are saying and I'm fairly sure it has still had a positive effect.

detoxneedednow · 13/06/2012 12:21

Oh lordy!! I just did some routing around in the forum archives, some of which dated back to 2004 and this eye q stuff has been absolutely slammed!! A lot more than anything i've read recently, so i'm wondering if maybe they have changed it atall? Dd had a massive metldown last night because she coudln't get her blanket in a shape like a basket for her toy dog. This went on until midnight. She was genuinely really heartbroken that she couldn't do it. I haven't seen her like that for a long time. Also, her sleep seems to be becoming disturbed. She used to drop off around 8 :30 or 9 and sleep straight through. Now she seems to be waking up every hour or 2 and needing to be settled.

I've just ordered some Eskimo oil from my local health shop and i'm picking it up on friday. Does anyone think I should keep going with the Eye Q for a little longer and if i'm going to switch, then should I gently decrease the dosage rather than just stopping that and giving her Eskimo straight away.

I've also got some Barleans ordered too incase she has a similar reaction to this too.

OP posts:
mrsbaffled · 13/06/2012 17:54

DS went hyper for at least a week (possibly 2 - can't remember now, sorry) when we started the TH vitamins including Eye Q. He has come out the other side now and is really calm on the whole now.....

detoxneedednow · 14/06/2012 10:23

mrsbaffled, how many spoons is your ds taking now? I've heard a lot of stories where after the initial 3 month period of giving them 3 spoons(15mil) that parents see a massive change in their behaviour for the worse when they drop it to just 1 a day after that and so up the dose to 3 spoons again. Really don't want her to be so reliant on the stuff. 2400 mg of Omega for a child on a permanant basis seems like an awful lot. What has the Eye Q help with specifically with your ds?

OP posts:
mrsbaffled · 14/06/2012 12:03

I give 10mls every day. Have done from the start (didn't bother with the loading dose of 15mls)...will prob continue at 10 mls.

DS has SpLD (dyslexia wrt writing, but not reading) but also is over excitable with lots of ASD traits. He is improving academically a lot with writing at the moment, however, if I am honest I think that's more to do with the vision therapy he has just completed. For me the Omega etc is more of a 'just in case' thing. I was given cod liver oil as a child, so see it like that.

As I say, though, I do think he's getting calmer (less likely to melt down over tiny things), but again, that could be to do with the VT again as his retained reflexes have gone now and things like moro have been dealt with.

Sooo.....couldn't really say if it's the eyeq that's made the difference! Just think it's a good thing anyway. I also give my 4yo basic Omegas tablets and multivits (but not these expensive ones) just to be healthy.

mrsbaffled · 14/06/2012 12:05

While we are talking about the vitamins - the Floradixes as recommended by TH are expensive - has anyone found a cheaper alternative that gives a good amount of magnesium and general multivits???