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Feeling crushed by physio - she just wn't crawl

58 replies

Sleepstarved · 07/06/2012 20:35

Our problems are pretty minor compared to most on here but I know some of you will understand.
DD is 15mo and has gross motor delay but no-one knows why.
Physio has said its a significant delay and her development is fragmented.
On paper she sounds ok, can roll, get up to sitting, sit unaided, get from sitting onto knees by pulling on furniture, commando crawl, cruise and walk holding two fingers.
Her problem is she can't crawl on all fours so can't really pull to standing. She also cannot stand unsupported although is getting there. She is incredibly cautious.
She is progressing but v slowly and physio says no point seeing her more than monthly.
Portage assessed her as borderline and is already talking about dropping her from weekly to fortnightly even though only seen her 3 times.
DD had some words, daddy, ca for cat, woof sometimes, spoon sometimes but that has all gone recently.
We have done everything we can think of to get her to crawl, she will go over cushions, legs ect but keeps sliding legs back so she is on belly. She has only recently restarted pushing up on straight arms (did I at 7mo but stopped).
At wits end. If only she'd get on to all fours the rest would soon follow.
Any ideas?

OP posts:
Sneezecakesmama · 13/06/2012 18:18

Speech is very variable, and your DD is doing well sleepy. Kids often stop start with speech as they need to concentrate on a new physical skill. Speech involves muscle tone, coordination and a degree of unconscious motor planning. I've only just looked into how complex speech is as I concentrated my research on the physical stuff. Our SALT has been abducted by aliens!

Your DD sounds quite a wary child but otherwise she is doing well with walking etc. it's clearly only confidence that is holding her back. Check with the NHS SLT Dept about waiting times and if ridiculous look into private SLT.

Sleepstarved · 13/06/2012 18:58

I think i must have read your post madwoman! I couldn't think where I got that idea from.
She was walking holding a biscuit in each hand at the weekend and me on to her shoulders, v funny and she really loved it.
She would fall if we don't hold on to her though and that would be a disaster, tantrum mad crying, not try it again for a month ect.
No feeding issues other than a bit haphazard about whether she wants to feed herself. Oromotor seems good, deals with most foods and can make most sounds, babbles well.
SALT seems to be because no words/lost words, no pointing to picture of duck or whatever when asked either, v little pointing in gereral actually.

OP posts:
madwomanintheattic · 13/06/2012 19:36

Does she understand you though? So if you said, 'where's daddy?' would she look to find him?

We used 'OWL' - observe, wait, listen, with dd2. So it's looking for all of those preverbal clues, and reminding you to wait and give time for her to respond (in whatever way that is, sometimes it's really subtle - just a flick of the yes or whatever). There's a whole programme and check charts and whatnot, but I like the general idea, which is to be aware and look for for non verbal understanding as well...

Choices good for this too - raisins on one corner of the tray, biscuit on the other, slightly out of reach - or on the table so that she can see them, but not get to them.. If you say 'do you want the raisins or the biscuit?' how will she respond? Sometimes even a glance is a hint...

You can do it automatically every day 'where are your shoes?' 'would you like some juice?' it might be very reassuring. Play it with her face toys as well. One on each side of her and say 'where's dumbo?' etc...

Just generally trying to initiate some form of reciprocal stuff, even if it isn't speech based, iykwim?

All sounds good wrt oromotor though.

I do like the portage scheme. Dd2 loved her portage worker. Grin good to be in the system for a referral anyway. Portage see such a varied bunch of children that they have a pretty good idea of what needs a check... And sometimes it's just a good/ bad day, or a month later and the child has had a huge development leap (dd2 suddenly made huge advances between 3 and 4 in all areas) but better safe than sorry, and all that.

What a wee conundrum she is! Grin

Practicallyperfectnot · 13/06/2012 20:05

An old fashioned bricks on a box with handle and wheels really helped learning to walk by self, with heavy stuff in the box to make it less likely to go too fast. Also dolls buggy again weighted. Like a walking frame on wheels. Also boots a must for us. also small hoop around child, with adult behind steering and child holding onto front - exhausting for grown up.

Pointing may be tricky as it involves arms up. Try floor play with cards etc - can she point if not raising arms?

Both slow to talk but ok now.

Practicallyperfectnot · 13/06/2012 20:08

See John lewis John crane walker .... Similar but heavy 1960s version - mine!!!

Sleepstarved · 14/06/2012 13:23

She does understand, where's so and so, doll, cat, daddy ect and will turn and actively look for them, grab doll and 'kiss'/bite it ect.
But not always, I did it with her duck in the bath last night but no reaction, sometimes we just get ignored.
Portage said she looks at things but not pointing at them, even if on floor.
I give her choice of book to look at and things like that. She will just reach for what she wants even if out of reach.

She has two walkers, one of the old fashioned wooden trolleys that has got a massive weight in it (like the JL one) and a vtech one, which she seems to prefer (its lighter but it has more on front of her with I think she likes better, rather than just being a bar to hold on to, iukwim and she leans over it to play with the bits on the front).

She certainly is a conundrum. And I don't know if I am Angry about it Sad or what. I know I am a Envy of other mums and kids who sail through all this stuff.

OP posts:
whatsthatnoise · 14/06/2012 14:18

Sorry I haven't read all of the replies. She sounds very much like my dd was at that age and at the time all of our professionals were a mixture of baffled/unconcerned.

Her speech and the ability to walk came in a huge burst at around 23 months (boots made a big difference to the walking). She is very low toned especially round the shoulder girdle which makes crawling difficult and she still can't do it well.

Other than physical all other aspects of her development are average although she has been refered to SLT for immature speech not sure what they will say on assessment.

Guess what I'm trying to say its amazing the progress they can make in a very short time. Keep pushing if you are concerned :o

whatsthatnoise · 14/06/2012 14:24

Sorry meant to say I had the same problems with physio at the time we were lucky if we seen her 6weekly. Now we have a standing weekly appointment to work on different areas it makes a huge difference.

The push now is to get her ready for pre-school in August.

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