Cracking up.... this is hard work!!

[shazian]

Ready for cracking up. ds is 11 and off school for almost 7 months now. attending hospital daily mon 2 fri has catatonia in autism and tourettes movement tics. He's not at hospital this week cos now has shingles, im ready for nervous breakdown. he constant crys/screams, nips me and himself, stamps bangs, jumps, been up most night. He has just stamped on and broke my best photo frame whilst im cleaning that he tipped whole box rice krispies on kitchen floor and stamped on them, threw in banana stamped on it too just for good measure im ranting like an idiot, he's just stamping and jumping away as if nothing. he has no communication, very little understanding so much as its not worth shouting etc im ready to crack up. God its such hard work at times :(. Sorry rant over :(

not much I can say apart from offering virtual> . Do you get any respite?

aww thanks auntevil yes he gets 21 nights per year at respite centre he goes next fri 15th for 3 nights and i am practically counting the hours lol, he's poor wee soul at times but it doesnt make it any easier or less frustrating, trying to calm myself down now he's sitting almost of top of me with huge smile, think he's trying to butter me up :)

shaz more as I have nothing constructive to say. Have you anything nice planned for your few days respite?

hug from me too - sounds like you need some support

God shazian, your situation sounds very difficult.Can I ask why your ds is attending hospital every day? I too have a ds,12,with Aspergers. Is your ds in mainstream or SS? Have a virtual hug and a .

Aww thanks porridge & notonurnelly honest i think he's trying to test my patience, he's now just tipped over my big vase and broke it too. He's so destructive we have no ornaments or anything house is very ds friendly :0). Put him in his room for quiet time out he will wreck that too actually broke his bed last week as well this is all new he constant jumps and stamps told is sensory disorder. Nothing planned for respite actually so looking forward to chillaxing and having some normal time without being stressed. time for other 2 ds they got plans for pals to stay etc. x

Shazian it sounds really tough. Don't apologize for ranting. I rant over much less. Hugs and (coffee if you get a chance).

Thanks for hug & Wendy much needed. DS in special school been there from age 2 right thru until 18yrs. He has severe autism, GDD, low muscle tone, pica. Since november last year he seemed to be in constant pain, legs going away from him, feet twisting in a lot, bending and twisting over at hips, always screaming when this going on. I saw camhs psychologist cos thought no point going to gp she said need check him out physically before mentally. He was in patient in hospital in January for 5 days where bloods xrays etc were done. Everything came back normal so he now attending Yorkhill Glasgow every day where they dx catatonia in autism and also tourettes movement tics. They see him daily cos changing meds etc and as no communication difficult to see how much pain he's in etc. He now referred to Prudhoe hospital northumbria cos they deal with kids with severe learning disabilities just to makesure on right dx etc and see if anything further ?(though hope not, couldnt be any worse). In between all this we notice couple weeks back ds has no testicles they in his abdomen, they have never been down so he now to get operation for that which is marked as urgent, to me this is causing a lot of his pain and distress. x

Chillax with lots of

What sensory is he looking for- is it the heavy work of stomping or the vestibular of jumping? Would a long walk puddle jumping help?

Thanks NoHaudin gonna have a now before he comes back downstairs, knew you ladies would understand. we love our dc but at times they are such hard work, he's such a wee darling and now i feel sorry for having a moan at him. Now having moan at hubby cos he annoyed that ds broke photo frame and vase im like oh for goodness sake we can replace them be quiet not end of world. Stressful all round :(

porridge defo lots of cos im gonna have long lies too awwww heaven. lol im never happy when he's away i'll constant be on the phone and missing him. However it does give us the much needed time for recharging out batteries. Not sure what he looking for sensory wise never knew he had sensory processing disorder until OT at hospital tole me. Due to problems with his legs (catatonia) he will only walk short distance sometimes only to end of path before he sits down so walking is out, might need carry him and he almost bigger than me x

I just dont know what to say shaz that could help you-that is such a mixed bag of issues for your poor ds.. I know myself that this is also a very hard age for your lad! 21 days a year is not a lot of respite really is it,especially when you have other children also? You could really do with a day or two a week given his problems! Can he walk at all or do his mobility problems prevent him leaving the house,going to park,shops etc? Hope you dont think I am being nosy!

Sorry, cross posting here. Shaz, we dont have anywhere near all the issues your poor ds has but honestly,sometimes the dh's(however supportive,etc they are) are just another bloody headache,They never quite 'get' the dcs as well as we do.And yes,it does cause stress all round.As you say,sometimes you think 'oh for Gods sake, what ds has just done is trivial in the grand scheme of things-thought you understood why he does this etc etc '. This in turn makes me cross with dh, causes an argument etc and so on and on and on[sigh]!

Trampoline? Bouncy castle type thing?

Wendy your not being nosy at all, happy to share all my probs lol a prob shared is a prob half and all that . Yes too right dh can at times stress me more than ds even though he is great your right doesnt get ds quite the same as i do (he'd tell you different lol). DS can walk but out and about we always use wheelchair cos he runs off at great speed and has no sense of danger and also is very selective about when he walks so will just sit down when he feels like it and i then cant get him up again. Porridge he loves his trampoline plays in garden for hours on end, which is where he is now......... bliss!!. He's a wee darling really, wold never be without him (now that ive had a and calmed down) haha. Thank you lovely ladies for the support, what an amazing lot you are x