We are off for our first tinsley house appointment tomorrow- feeling nervous

[shoppingbagsundereyes]

Not sure what to expect. We haven't mentioned aspergers to ds and am nervous about discussing ds' difficulties in front of him. He is much more aware now than when he was dx two years ago. Nervous and excited about starting the programme. I have such high hopes I will be gutted if we don't see improvements.

Are you going with your DH? Could he take DS out of the room while you speak to Robin?

You don't need to tell him the same things you tell a paed. He's not making a dx. He does a neurological test, which your DS won't find hard. (things like touching his nose and smelling stuff )

He'll do an eye test and a hearing test.

He'll ask you a lot about his birth. All his baby milestones. And a lot about his diet.

And he'll ask you what you think his biggest problems are.

You never need to mention the word Aspergers if you don't want to. Robin will be able to see for himself a lot.

Good luck. tell us how it goes.

Thanks, that's reassuring. Dh is staying at home with dd so just me and ds. I've just said we are going to see a man called Robin. He was more interested in whether or not the friend we will stay overnight with has Lego

It's very different seeing someone like Roboin to seeing a paed - because you're not trying to prove he has difficulties. Robin believes you. He knows you wouldn't visit him if your DS didnt have problems.

He's also not interested in DSs label. Robin doesn't care about whether he has a dx of aspergers or not.

What Robin does care about are his diet, vision and neurodevelent. So those are things he'll be testing and discussing with you.

His behaviour at school and at home aren't so interesting.

But hopefully you'll be able to talk about DSs anxiety or stims or sensory problems or whatever in front of him a bit. All you'll be saying is stuff your DS knows about / would agree with.

Was brilliant. He was great with ds who thought he was great fun. Is really positive about the results we should be able to get. Looking forward to getting properly started.