Hi this is my first thread so forgive me if I garble. My son is 8 and has had lots of cardiac surgery , including 2 major ops last year . THese havre given him a much better qol but he now shows weird symptoms like poor planning, memory, subtle organsiational things, emotional lability etc. None of these are major in themselves but i am v concerned about where this will lead, as it is affecting his sense of self and his schoolwork ( he is v bright but now has funny gaps ) He also has lax ligs and dyspraxia, but excellent social skills.
I would love to hear from any one who has a similar sounding child or can give any advice about recovery / strategies/ ideas to support him. i fought for the MRI and then now it has shown leisons I am not sure where to go with it all.
Any ideas? I feel awful for being right and yet don't know why things have to keep happening. I have 2 other ds and its hard explaining it all to them too. My dh is on antidepressants and finds each new issues v hard...