Auditory Memory Difficulties - anyone advice please

[MrsPurple]

Hi
Don't know if anyone as experience with this, but after a long 4 and half years of battling with health officials my DD2 has finally got something inwriting off the SALT. To date we have been vastly treated like we are over paranoid parents who are clueless. But now our DD2 is about to reach the magical age of 7 we have got the first step up the ladder.

We have changed schools and they are being very helpful, but I am frustrated at how long this is all taking to get help for her as she is so far behind and we are nearly at the end of another school year.

Has anyone got any advice how to speed up the process to get help for our lovely DD2 and/or has anyone experience to advice of coping stratedgies (some of which we are probably already doing).

You won't get help for your DD in the NHS. If you're lucky you'll get a dx - but it's very unlikely to bring help with it.

You should investigate loads and loads of therapies and see if you want to do any of them.

Suggestions of the top of my head would be:

Auditory integration training
Fast forword
Listening program
Theureputic listening
Retained reflex therapy
Tinsley house clinic
Dore

And there are loads more.

AIT and TH has helped my DDs memory problems. Her memory is now fine.

Thanks Indigo, what's dx? sorry been long day and haven't been on mumsnet for a while so lost touch with abbreviations.

Do get advice off the NHS OT's though esp. anyone involved with research.
Loads of people report success with the above therapies, but not all are backed up by evidence based research.
Check whether she should get any extra support at school. If you don't feel you are getting what you need I have been advised quoting government policy eg. DDA, 'Every Child Matters' 'Equal access to the curriculum' etc. and in my experience involving Governors and Parent Partnership has speeded up getting what my child needs. Good Luck.

Dx = diagnosis.

The trouble with asking anyone in the NHS for advice is they're only allowed to tell you about stuff which is available on the NHS.

(ie virtually nothing)

And of course the other problem is how long you'll have to wait to see anyone on the NHS.

My NHS OT does offer one of the very cheap listening therapies for free. But you have to wait a year to get it. Whereas my private OT provides the same therapy for £15 per month. And you can get it straight away.....

thanks ladies, sorry for the delay but in the throws of moving house back to our house which was water damaged last year. Is there society or web page you recommend for extra information. SALT took 6 weeks to write and say we are on list for extra SALT. ridculous so after complaining SALT now seeing DD2 tomorrow in school, fingers crossed she will get help she needs.