Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Still coming to terms with the "difference"

33 replies

theDudesmummy · 20/05/2012 13:26

I know this exact thing has been mentioned many time on the SN threads, and I kind of even thought I was beyond this already, but yesterday we (DH and me) had a hard few moments regarding that harsh realisation of the "difference" between our DS/our life and other people's children/lives. I can't really moan, our DS is ASD and non-verbal but has no other apparent problems and I know there are many others on here with much much more difficult lives...
However...

We went yesterday to a lovely little cafe in a nearby park, where I have in fact been with DS before for a nice weekend brunch. It is enclosed so you can sit down and he can't run away very far etc. It is the kind of place where there are many happy families and yummy mummies with their babies and toddlers, all drinking babyccinos and lattes, or chardonnay, and eating organic food etc. Lots of kids running around and parents all looking relaxed. Well our DS started, as he sometimes does for no discernable reason, screaming and bashing his head hard on the concrete path. Gasps all around from the yummy mummies and "Oh my God" from one, lots of disapproving looks. Our food and coffee, which had just arrived and was untouched, was abandoned and we just picked him up and left, me in tears.

Don't get me wrong, I don't care about not being able to have the food and the coffee (obviously), or even really what anyone thinks of us per se. We did not leave because people disapproved, we left because it was unfair to the other customers: people were trying to have a nice brunch and having to see a child braining themselves on a slab of concrete and hearing unending high-pitched screaming is not conducive to a pleasant atmosphere. I was just upset by the difference of it all; the other toddlers all running around laughing in the sunshine, the parents sitting relaxed and chatting, and us bundling a screaming child with a bruised forehead out of the place with people staring at us. It is not what you imagine when you have a child, is it? I always imagined myself as one of the loving happy mummies sitting with my latte and indulgently watching my child playing happily in the sunshine and running up to me saying "mummy mummy".

I am being rather selfish and self-indugent aren't I? And sorry about the long post. But it is very hard sometimes (only recently diagnosed, still really coming to terms with it).

OP posts:
theDudesmummy · 21/05/2012 11:12

Oh I am busy all right! It really does help, you are right. I have many other things on my plate too (work-wise, and as that is what is going to pay for the ABA, I have to keep that going full speed!), but have certainly thrown myself into setting up the ABA programme as best as I possibly can. We have some great people on our team and they are all so positive and enthusiastic. I don't spent a lot of time feeling sorry for myself/ourselves...(just a little bit, sometimes!)...

OP posts:
PipinJo · 21/05/2012 11:19

This reply has been deleted

Message withdrawn at poster's request.

CailinRua · 21/05/2012 16:06

Feel free to PM me thedudesmummy. Although I hope I can work out to access it. I am pretty new to MN + computers not my strongpoint!

glimmer · 21/05/2012 19:54

You know your thread really helps me. I think I have never really come to terms with DDs special needs and right now just dont have the time to do something about this. And - no offense to anybody on this thread - I just don't get the " I wouldn't change DC for anything". If I could I would change DD in a second. I seems kinda unacceptable to say this - even and especially in the SN world- and I understand why (self-pity and wishing things would be different don't help) but here it is: I would change things if I could.

glimmer · 21/05/2012 19:55

Hi used3be - congrats on your preganancy. How exciting. Should we try reviving our thread again?

used2bthin · 21/05/2012 22:30

Hi Glimmer! Yes good idea! Been a while! Thanks for the congrats, I have barely had time to think about this pregancy. I think I haven't come to terms with things either btw but I think it gradually sinks in with every now and then moments of shock when I am reminded.

theDudesmummy · 22/05/2012 12:26

Glimmer I think what I think is that I don't want another child, any other child, no matter how easy/"normal"/wonderful they are, I want my sweet DS, but it is true to say that if I could change things so it was easier for him then of course I would. I do want to hear him talk, but it is him I want to hear, not some other mythical alternative child (even the one I imagined he would be). Does that make sense?

OP posts:
glimmer · 22/05/2012 14:54

Yes, theDudesmummy it does make sense and I admire and understand what you say. I am afraid I cannot say the same for myself - but that's obviously "my stuff". I am very blessed in that I have also NT children, so I should (and am!)
be happy with what I have and - I am. Don't get me wrong. But if there would
be one thing I could change/make undone. Well you know now. But I deeply admire your attitude and maybe in a few years I can get there.

New posts on this thread. Refresh page