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Here are some suggested organisations that offer expert advice on special needs.

can some tell me about austism

12 replies

McHappyPants2012 · 18/05/2012 11:12

my son has been diagnoised, but needs more assesments to determind where in the scale he is.

so far i have been given no infomation, can you either link some trustworthy links.

will his behaviour get better because atm i feel low and out of control with him

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silverfrog · 18/05/2012 11:20

I am sorry you are dealing with this. it does (ime) get better/easier over time - not least because the initial shock has worn off, iyswim?

how old is your ds? I wouldn't necessarily hold out for an accurate assessment of whereabouts on the spectrum he is - my dd1 was dx'd at 2.6 - she was, at that point, severe - no communication, no interest in anythign at all, unable to engage her for the shortest of times. she has a general ASD dx. she is now 7, and doing fabulously well, after a lot of hard work (on her part mostly, as well as ours)

it sounds as though the diagnosis was recent - do take some time to absorb it. dd1 had been in the system for nearly 2 years by the time I finally had someone say the words 'she is autistic' to me. I had known it for ages, and was pushing for the dx. I still walked out of the appointment and cried. lots. because that last tiny, teeny shred of hope had been taken away - it takes time to readjust to news like this, so be kind to yourself.

imo, the best source of info is MNSN. there is the largest range of expereince here, and posters who talk straight. neither of which I have found from any other website, or paed, or ASD outreach etc.

what you do next very much depends on how old your ds is - is he at school yet? pre school? does he need extras support there if he is? depending on whereabouts in the country you are, services vary. as do things like Statementing processes and assessments. it is along road, and it is a marathon, not a sprint - don't knock yourself out trying to do everything all at once.

PipinJo · 18/05/2012 11:24

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jandymaccomesback · 18/05/2012 11:25

There is a lot of information on the National Austistic Society website. They also have a telephone helpline and a good booklist.

jandymaccomesback · 18/05/2012 11:27

Cross posted with pipinjo Grin

PipinJo · 18/05/2012 11:28

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PipinJo · 18/05/2012 11:28

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cwtch4967 · 18/05/2012 13:50

The Welsh Asembly have just produced a book to be given to parents on diagnosis, I've seen one and it is very informative.

It can be read online here

www.ssiacymru.org.uk/media/pdf/r/9/Autism_English_download.pdf

McHappyPants2012 · 18/05/2012 15:50

Thanks for the links and the info, he is 6 ( well in a few days) and had diagnoses a few months back.

It been 4 years now, countless appointments.

Once I know what I am dealing with I suppose it will get easier

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Ineedalife · 18/05/2012 16:15

cwtch, I have just been looking at the booklet. It looks really good. I am sure it will help many peopleSmile

Well done Welsh assembly!Smile

creatovator · 18/05/2012 17:41

Sorry to hear things are tough for you. Regarding behaviour issues it does get easier with a little work, but it helps to know what the behaviour is saying. Often it can be because they can't cope in a situation. It's trying to work out what is mischief and what is not coping. We actually found that much of DS difficult behaviour was because he wasn't coping.

When you know what lies at the bottom of the behaviour then you can work with him to help him through. It is a lot of work, but it is well worth it.

Be kind to yourself too.

I got an autism card to take out with us and I use it in restaurants when DS was being what others would think of as badly behaved. It helped me stay calm and cope better with the situation. Grin.

It does get easier.... promise.

PipinJo · 18/05/2012 22:24

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McHappyPants2012 · 18/05/2012 23:14

Thanks for all the resopnces, ds is away at his nan for a few days so I can recharge. Also going to see if I can get some support in real life.

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