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why do they cut services for the most vulnerable in our society, why do we have to keep on fighting?

14 replies

FioFio · 16/05/2012 18:18

since when was this normal?

sw seems on a mission, since last year sometime to reduce our care package as much as possible and the council have 'moved services' so everything is more complicated

and then you have to fight tooth and nail for services again
and then they have to give you them again

and SIGH!

when will it be realised that those of us with severely disabled dependents most probably and DO actually need the help ffs

I am so fed up

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TheLightPassenger · 16/05/2012 18:21

Sorry you are having crap time sorting out care for your DD. The insinuation via media and politicians is that the scroungers will be weeded out, and the genuine, deserving disabled people will be fine. But we all know that it's not as simple as that and that cuts have sweeping effects.

FioFio · 16/05/2012 18:26

We are not scroungers as I am married (have you have picked up?? and my dh works full time, me part), but even if we were how on earth could I work when they can't provide care for my daughter outside of school?

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bialystockandbloom · 16/05/2012 18:38

Current govt, using 'austerity' measures to reduce support for vulnerable. Stupid short term policies so they can crow and brag in media about how many savings they've made and how rich they've made the country, so they get re-elected. Fuck the poor, the needy, the disabled, the old, the young, the vulnerable. The right-wing press backing them up (eg see recent stories about SEN being over-diagnosed, or the ones a few months ago the hundreds of Daily Mail/Telegraph stories about 'benefit cheats' to fire up the mind of the masses that disabled people are scroungers, so they won't oppose any cuts or even know about them.)

Still, I hope they haven't yet made dd do a re-assessment to see if her condition has improved or vanished!

FioFio · 16/05/2012 18:42

yes they have re done a core assessment and dragged it out over 12 months. pretended they had done one and then fainted at suprise when i asked for a carers assessment as they hadn't done a core one

at leats it explained why we have had shit all respite but

'other families cope' don't they Angry

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TheLightPassenger · 16/05/2012 18:57

sorry, forgot you don't know me well to realise the huge dollop of sarcasm I was applying re:"scroungers", I really didn't mean to offend, my views politically are actually the same as bialystock!

TheLightPassenger · 16/05/2012 18:57

i.e. I was trying to make the same points as bialy but clearly expressed it spectacularly poorly [sad'

andperseand · 16/05/2012 19:26
Sad

[sarcasm warning] but don't you realise, 'we are parents, that's our job', 'that's what we get DLA and Carers for' 'DS can have an assessment if I really want one but it will not result in any services', and 'we don't do carers assessments for parents, only carers of adults'. Some recent nuggets we have experienced. All after it was CAF which had suggested escalating to higher level of support in the first place!

Puffinsaresmall · 16/05/2012 20:00

TLP - you should have put:

The insinuation via media and politicians is that the scroungers Hmm will be weeded out, and the genuine, deserving disabled people will be fine. But we all know that it's not as simple as that and that cuts have sweeping effects.

Only because there are so many twats on MN at the moment that people will read your post at face value (because the twats around would mean that). I know that you're as far away from the 'there are scroungers' mentality as possible Smile

OP - I feel your pain Sad

Peachy · 16/05/2012 20:23

Oh Fio

I now have 2 with autism in special schools, one seeing a Paed regularly and who school says will fall out of MS without a statement, and the other who 'just' has some SEN (dyspraxia and ADD suggested). We have been refused services three times now and I have given up. I had a bit of a breakdown when ds4 was picked up last year and SSD told the GP they still wouldn't take the referral!

I'd like to work but can;t find anything around the SN school taxis; Dh is now self employed after a redundancy, but if I get put on workfare next eyar as seems possible he would have to stop work and the business won't take that so we'd end up a workless family.

But you know hey-ho

And what I really mean is hugs, shit isn't it?

Peachy · 16/05/2012 20:23

(And I am aware that compared to those with very severely disabled children our needs are small)

bialystockandbloom · 16/05/2012 20:36

TLP your post was perfectly clear, don't worry - I knew what you meant and I'm sure everyone else did too Smile

bochead · 16/05/2012 22:10

My son isn't THAT disabled.

In fact I'd go as far as to say the system has been far, far more disabling over time to him than his actual neurological disability iyswim?

I used to think that we were an isolated case, & that perhaps if we weren't of heinz 57 ethnicity, I wasn't a single Mum, we lived in a mansion instead of a tiny ex-council flat etc, lived in a different post code, he wasn't an only child etc, etc that perhaps we might have received better quality more timely support. What a flipping joke! The system is equal opportunity - LOADS of children are equally failed, all across the nation.

I shudder when I think that he would almost certainly have been shunted off to a PRU, & written off totally at just 6 had I not stumbled across this board when I did.

I alternate between rage and despair at how often I see the same crap crop up again and again for so many families - at the moment the number of totally uneccessary exclusions has me hopping mad!

Just how many worried parents are fed complete bollocks about the whole statementing process & then when they do take the fight all the way discover it's written so badly as to be utterly useless or the school just ignore what is supposed to be a legal requirement? Don't even get me started on how I feel about the poor children about to be denied the meagre benefits of SA & SA+!!!!!!!!!

As someone who would still be paying 40% tax had the state honoured it's committments to my family I really get cross at the constant media barrage about benefits scroungers & disabilities.

I need to check myself or the authorities will need all those Olympic security measures just to reign in this angry Mum as she grabs a loud speaker and climbs Big Ben to tell the general public how it really is for us soon! (Don't laugh as I've already given thermometers to caring carrots as visual aids and done a few other naughty things)

That was a rant waiting to happen Wink

Desperatelyseekingsupport · 16/05/2012 22:44

Hear,hear Boc. I am so relieved I found this board too or I would never have got ds a statement. Had total bollocks support from it but hey ho it's a start!
Ooh sorry, I know I should be grateful really,not bitter.

FioFio · 17/05/2012 08:46

sw is even comparing her P levels at THIRTEEN, P LEVELS AT THIRTEEN to see whether her SLD has improved Shock

It frightens me to think that if anything happens to me and her father, which lets face it it will at some point, her care is going to be in the hands of these people :(

I am sorry other people are still having to fight too.

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