has anyone with a child with CP been asked to take part in some research at GOS??

9 replies

sparklymieow · 14/02/2006 22:19

I got a letter this morning with a pee pot, a special adapter thing and a tube to put the pee into and post back to GOS. They are doing research into white matter disorders and appartently it could be something to do with a sugar that our children might not be able to break down properably.
Anyone else get one??

OP posts:

buzylizy · 14/02/2006 22:20

not yet!

Original poster

sparklymieow · 14/02/2006 22:22

they only send me one for dd1, not DS, not sure if its because he developed CP in the womb.

OP posts:

buzylizy · 14/02/2006 22:37

haven't heard anything on my school group maybe it's only in your area

ntt · 14/02/2006 22:38

Are you under GOS?

mulsey · 14/02/2006 22:39

who or what are GOS?

Original poster

sparklymieow · 14/02/2006 22:39

maybe, to open it and find all this medical equiment this morning shocked me, I first thought the adapter was for a blood test and was wondering why the hospital were sending me blood test stuff.. lol

OP posts:

goldstarlover · 14/02/2006 22:40

gos is great ormond street

Original poster

sparklymieow · 14/02/2006 22:40

great ormond street hospital musley, yes we are under GOS, they diagnosed both my kids and they are both under the locomotor clinic.

OP posts:

buzylizy · 14/02/2006 22:53

not under GOS then so may be that is why I haven't had one

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