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Low muscle tone, trunk muscles, hypermobility

27 replies

claw4 · 04/05/2012 08:16

Ds has low muscle tone, poor trunk muscle, hypermobility, lots of sensory difficulties etc, etc.

He had a day off of school yesterday and i took him with me to the shopping centre to buy a few bits. He appeared very tired, very quickly, then spurts of energy. He sat on the floor in the shops whenever possible and leaned on me when he couldnt sit, when standing still. Yet the minute we came out of shops and into the street, he was running, jumping, spinning etc.

It is boredom that makes him sink to the floor in shops?

or standing still that he has a problem with?

How can he go from appearing to be so tired, to jumping around in a matter of minutes?

Anyone else have these difficulties, is it quite common?

OP posts:
survivingspring · 05/05/2012 20:57

Lots of useful info on low tone and hypermobility here www.skillsforaction.com/?q=node/22

DD has low trunk tone and hypermobility and quite often gets 'saggy' all of a sudden even if she's been jumping about a minute before. I think the muscles require extra stimulation so are constantly on the go until fatigue suddenly sets in!

Laura - DD has been doing RDA since she turned 4.5 yrs so they 'should' be able to take under 5s at your local centre. It is very, very safe so should be no worries about falling off the horse or injury. Riding is a wonderful therapy for low tone in the trunk - really has helped my DD hugely and might eventually be a sport she could be 'good' at Smile

auntevil · 06/05/2012 12:36

I always think of DS1 when he is in hypo sensory mode as body doodling. Everyone has probably done it at some time - doodling on paper to keep focussed on what you're listening to in a meeting - DS just does it with his body to keep himself focussed. When you've finished the meeting you fall asleep on the train - and miss your stop (speaking for myself here Grin ) - which is the same as them snoozing on an empty shelf in Sainsburys .
DS just finds life more extreme. Whereas in a normal day you may have a few high energy bursts - school run etc and a few lows - feet up with a tea, they have exhilaration bursts - spinning, shouting and total exhaustion.
I do love to hear how our DCs are all the same though.

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