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Here are some suggested organisations that offer expert advice on special needs.

Talk to me about hemiplegia?

5 replies

NoTeaForMe · 02/05/2012 17:59

Hi all,

I'm after some more information about this, not the clinical diagnosis and description but about actual children if that makes sense.

Thanks in advance!

OP posts:
Ixashe · 02/05/2012 18:31

Try googling "hemihelp". Hemiplegia was an early diagnosis for my son and I got a lot of useful information from there.

Paul.

emlou83 · 02/05/2012 18:40

hiya...my son is 9, he has hemiplegia, what exactly are you wanting to know ?

NoTeaForMe · 02/05/2012 18:52

I have a friend who's son has hemiplegia, I have a lot of experience with children with special needs but other than him have minor experience with this. I'd like to know more about this...from parents or people in the know.

Does it affect your child's behaviour, empathy and understanding etc? I was under the impression that it was more of a physical problem than anything else but I'm unsure! He has recently been diagnosed as having epilepsy which I understand is quite common with hemiplegia?

I don't really know what I'm after I guess!

Thanks

OP posts:
emlou83 · 02/05/2012 18:57

this is off the hemihelp site

What emotional and behavioural problems do children with hemiplegia face?

Many parents of children with hemiplegia have told us that their child?s everyday life is less affected by the condition itself than by associated ?invisible?? problems affecting education, emotions, behaviour or relationships. The trouble with invisible difficulties is that people outside the family often don?t take them seriously enough. A child who is unable to make friends or who has severe behavioural problems may be at least as badly off as a child in a wheelchair - but we all know that it is the child in the wheelchair who captures the public imagination, and attracts the most clinical care and research.

Are there other problems associated with hemiplegia ?

Yes, there may be. Because hemiplegia is caused by damage to the brain, it is not just motor development that may be affected. And despite the developing brain?s effort to relocate functions to undamaged areas, approximately half the children do have additional diagnoses. Some of these are medical in nature, such as epilepsy, visual impairment or speech difficulties. Many children have less obvious additional challenges, such as perceptual problems, specific learning difficulties or emotional and behavioural problems.

As the child grows these difficulties may become more frustrating and disabling than the more obvious physical ones, but with specialist treatment their effects on the child?s life can be minimised.

Education

Most children and young people with hemiplegia attend mainstream schools, with or without some extra support. It is essential that teachers be given as much information as possible about your child and how best to help him or her. HemiHelp has information materials for teachers in pre-school, primary and secondary education. These are of use not only to your child?s teachers, but also to you as parents/carers, to help you support your child through his or her school years.

hope this helps

Alice50 · 04/05/2012 11:24

Try searching "HemiHelp" on Facebook too - it's a great place to chat to other parents and also young adults with hemiplegia. Lots of tips and advice on there.

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