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Original poster

'It is considered miniUnChartered has ASD'

26 replies

UnChartered · 02/05/2012 10:13

The 5 page 'dossier' of our psych last appt have just arrived in the post.

Those are the words at the bottom of the page.

and it hurts.

like hell.

i know she's not going to change over night, i know she's still my funny, quirky little girl, i know she'll need us more than ever but it hurts.

OP posts:
propercheesed · 02/05/2012 10:42

sending you virtual HUGS and lots of them

Original poster
UnChartered · 02/05/2012 10:59
Thanks

just been on phone to DH (he's away for work, back tonight) and blubbed.

even though it's what we've expected, seeing those letters on a page feel like gunshots

OP posts:
SallyBear · 02/05/2012 11:14

Totally understand how you feel, I felt that was when DS1 was Dx with AS. But in essence its helped him so much. And it will help your lovely girl. Honestly it will. ((hugs))

Ben10NeverAgain · 02/05/2012 11:20

It does hurt (((hugs))). Even when you've been asking for the dx it hurts.

Have a Brew, sit down, chill out and watch some crappy tv.

You know you're not alone. We are all there for you xxx

Original poster
UnChartered · 02/05/2012 11:27

this IS the dx, isn't it?

it's not just a 'this is what we think' letter is it?

see what DD has done? got me thinking like her now Confused

OP posts:
Ben10NeverAgain · 02/05/2012 11:31

It says it is considered? I guess it depends how your PCT works. Mine has a multi-discipinary approach.

Mine says "This i to confirm that after his attendane at the socio-communication pathway and panel discussion, miniben does have a diagnosis of an Autism Spectrum Disorder (Asperger's Syndrome).

Original poster
UnChartered · 02/05/2012 11:36

wording is 'I discussed miniUnChartereds case with Paed Psych and following initial assessment, info from both parents and school, Paed Psych considered miniU has ASD..'

it goes on to say there is a group work programme availabe but due to her age, this will have to be discussed with AN Other

also 'An information leaflet regarding ASD is to be sent to parents (it is enclosed)

and 'A further appt in 1 month'

OP posts:
Ben10NeverAgain · 02/05/2012 13:00

It does look like it is the dx but I'd call up the secretary and ask. :( (((hugs)))

Original poster
UnChartered · 02/05/2012 13:15

i've got a telephone appt with her Consultant Psych at 2pm... if i do all the crying now, will i be able to hold it together then..i hope so

i'm on another thread on the board discussing the dx process, i really think this Is It Sad

OP posts:
HolyCalamityJane · 02/05/2012 13:20

Big Hugs to you unchartered. Try and get some time to yourself when your DH gets back tonight and have a big big bar if chocolate but not a kit kat. Am here for you if you need to chat xx

Ben10NeverAgain · 02/05/2012 13:27

I actually think that the crying is important. They are our babies. We have to get used to this as the "new normal" for us and them. It is a huge thing. xxxx

Original poster
UnChartered · 02/05/2012 13:53

i haven't run off, am trying to distract myself until 2 by making a lasagne sauce...

OP posts:
Ben10NeverAgain · 02/05/2012 14:05

Hope it's gone OK x

flowwithit · 02/05/2012 14:15

I think it's normal to feel like that and it takes time to get used to it even if you suspected it before.

I have been tearful since my Ds got his dx. It's good to read on here how dx has helped others so hopefully for you it's a door opening.

Original poster
UnChartered · 02/05/2012 14:21

it's official

ASD is in the house - Psych was lovely, asked how I was feeling, said that 'feeling shot was a positive' Grin i think Confused

he's referring her to a service to help with behaviour management, suggested a Cognitive Assessment and we've made an appt at his sleep clinic for next week

i have no idea what is in the lasagne

OP posts:
Ben10NeverAgain · 02/05/2012 14:31

He sounds really good UC. Sounds like he will be really helpful. The light I linked to on the other thread is v good. Lisad123 recommended it.

(((huggles))) again

Original poster
UnChartered · 02/05/2012 14:32

thanks, i'm waiting for DH to come home

i'm a mess now

OP posts:
Ben10NeverAgain · 02/05/2012 14:34

As much as we think we are prepared, it is not enough when you actually get told :( It does get better. We've known 4 weeks now and it is easier than to start with to deal with

EllenJaneisnotmyname · 02/05/2012 17:16

(((hugs))) unchartered. It's hard to have the last bit of hope that it's all a mistake, extinguished. Give yourself time to be upset. At least you have found us. Smile Happy to hold your hand.

Original poster
UnChartered · 02/05/2012 17:48

Thanks all

i'm a lot 'better' now - wine has been purchased, dinner has been rescued, DH knows as much as i do and DD is rolling about on the floor with her feet in the air

'normality' has been restored

i'm VERY glad i found this section - i'd be lost without you all

OP posts:
starfish71 · 02/05/2012 17:57

Hope you have an easy evening ahead and just sending support for you. It is a tough time.

Look after yourself x mum of 2 boys with ASD

shazian · 02/05/2012 18:49

Hope you get all the help and support you need now that DD has a dx. Big hugs to you, and hope you enjoyed your lasagne and wine x

pinkorkid · 02/05/2012 18:59

Sorry it's come as such a shock but it will get easier. Glad you've got a good Psych. It's a good sign he asked how you were feeling, that he gets the impact it has on the family. Enjoy the wine tonight.

coff33pot · 02/05/2012 19:46

massive (((hugs))) unchartered x

I am sorry about the shock it is hard and numbing when you get told x

It will take a while and a good cry will do you the world of good. Hope the wine is going down well and so are the hugs from DH :)

Here for you if you need me x

devilinside · 02/05/2012 20:50

Hope you're enjoying a large glass of Wine, I certainly am