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The waiting..panel meeting today

40 replies

starfish71 · 26/04/2012 15:32

I am going more around the twist than usual. My DS1 13 case goes to panel today. DS hasn't been in school since christmas, no home ed yet.

They are deciding whether he warrants a statement. He has probable AS but won't accept further assessments at presents but is under CAMHS, seeing a play therapist, under autism outreach team, virtually housebound and so anxious it is awful.

I have had an email telling me he is going to panel today BUT I may not know outcome till after the bank holiday!

Am going a bit unhinged waiting, they probably know by now what they are going to do with my son but I don't and may not know till after the bank holiday, I want to scream at someone. Never thought I would say this but getting statement and right provision for younger DS now seems a breeze. It wasn't am being flippant but this seems so much worse.

OP posts:
starfish71 · 26/04/2012 15:50

Sorry, bit self indulgent, really fed up today.

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TheNinjaGooseIsOnAMission · 26/04/2012 17:10

the waiting is horrible, hope you get the SA Smile

moosemama · 26/04/2012 17:12

Hi starfish.

Why on earth are they leaving it until after the Bank Holiday to let you know if they are meeting today. That's really unreasonable imo.

Sorry you are so stressed, he waiting is a killer isn't it.

I will keep everything crossed that they just said the Bank Holiday thing so that you didn't start chasing them today and that you get a letter sooner rather than later. Really hope it's a positive outcome as well.

Brew Chocolate

StarshitTerrorise · 26/04/2012 17:14

Oh ffs,

Who put in the statement request? You or the school/LA? Have you seen all the submitted paperwork?

You can to do some digging but write to them reminding them of the section of the Education Act/SENCOP (sorry it's been a while for me) that states that the responsibility and accountability lies with the case officer (1 person) and that LA's should not hide behind panels. Ask them to let you know in writing why there is a delay between making the decision and informing you.

starfish71 · 26/04/2012 17:20

Thanks both, I wish I knew why they are keeping me waiting. The liaison officer has been really good with me up to now but it's like the barriers have come down and nobody wants to tell me anything!

Just fingers crossed that they decided on a statement and not a note in lieu, will gratefully take the tea and chocolate, thank you x

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starfish71 · 26/04/2012 17:25

Oh thanks star, will use that.

I put in the request, have seen EP report, Autism outreach report both positive and supportive, haven't seen schools or medical doctors or CAMHS.

Hate that they won't just give me a brief phone call say if he is getting a statement or not, think they enjoy making me a nervous wreck.

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StarshitTerrorise · 26/04/2012 17:31

If you want to be bolshy you can tell them that you have put aside this weekend and the BH to fill in the appeal form so can they please tell you now of their decision.

starfish71 · 26/04/2012 18:03

I am seriously considering doing that now star! If I haven't heard from them by Monday or possibly tomorrow may just have to do that.

It's not unreasonable to know if they have agreed he needs a statement or not is it? They can fill me in with the details later but I want to know yes or no!

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StarshitTerrorise · 26/04/2012 18:30

Well sleep on it for a couple of days before you do, and be prepared that all the bolshiness in the world might not get you a decision more quickly, just make you more angry and them more gleeful etc.

HotheadPaisan · 26/04/2012 18:37

This reply has been deleted

Message withdrawn at poster's request.

starfish71 · 26/04/2012 19:36

It is all a bit odd, good communication with them until last three weeks then all gone a bit secret squirrel.

Will try to keep busy, house was getting cleaner than its been for a while, given up on that now though..

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starfish71 · 27/04/2012 13:48

I couldn't stop myself, have just sent an email to the Manager of the Sen team.

Just asked if they could just confirm whether DS has been granted a statement or not and that I am happy to discuss the full details next week but it would alleviate some of the stress if they can confirm what decision was yesterday.

Hope I have done right thing, but it's done now. No idea if he will reply or not...

Had a bad migraine last night and just thought I am going to be stressed anyway I may as well give it a shot.

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Ben10NeverAgain · 27/04/2012 13:56

Good luck Starfish

HotheadPaisan · 27/04/2012 14:21

This reply has been deleted

Message withdrawn at poster's request.

HotheadPaisan · 27/04/2012 14:22

This reply has been deleted

Message withdrawn at poster's request.

starfish71 · 30/04/2012 17:09

Well no news again today. :(

I have not had a reply to my email which I sent on Friday, nothing.

Hothead, I feel sick and after the email which my liaison officer sent to me on Wednesday saying she may get in touch this week or it will be after the bank holiday, I don't think I will get anywhere ringing till at least tomorrow.

My shoulders are so tense I feel ill. DS has not really left his bedroom this weekend and am really struggling to cope today.

Any suggestions on what I should say when I ring tomorrow or how to word another email?

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Robotcornysilk · 30/04/2012 17:37

That sounds so stressful. My ds1 was similar a couple of years ago - housebound with anxiety and unable to come out o f his room. You must be exhausted. (( hugs)) why isn't he having any home tuition though? Just appalling.
When you phone them just ask whether they've made a decision and if not when you can expect to hear. You have to be persistent with them!

StarshitTerrorise · 30/04/2012 17:47

Starfish, I know it's hard but you have to learn how to roll with these punches as there'll be more. And lots of them will involve stressful waiting. Get on with your life. You're unrespondedto email might one day be evidence in a long list for a complaint.

2old2beamum · 30/04/2012 18:07

starfish71 I could weep for you, until I came on mumsnet I had no idea how hard it was for parents with DC's with AS, ADD etc. Makes me ?grateful for mine with SLD and complex needs. Keep battling you will win if not appeal and appeal again. He needs a statement and he should have some home tuition, if you decided you couldn't be arsed to send him to school they would be down on you like a ton of bricks. Keep your chin up.

starfish71 · 30/04/2012 21:27

Thank you for support, believe me it is really needed and appreciated.

The LEA haven't given us any home tutoring because the school DS attended put in an application for him to attend a resource centre, very small, apparently with good reputation, but we haven't seen it yet. Apparently they don't have to provide home tutoring if a request for a resource base has been applied for. ? They were meant to be deciding if DS had a place there last week, still waiting on that decision too.

I think I would be coping better if DS was able to pop out with me in the day to have a walk, visit somewhere quiet but he is so anxious, stressed he can't bear to leave the house, even tired getting him to come out for a walk once it's dark but he just can't do it.

Will keep pushing and hope tomorrow will bring news, thanks again for support.

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Robotcornysilk · 30/04/2012 22:34

So he's been out of education since dec? 4 months! Your LEA need a rocket up their arse.

starfish71 · 01/05/2012 08:10

Yes they do. It's like walking through treacle dealing with them.

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pinkorkid · 01/05/2012 09:40

Starfish,

Corny is quite right, your LA are really mucking you and your family around.

Firstly, when our ds' case went to panel, they decided on the day and I got told decision over the phone the next day. It's unacceptable that they keep you hanging on if they have made a decision and that they have not returned your emails. I would ring up and insist on being told as a minimum if the panel have reached their decision already and, if not, when it is due. If they have decided, they need to tell you straight away, there is no justification not to. It may take time to write up a report, but it takes seconds to tell you a yes or no. If they are still being unhelpful you remind them that the SEN code of practice emphasises the LA's duty of communicating effectively with parents as key to the statementing process.

Secondly they are acting illegally by not providing home tuition for your ds while sorting out another suitable placement.

link here to the key government guidelines:
"Access to education for children and young people with medical needs"

www.education.gov.uk/publications/eOrderingDownload/DFES-0732-2001.pdf

key quotes:

"Section 19 of the Education Act 1996 provides
that, ?Each local education authority shall make
arrangements for the provision of suitable
education at school or otherwise than at school
for those children of compulsory school age
who, by reason of illness, exclusion from school
or otherwise, may not for any period receive
suitable education unless such arrangements
are made for them.?

Groups covered by this guidance
1.1 This guidance applies equally to all those pupils
who are unable to attend school because of medical
needs, both those who are physically ill or injured
and those with mental health problems. Particular
care is needed to ensure that there is adequate
provision for pupils suffering from mental illness.
Pupils with mental illness, anxieties, depression
and/or school phobia, including separation anxiety
and school refusal associated with depression,
which prevent them from attending school, may
need support from specialist mental health services.

LEAs? responsibilities towards pupils who
are unable to attend school because of their
medical needs should ensure that:
? Pupils are not at home without access to
education for more than 15 working days.

? Pupils who have an illness/diagnosis which
indicates prolonged or recurring periods of
absence from school, whether at home or
in hospital, have access to education, so
far as possible, from day one.
? Pupils receive an education of similar quality
to that available in school, including a broad
and balanced curriculum.
? Pupils educated at home receive a minimum
entitlement of 5 hours teaching per week
This is a minimum and should be increased
where that is necessary to enable a pupil to
keep up with their studies. This is particularly
important when a pupil is approaching
public examinations.
Whether the child or young person is able to
access this entitlement will depend on medical
advice, and perhaps more importantly, when
they feel able to cope with it. The right balance
must be struck between encouraging pupils to
study and recognising when they are not well
enough to benefit from teaching. This must be
kept under regular review

This guidance was reinforced in the recent updated education act which emphasised that all children regardless of their circumstances are entitled to a full-time education equivalent in quality to that of their peers.

There was an article in the Times Ed Supplement last autumn which highlighted how many LAs are ignoring this legislation with impunity. I'll link to it later if I manage to dig it out.

LAs get away with this because the guidance is not well known and certainly not promulgated widely by either schools or LAs.

Sorry this is a bit of a rant but I've been where you are now and it's not pretty and certainly not fair for our dcs.

Good luck and let us know what response you get.

StarshitTerrorise · 01/05/2012 09:44

Does that apply when a parent has CHOSEN to home educate?

Robotcornysilk · 01/05/2012 09:49

thanks for that link pinkorkid - I'm making a note of that. When ds was out of school we got home tutoring very quickly, but the tutor was way out of her depth with ds1 and made threats about us being prosecuted (and worse) if he didn't return to school.