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The first year after a diagnosis: how to cope, and where to go for information, advice and practical help. Mumsnet/KIDS support session, Wednesday April 25, 8pm

9 replies

RowanMumsnet · 23/04/2012 19:20

Hello there,

Following on from discussion on this thread, we're pleased to announce that we're going to host the first support session with a member of KIDS staff this Wednesday evening between 8pm amd 9pm. The topic of Wednesday night's session will be: 'The first year after a diagnosis: how to cope, and where to go for information, advice and practical help'

KIDS is a national charity working with disabled children, young people and their families across England. Sue Cawkwell is the KIDS Regional Director for Yorkshire and Lincolnshire, managing a range of services such as Parent Partnerships, specialist keyworkers for disabled children, short breaks services and disabled children's advocates. She is the mother of three children, two of whom have disabilities.

As outlined on the previous thread, the idea of these support sessions is to complement the advice and support that Special Needs posters already give each other with the insight and experience of people working for an organisation in the field. We hope that the session will pull together perspectives and advice from MNers and from Sue, and that the thread will serve as a reference point for posters caring for a child who has recently been diagnosed.

This is a trial run for these support sessions, so do please continue to keep feedback coming on this thread.

It would be great to have as many of you as possible join us 'live' on Wednesday evening, but if you can't make it, please also post up any advance questions for Sue here.

Thanks,
MNHQ

RowanMumsnet · 24/04/2012 15:55

Oh cripes.

Thanks Tee!

RowanMumsnet · 25/04/2012 19:53

Hello everyone,

Sue will be along in ten minutes or so to start the live session; in the meantime we're going to post up some responses she's already composed to points you've been making.

RowanMumsnet · 25/04/2012 19:53

Thanks for the tip-off about the shading, madwoman - I will try to sort!

RowanMumsnet · 25/04/2012 20:19

Hi Sue - I'm going to butt in with a rookie question, because you've been so terrifyingly efficient at answering everything Grin

You've mentioned green papers and white papers a couple of times. Do you have any insight into the over-arching themes that are likely to emerge in SN/disability -related policies for children over the next few months and years? Is there anything you can tell us about that, from your professional perspective, that will help parents and carers in their approaches to government bodies and service providers?

RowanMumsnet · 25/04/2012 20:35

@messymama

Reading with interest. Ds diagnosed with ASD TODAY. Have been given early support booklet and going to be booked in for early bird plus. What can i do now? What should i be doing? Do i tell friends? Have no idea what to do. Only came on mumsnet tonight to look for answers.

Welcome to Mumsnet, messymama. Hope you find the support you need (and other good stuff too Smile)

RowanMumsnet · 25/04/2012 20:47

@appropriatelyemployed

Ooops - are there rules? Best go! But would like to hear your views on the failure of LAs to follow the SEN Direct Payment Reg.

No no - given that Sue is going through the questions at such superhuman speeds, I wouldn't worry about it!

RowanMumsnet · 25/04/2012 21:20

@madwomanintheattic

The politicians weren't this fast, and they had typists and everything...

I've no idea how she managed it - she's not even in the office and therefore getting her hand held like guests normally do

Thanks so much to Sue for her contributions tonight, and to everyone who posted.

We hope you've found this useful; do keep the feedback coming.

MNHQ

RowanMumsnet · 25/04/2012 21:25

@HotheadPaisan

Holding their hands is prob what holds them up...

Oh, very funny Grin

RowanMumsnet · 25/04/2012 21:32

@UnChartered

Thanks for arranging this, i missed the live chat, but Sue has been very efficient!

hope it's a regular thing, online support

Thanks, UnChartered

Of course, we'd be the first to acknowledge that the regular posters in SN are the first and best source of support on here, but we are hoping that sessions like this will add an extra perspective, and hopefully be useful.

We'll be putting our heads together at MNHQ (and with KIDS) to try to evaluate how useful this was - so do please let us know what you think.

Watch this thread for updates

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