So now I know DT2 has

[jambuttie]

Low muscle tone and joint hypermobility can someone explain fully what happens now????

A friend of mine sent me some links to to read up on but I would also like a parents experience too.

DT2 is very very clumsy, he is bloody obsessed with switches, he flicks them on and off on and off for hours. If I give him a row etc he freaks out totally but goes back to his switches.

He needs things to be the same ALWAYS, does not deal with change good at all eg

breakfast time he must take the bowl from the cupboard and it has to be the pink one, he must have his spoon in his bowl before the cereal is out into it then the milk. I now have learned and through talking to my friend that I should give out 1 cereal only and no choices.

The fear on his face when mummy thinks she's been good and allowing them to chose form a few cereals is a wee shame.

So we have an assesment appt next thursday which yes I am a bit bervous off. I hope he is ok but in the real world I know my wee lad is a bit different from his brothers.

His weight is a huge issue at them moment- well always really, he is very underweight

What are your experiences on these issues and please these are only a few issues we have with him

Thanks very much folks

yes they have reffered him for special shoes too or the insoles

ok orthodist have just phoned and they have had 3 cancellations today.

we are taking DT2 there today at 2.10 to be fitted for shoes/insoles

Things are moving fast now

Just had his fitting for boots will be 5 weeks before they arrive

Good to hear things are moving. My DD has the Piedro shoes/boots for extra support (low muscle tone and hypermobility too) and they do help. They look so cute too.

Hydrotherapy has helped here. The first sessions were arranged by the physio but now DD has regular sessions at school as they have their own hydro pool. It really has helped to strengthen her.

The boots should help, since DD has had them she is standing more and walking a few steps holding on to us, she couldnt do anything before that.
Im interested in Hydrotherapy what does that do?

so does it get better then the low muscle tone???

the orthotist today said she cant guarantee he won't need them for life i was stunned thought this was a temporary fix but if he needs to have them then so be it.

Now I just need to focus on thursdays assesment and maybe we can get some answers.

Hubby has today realised that our wee boy just needs a bit more help and makes him that bit more special.

Hydrotherapy is certainly worth asking about. Our Physio was very keen for my DD to have a go. It's more structured than just taking your child to the swimming pool. We were lucky that there was a hydrotherapy pool nearby which we could access, as the water is warmer & so more inviting and the room smaller and less noisy than a traditional pool. It also had the special hoists for getting older/bigger children in and out if necessary. Although our local pool does extra-heated sessions one morning each week for babes & toddlers plus one for those with additional needs which would work too I suppose if there was no hydro pool close.
When my DD first started she went with a small group so she had one adult in the water supporting her plus the physio either in the pool or on the side. Sometimes I went in the water too(I was given the choice) or just was around to help with changing. They were using the Halliwick concept which is method devised especially for children with special needs. Fairly new to MN so haven't worked out links yet but I'm sure Google would tell you more. Apart from it being excellent exercise (yet gentle on the joints) they can tailor the programme to meet your child's special requirements. My DD certainly became stronger as a result. Also helps with constipation!

thanks for the info folks fingers crossed we have more answers on thursday afetr the assesment