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SN children

Here are some suggested organisations that offer expert advice on special needs.

So now I've got TWO LAs following me about online.....

62 replies

StarlightMcEggsie · 05/04/2012 16:28

Hmm

Just received evidence.

Grin
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SallyBear · 05/04/2012 19:25

You need to start posting links to the Daily Mash just to put them off their coffee, Star.
guaranteed to be non-pc!

coff33pot · 05/04/2012 19:46

a stalker? oooh come on dont be shy we dont bite............much

appropriatelyemployed · 05/04/2012 20:40

Now you now that is a lie! We certainly do bite low-life, underhand functionnaires who should be spending tax money on children and not on harassing parents - well I bite anyway.....grrrrrrrrrrrr!

coff33pot · 05/04/2012 20:55

Oh I am inclined to a little nibble every now and then Grin

bochead · 05/04/2012 22:12

I hope it's to gather evidence of the distress caused to your family in order to calculate the financial compensation you are all owed for the suffering your LA has caused you. Oh, and the private therapist to help you come to terms with it all!

Sooner or later someone, somewhere will succeed in injecting some real honest to goodness accountability into the system. At that point these leeches are gonna be in for one helluva wake up call. If they are reading this post I hope they will also google the concept of "shame" and seek immediate professional appropriate help if they do not sense it's prescence within themselves.

When are these so-called professionals gonna wake up to the fact that the public employs them and pays taxes to do so in order that they SUPPORT children and families?

I'm so sorry this is happening to you Star. It's totally sick.

StarlightMcEggsie · 05/04/2012 22:44

I understand they read. I have evidence enough from the past.

What I don't get though is given that they do, how can they be so ignorant about ABA still?

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StarlightMcEggsie · 05/04/2012 22:56

Wet my High Court cousin doesn't deal with SEN sadly, but you're right she might be able to help in some way. I'll look into RIPA too, thanks.

MummyPocpoc* There must be a position in a LA somewhere for you. I know of friend who have had the LA look at their linked in accounts. It's a growing market.

Triggles Absolutely. I only post here what is absolutely fine for the whole world to know. I'm quite forthcoming with lots of things but if they know I need at least two razors to shave with why should I care? The other stuff is only 'in public' once it has been dealt with in private. Believe it or not, I don't actually post everything, nor do I always post articulately.

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appropriatelyemployed · 05/04/2012 23:28

Or you could always complain and then go to the LGO...........ha ha ha ha ha...Grin

You know I am working on a project at the moment about establishing the rule of law in so-called 'developing' countries. We (the developed world) advocate ombudsmen as a cost-effective way to enforce rights.

We also tell them about 'public service ethos' and the importance of good governance and accountability.

What a joke!

Lougle · 06/04/2012 00:27

I think NonnoMum might have applied for the job Grin

justaboutisnowakiwi · 06/04/2012 10:22

This reply has been deleted

Message withdrawn at poster's request.

mariasalome · 06/04/2012 21:16

Actually I think it's great, maybe not started off with the best of motives but allowing LEA employees to spend working time reading star's posts and lots of the other threads on this board is bound eventually to do more for any council's disability awareness, joint working and general staff professional development than any other approach I can think of.

Thanks and Happy Easter to whoever authorised this.

StarlightMcEggsie · 07/04/2012 20:46

Thanks everyone.

Maria, That's an interesting point and you might be right. However my experience so far has been to find staff, when presented with facts, reason and common sense, to tie themselves up in son deluded self-justification into why common sense and reason doesn't apply, particularly when they might risk coming off less favourable.

That's the experience with LA 1 anyway. No idea about LA 2. Don't know much about them if I'm honest. They seem to want to delay things by questioning whether or not we are really living there but I'm not sure that refusing to continue with us until AFTER the date we actually live there is entirely unreasonable.

LOL Justa and btw, new house has a dishwasher!

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justaboutisnowakiwi · 07/04/2012 20:50

This reply has been deleted

Message withdrawn at poster's request.

StarlightMcEggsie · 07/04/2012 22:17

My solicitor says stop posting!

Thing is, I use MN to navigate not just the system but the practicalities of having a Ds with SN, family life and to search for solutions that enable me to do what is right for my family!

That support and help is just not available in rl even without the complexity of SN etc.

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justaboutisnowakiwi · 07/04/2012 22:40

This reply has been deleted

Message withdrawn at poster's request.

coff33pot · 07/04/2012 22:43

So what your solicitor is saying is basically you cant have a life unless it is acceptable to be ruled, stalked or dicatated too.

I could swear right now

appropriatelyemployed · 07/04/2012 22:48

I think we should all properly run everything we say, do and think past our LAs - it is only fair after all, they work so hard to undermine everything we do, the least we can do is do as we are told.

Shame on your solicitor for saying such a thing. Shame, shame, shame.

bochead · 08/04/2012 02:25

Do any of these professionals get how HARD it is raising a family that includes someone with a disability?

I'm currently following the thread on sleep issues at 2 am in the morning in the desperate hope that another parent has maybe come across a technique/strategy I haven't yet tried (despite asking EVERY expert in RL I've ever met), in the slightly desperate hope that perhaps someday I'll get more than 3-4 hours uniterrupted kip.

I do hope the people people stalking Star gain some small inkling as to how many things a parent has to juggle daily; and starts to realise that maybe, parents in her position have better things to do than deal with amounts to constant harrassment ON TOP OF their already considerable burden?

Forums like this are often the ONLY place parents can get pretty fundamental advice, support and guidance?

justaboutisnowakiwi · 08/04/2012 05:09

This reply has been deleted

Message withdrawn at poster's request.

SallyBear · 08/04/2012 06:02

HmmHmmHmmThe worst problem. Difficult to say which is the worst as they are all something that a school age NT doesn't do!!
Constant waking up for hours at night, climbing onto furniture (wardrobes) just to sit somewhere high up, smearing poo and unfortunately sometimes it ends up in his mouth (yuck!), running away as he chooses not to hear you, chewing strange objects, incontinence, narcolepsy, fussy eating on a grand scale, poor co-ordination, no sense of danger, developmentally delayed delayed delayed.

Sound like a normal life with a child? No? Funny that.

appropriatelyemployed · 08/04/2012 09:51

It won't make any difference.

These people really see themselves as victims.

Public sector workers, under threat of redundancy, internally bullied by senior staff who hide behind frontline workers and can't make a reasoned decision to save their lives (because their decisions are all about money and that's, er, not legal), they believe everyone is out to get something they are not entitled to or to get something they are entitled to in priority to others.

This is how they justify it to themselves - the lying, the lack of integrity and transparency, the hounding or villifying of parents - they are protectors of public funds. A small pot of money which has to be carefully distributed and guarded against middle class know-it-alls who want a 'rolls royce' education off the state.

I was told once in a meeting with a vile head of SEN that 'those who shout loudest don't get' which is, of course, total bollocks because those who don't shout don't get either, so who is 'getting' anything?

They should turn their anger on the lack of funding not us. They should be marching about that not their own pensions. They should get another job where they don't have to end up knee deep in deceit. They should whistle-blow about lying managers.

But they won't. They take their money and keep their mouths shut. So there is no point appealing to their better nature. They are beyond that. We have been dehumanised as far as they are concerned.

justaboutisnowakiwi · 08/04/2012 10:00

This reply has been deleted

Message withdrawn at poster's request.

StarlightMcEggsie · 08/04/2012 15:48

AT, I'll be writing a statement in that spirit. Apparently I've not been 'entirely honest with them' about where I live and should have told them I have sometimes being staying in a hotel these past few weeks. They have told the tribunal they are 'confused' about where I am living and want a telephone conference to establish this.

Given when communicatin with LA2 I have always used my LA1 address wrt correspondence and emailed my tenancy agreement for new address with date of moving I cannot understand what lack of honesty they are referring to. But if there really has been any confusion, then every piece of correspondence inc. emails has had my phone number on it. Why not just call and ask me?

LA1 decided that we were going to move LAs long before we had any plans to due to threatening the nursery manager to say things she didn't really know much about so the are saying we haven't been honest as we didn't tell them we were moving. But how could we before we knew we were, and then before we had anywhere to move to.

Again, LA communicated all this nonsense to the tribunal without once writing or phoning me to ask.

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StarlightMcEggsie · 08/04/2012 16:58

Do you think they write to each other and the tribunal and speculate instead of just contacting me directly for any clarification because they are frightened of me?

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StarlightMcEggsie · 08/04/2012 17:01

Do you think the delaying stuff is all about trying to get a tribunal date as close to no.3 birth date?

(do they not realise that having a baby is a pretty small event in the grand Starlight reality?)

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