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Can you get a statement just for social communication probs

20 replies

flowwithit · 31/03/2012 12:34

I seem to be getting mixed opinions on this. Psychiatrist who specialises in ASD has made Dx od HFA but says we wont get statement as thats for educational needs?and we are waiting for salt Dx. My ds is 11 yrs and is getting good marks in most subjects yet he still says he thinks lessons are too hard so I
think he is meaning emotionally socially hard
rather than the work. He is at MS secondary school and has v bad anxiety/ panic and is on meds to help that, they are trying to help but not done formally eg no IEP ect. Should I try for statement myself anyway when we get salt report? Would it still help him if he needs
emotional social help not educational?

OP posts:
AttilaTheMeerkat · 31/03/2012 12:39

Would apply for statement asap and ignore any naysayers. Statements can take around six months minimum to set up so would not delay unduly.

Is your son not on School Action plus; he should certainly be on this plan as well as have an IEP drawn up with you termly and in attendance when it is written up.

Statements can also be for social/communication needs; they are not just for academic needs. This person gave you duff info.

IPSEA's website is helpful to look at re the statementing process and it has model letters you can use to the LEA. www.ipsea.org.uk. Also if you make the application you can appeal the decision in the event the LEA say no.

flowwithit · 31/03/2012 13:56

Thank you very much for your advice.
If we send off the letter now. What is statement process like. Are there lots of meetings? Paperwork ect? Who attends the meetings?
We are still waiting for EP appointment but will have psyc and salt reports in next month.

OP posts:
moosemama · 31/03/2012 14:17

I have just got a Statement for my ds1 (he's 10 next week and has AS). He in achieving well at school, in fact is well ahead of NC levels for his age in some areas, but "finds accessing the curriculum difficult due to the barriers his social and communication difficulties present".

That last quote is how you need to word your request for Statutory Assessment. I made it clear that, although I felt his grades could be higher and he is not performing to his potential in some areas, my reason for applying for a Statement was because ds needed ongoing support and additional training in social and communication skills and without this he would definitely fail to meet his potential in the longer term.

He also suffers from extremely high anxiety and support for this has been included within the provision on his Statement.

The sort of thing my ds is getting via his statement is regular contact from a sort of mentor figure (LSA) who will help him to organise his equipment, deal with homework (handing in and bringing home) help him complete his feelings diary and talk through any anxieties he may have, taking action where necessary to deal with any problems that may arise. He will see this person first thing in the morning, after each break and lunchtime and just before coming home. He will also have a weekly, hour long session with a teacher from ASD outreach, who will work with the mentor and ds to identify specific areas he needs to work on and help him develop strategies for dealing with them. So, social stories, action plans etc. She will also help him to continue working on his emotional literacy and regulation.

You will need to show that the school has tried various strategies to support him, but he needs more support than they can provide from their usual resources. It doesn't necessarily need to have been via IEPs, but they need to have 'evidence' of what they've tried.

I would put in the request for SA yourself as it really helps if you have the control and if its turned down, you can apply again straight away, whereas the school will have to wait another 6 months before they can reapply.

Start off by writing a list of all the things you feel your ds needs support with in one column and then what, in a perfect world, you would like the school/LEA to do to help. Write down every way you can think of that his issues present barriers to him meeting his potential and then how you feel these barriers could be removed or mitigated.

You will need a copy of the SENCOP (SEN Code of Practice), as its useful to use their language (hence the bit about 'barriers to learning', 'meeting his potential' etc). (Please excuse the website - its getting harder and harder to find a link to it online.) I also found a lot of useful stuff on SOSSEN, IPSEA and ACE-ED websites to help with what I should be putting in my request. Another one I've found more recently is Special Needs Jungle, who have actually published a book that will walk you through the process - too late for me, but it might help you.

Don't let anyone tell you what you can or can't do or what your ds will or won't get. They all have their own axe to grind. I was told repeatedly (and forceably) that my ds wouldn't get Statutory Assessment, let alone a Statement and we got both on the first try. The Statement we've got is badly written and needs a lot of amendments, but the content is worth its weight in gold to my ds and will be the difference between him sinking or swimming in secondary school.

Good luck. Smile

moosemama · 31/03/2012 14:28

Cross posted with you.

Have a read of some of the websites I've linked to, they will explain the process.

In the first instance you just send the letter off requesting Statutory Assessment with a view to your child getting a Statement. They will then send you a pack of information and usually a long questionniare to fill in and get back to them by a certain deadline, along with any supporting evidence (which would be your SALT, EP reports any examples of his work if relevant, school reports - if relevant - anything that you feel supports your application really.) They will also ask who, if anyone you would like them to contact for additional information that will support your application, so you could put down school, EP, SALT, GP etc).

There are no meetings at this point, you just send in your questionnaire and evidence and it will be put in front of panel, who will consider your request and give you an answer (by a set deadline) about whether or not they are going to assess.

If they don't agree, they should tell you why and you can firm up your application, tighten any gaps and reapply. If they assess, your ds will probably have a basic Paediatrician appointment, height, weight etc plus a discussion of your concerns, an Ed Psych will probably observe him in school and may meet with him and/or you and the LEA will ask for reports from anyone they feel might have some input, so could be OT, GP, SALT etc etc. You may also have another submission to do to expand on your initial questionnaire (depending on how in depth your first one was - we didn't have to do two) and there might be one for your ds to fill in as well - but you are allowed to support him with this.

When all the reports are in, they will decide whether or not to issue a statement and must let you know by a certain deadline whether or not this is going to happen. If they don't issue a statement, you can appeal. If they do issue a statement you can comment on it and ask for amendments and if you want to, you can meet the statementing officer to discuss the changes you want made. Again, if they don't agree to your amendments, you can appeal.

This site is quite good for getting to grips with the basic process.

flowwithit · 31/03/2012 15:26

Thank you so much for taking the time to help with all that info.
I will now go and look at those sites and make a start so I am prepared when we get the reports through.
Maybe it won't seem so complicated once I start working through it.

OP posts:
moosemama · 31/03/2012 15:37

Its not complicated once you get your head round it, but I know how you feel. It does seem it when you first start reading.

Once you start the ball rolling it kind of just keeps on going and the LEA will send you all the info you need about dates and deadlines etc.

I was where you are back in December, when I was writing my request and now I am sitting here rewriting amending ds's statement.

If I can do it, anyone can. Grin

If you need anymore help just yell. Smile

ArthurPewty · 31/03/2012 20:43

This reply has been deleted

Message withdrawn at poster's request.

alison222 · 01/04/2012 13:47

Ds has one. He is v good educationally but has social, communication and emotional issues. His statement is for social skills, helping transitions between activities, some OT work, sensory problems etc. I was initially told by the school we would not get a statement. I waited until last year to apply when they changed their mind and supported me. In some ways I wish I had done it earlier, but I had a lot of professional reports and IEP's to back up his needs when I did it, so with the correct wording, ( and help from Parent Partnership) we got it.

flowwithit · 01/04/2012 21:11

Thanks Leonie. how long did it take for you to get your statement?

Hi Alison222 how old is your Dc?

OP posts:
ArthurPewty · 02/04/2012 08:23

This reply has been deleted

Message withdrawn at poster's request.

Oblomov · 02/04/2012 11:42

I have just applied for a SA. Am awaiting letter any day now to tell me that we have been refused. Ds1(8) diagnosed AS spring 2011. School obstructive and say they see no signs of ASD Hmm stupid people. If you like, I am more than happy to send you a copy of my application letter. Message me. SOS-SEN and P-w-p reviewed it for me and helped tone down the school criticisms!! Start writing yours now. It takes ages to do. And phone the IPSEA, and all the other agencies, now, so that they have time to help you.
I sent off my original letter, using the IPSEA template. But LEA got back to me immediately and I only had 29 days to get my main letter in. But by the time I recieved their letter, I only had 2 weeks. They caught me on the hop. Thats why I was sitting up to 2am for the last week. Get prepared now, so that the same doesn't happen to you.
You don't need any independant reports yet. Get your diagnoses letter photocopied and any letters that you are going to quote, get them photocopied now. They hopefully you won't find yourself in the mess, I got myself into Grin

Oblomov · 02/04/2012 11:48

taniatirraoro
Agree with Leonie. This book is FAB. step by step guide, if you have an AS/HFA child. My NAS lady gave it to me. Was a godsend, in helping me write my letter.

flowwithit · 02/04/2012 12:33

Oblomov wow thanks!
If u don't mind I will pm you for that later when i get to my pc.
I have to say everyone on here has been a huge support and offered brilliant advice. Don't know what I would have done without it! Will look at that link too.
I am very apprehensive of all the form filling and formalities are worrying me. Really hope you are successful after sitting up till 2! Smile

OP posts:
moosemama · 02/04/2012 13:48

Oblomov, I was exactly the same. Worked on my main application from 9am to 2am every day for a week, then hand delivered it to the council offices and got a receipt for it to make sure it couldn't 'go missing'. [paranoid Moose emoticon]

Its looking like I will be doing much the same all over again to get it quanified and specified now. Hmm

I have looked at that book a few times now, but decided not to buy it when I found out we'd got Statutory Assessment. Does it cover getting the actual content of the statement right or is it all about getting SA and making sure they then issue a statement?

Good luck with your SA request, I really hope your LEA see's sense and decides not to trust the school.

sazale · 02/04/2012 13:59

I applied for SA on the 29th Feb and it went to panel on the 27th March where they agreed to assess. My DD is 13 and only got a diagnosis of mild/moderate autism at the end of Feb. She is academically very capable and managing to be at the better end of average which would be so much higher without all the difficulties that she has accessing the curriculum. In fact shes increased 3 sub levels in Maths since Jan to a 6C despite not being taught in lessons!

we do have the support of the school who have advised me that in their report they explained that she would need great input emotionally/socially/life skills otherwise she would leave school with a string of GCSE's but unable to function effectively in the adult world. She is currently in the student support unit as has too many sensory and other issues to cope in class. The problem is that there are no facilities to teach within the unit so her work is set by the teacher and a LSA supports if needed. It was only meant to be temp for 2 weeks (their maximum allowed for full time) and she's been there since October and they said in their report they can't see her being able to leave the unit within the forseeable future.

Oblomov · 02/04/2012 14:00

Thanks Moose. I PM'd you earlier.
I PM'd leonie too.
I wish you the best in getting the statement wording right. Leonie is working on her draft, I know.
No, the book would be no good for you. It just deals with getting the LEA to assess, int he first place, mainly. well, there might be a tiny bit on appeals, but it mainly focuses on helping you to write , as Leonie suggested, getting all the right 'phrases' in, from the SENCOP and all the 'words' that LEA's take notice of. And it focus on HFS/AS, the child who is doing very well academically, but not so well socially, and getting the LEA to assess on that basis, rather then being 2 years behind academically.

Anyway, thanks for my well wishes. I am in NO doubt AT ALL, that I will be refused. But am already working on my appeal letter as we speak type.

alison222 · 03/04/2012 09:21

flowwithit, DS is 11, we applied at easter in year five and it was approved Sept, we got the statement in Nov.

peekabooby · 04/04/2012 19:56

I am really considering applying for SA, for the same reasons, social communication, emotional and anxiety. I have also been told by ed pysch that we have no chance as he is above nc levels.

tbh I don't feel very confident with my own ability to write things down. I am in awe of those who have fought the system, I am a big wuss, but don't want to let ds down through not getting him the help he needs.

Good Luck flow keeps us updated.

alison222 · 05/04/2012 12:35

Peekabooby DS is above NC levels in all subjects. We still got the statement. The wording leaves something to be desired though and we are working on this at the moment - still in discussions with the LEA.
Good luck.

Eliza22 · 06/04/2012 14:31

Apply. That's my advice.

My ds has asd (HF) and (now) OCD. He's had a statement since age 5. I was discouraged by the ed psych because of his HF status and he was deemed "not that bad". However, the small problem, as they perceived it to be, had massive effects socially and in terms of stress/anxiety very shortly after starting school.

I wonder where we'd be now, had he not had his 1:1 TA and massive support from school.

Apply. I never banged on any desks but I calmly kept on at them, collating reports and evidence and got there in the end.

Good luck

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