Active discussions

Please or to access all these features

Talk
SN children

Here are some suggested organisations that offer expert advice on special needs.

Original poster

So Upset last night

22 replies

anniebear · 04/02/2006 07:36

heard on the news that the vaccine for Phneumococcal Meningitis has been given the go ahead

Of course that is fantastic news and I hope it saves lots of lives and stops babies/children sufering in the way Ellie did

But I am just gutted that they didn't bring it out 4 years ago and Ellie would be ok

I heard the news last night and just cried and cried

Apparently In America they have had the vaccine for 6 years. But it costs £70 so of course it wasn't given here

Hate it when you manage to just plod along each day and maybe start to begin to cope a little then another brick gets thrown at you

Anyway, just ignore me, just wanted to have a vent and a moan

Thanks

OP posts:
maggiems · 04/02/2006 08:14

Anniebear, I thought of you last night because there were twin girls on the news who had both got meningitus as babies and one had lost her legs and nearly lost other limbs also. She was also happy for others but of course was so upset that the vaccine had not been available at the time her girls needed it.
I always like hearing about your girls as my twin boys are the same age and especially liked your website, despite it making me cry like the news last night . Both your girls are gorgeous. Anyway just wanted you to know that you were thought of and sorry you were so upset

eidsvold · 04/02/2006 08:20

annie - it has only just been approved here in Australia. Dd1 was able to have it as she was classified as being at risk due to her heart defect.

What is mumsnet for - if not to vent and moan sometimes..... it is okay to be upset and frustrated.

I have finally come to the conclusion that life is as you say - you think you are doing okay and start to 'cope' and then another brick appears and can knock you for six.

Bethron · 04/02/2006 09:14

This reply has been deleted

Message withdrawn

Cristina7 · 04/02/2006 09:18

Sorry to hear you were upset, Anniebear. It's tough knowing it could have been prevented...

jenk1 · 04/02/2006 09:39

for you anniebear, dont know what else to say

moondog · 04/02/2006 09:44

I'm sorry for your pain Annie.
I very nearly lost a nephew to meningitis.
She is here and you still have her to love and enjoy.
That in itself is a blessing.

XXX

buzylizy · 04/02/2006 09:47

sending a hug

doormat · 04/02/2006 14:13

anniebear sending you loads of hugs
xxx

SorenLorensen · 04/02/2006 14:44

anniebear, it's not right and it's not fair - you vent away.

maddiemostmerry · 04/02/2006 14:58

Sorry to hear AB.

Lillypond · 04/02/2006 18:31

Anniebear, I have some idea how you feel. My DS has a skull deformity that could have been corrected very simply at birth, but wasn't due to lack of information and availability. I'm glad that children are now getting the treatment that my DS should have had, but it hurts so much to know that his opportunity for treatment has gone and that we now just have to get on with it.

Thinking of you. xx

Original poster
anniebear · 04/02/2006 20:05

Thanks everyone

I am ok now, sort of!!!

Thanks again for al your responses

OP posts:
ntt · 04/02/2006 20:14

I thought of you too Anniebear when I saw that report. I'm glad you're feeling better x

getbakainyourjimjams · 04/02/2006 20:20

Ah Anniebear I know how you are feeling kind of from the other side- thimerosal was removed from baby jabs in Oz by the time ds1 had his- has he been Australian he wouldn't have had it (that was money as well- a dollar more for thimerosal free apparently).

I think it is important not to focus too much on what could have been as you will end up going round in circles. I try not to think about what could have been at all now tbh.

Original poster
anniebear · 04/02/2006 21:34

Its not soemthing I do think of lots if I am honest. I suppose it was just seeing it on the news last night got to me a bit

OP posts:
getbakainyourjimjams · 05/02/2006 10:20

I have to stop myself doing the what ifs. xxx

dizzy34 · 05/02/2006 10:37

That must be so hard for you AB, big hugs, thoughts and prayers with you.

kreamkrackers · 05/02/2006 11:24

it must be such a horrible feeling, you have every right to be angry as well as happy. it should have been brought out ages ago and it's wrong it wasn't. also i'm very annoyed that bcg has been taken off the vaccination list, if you can prevent something isn't it better than curing it after the diesaes has been caught? there's a pneummonia vaccination available but like flu that is only available to the "at risk" catogory. my dd is on the "at risk" catogry due to a complex cardiac condition but she might also not be allowed live vaccines due to a poor immune system, we are currently waiting for the results of this. so far she's had all vaccines apart from polio was through injection and also was allowed flu and pneumococcal. i'm desperate for her to have the mmr as she is at the high risk catogory but she might not be allowed it! she will also have the pneummonia vaccine once she's 2. bcg is a live vaccine and although dd might not be allowed this it should be made available to everybody as it is still one of the worlds biggest killers (watched a programme on uktv people about it).

Potty1 · 05/02/2006 12:11

Anniebear - so sorry that this came too late for you and for Ellie

kreamkrackers - not sure if I 'know' you from elsewhere. Do you post on the Heartline message board? If not come join us there are some other parents children with DiGeorge.

kreamkrackers · 05/02/2006 13:53

potty1 - i post on the pregnancy boards and ttc boards a lot. i do want to join heartline but feel so stupid as i don't know the correct names for my dd heart condition. i've just wrote dd's story on this it was wrote at 2.54 on 3rd feb. sorry for hijacking.

FioFio · 05/02/2006 20:19

This reply has been deleted

Message withdrawn

Original poster
anniebear · 05/02/2006 21:12

Arrrh, it is so nice to hear that other people think of you!!!

Thanks

OP posts:
New posts on this thread. Refresh page