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Here are some suggested organisations that offer expert advice on special needs.

Sorry I'm rubbish on here of late

5 replies

insanityscratching · 27/03/2012 12:01

I've been finding everything really tough which is ironic really considering ds is the best he's been in years. The independent assessments opened up old wounds and created a few new ones. Ds has gained a whole host of dx'es including selective mutism and sensory modulation disorder, he's no longer classed as having moderate autism and learning difficulties but instead he has no learning difficulties Grin and severe autism Sad
Annual Review turned into a damp squib Grin met the LIO who lets just say he is considerably smaller than his reputation Wink He was pretty much emasculated as solicitor warned him off "thrashing out" the statement and let them know she was available to take my calls during AR if I needed clarification.
Today is deadline for evidence, LA have made no assessments of ds, ed psych who is named as witness didn't attend AR and hasn't as yet even met ds and school reports that they haven't asked to see him yet either.
Haven't as yet arranged any witness attendance ourselves as solicitor says it won't happen but have fantastic reports and would probably ask ed psych and SALT to attend.
I just want it to be over, I want to enjoy the fact ds is being well supported now and is beginning to thrive. What is really ironic is that now ds is thriving in his school and as a result is easier at home we are apparently entitled to support from social services. An absolute farce when we have been told for thirteen years he didn't meet disabled children criteria. Not sure I can be bothered jumping their hoops now though.
Dd has found school tough lately, mostly because she is very young for her age and friendships are becoming more sophisticated and she hasn't got a clue basically Sad School have been great as expected especially her teacher who is going out of her way to ensure her friendships are nurtured and they survive.
Hope to be a better poster soon though. After all I'll have some space to think soon surely.

OP posts:
bochead · 27/03/2012 13:08

My Mum says we often schedule our own meltdowns/lethargy/weak moments for when there's a lull in the battles for our kids. My favourite quote of hers from my childhood was "I don't have time to have a break down dear" to a patronising cahms bod the week after she had lost her hubbie, mother and best friend. It was true she had my sen and NT sisters to sort, 3 funerals to arrange etc, etc. Classic Cornish art of understatement ala Mum Wink

I think she's right - sometimes you need a bit of freedom to feel "down" or less energetic than normal. It's unreasonable to expect anyone to live their whole life in full alert mode, yet we so often spend years in just that state. Give yourself some credit and a bit of tlc ffs!

insanityscratching · 27/03/2012 13:21

Thanks boc your mum sounds like one hell of a woman Grin.

One more month, that's all and then we should be sorted for ds at least.

OP posts:
EllenJaneisnotmyname · 27/03/2012 13:55

Hi insanity. You are allowed a break, you know. Smile And I've seen you about offering good advice here and there. Hope things pick up for your DD and really glad the school is working out for your DS.

cansu · 27/03/2012 18:34

TBH I have wound down quite a lot since ds was admitted to the school of our choice. I just don't have the energy to spend all my time chasing the LEA. I have recently been chasing the LA for my dd's new statement but with nothing like my old vigour. I think you need a break from it from time to time so don't feel bad about it!

coff33pot · 27/03/2012 20:47

Everyone needs a break insanity you need to spoil yourself a LOT Grin

PS. I love Bocheads Mum Grin

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