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Developmental delays

9 replies

Firawla · 20/03/2012 00:03

Hi
Not really sure if this belongs here or 'behaviour and development' section but just wanted to get some thoughts about my 2 yr old ds and thought people may be more knowledgeable over here.

This is my ds2, who is 2.4. He has very delayed speech, with not more than 10 words he uses and alot of them not pronounced properly eg 'ba' for bye, and half of them sound very similar to each other.
I have had him seen by a slt, just to be referred on not for any proper sessions as we are still waiting for the appointments to come, and also still waiting for the hearing test which is soon

But what i cant help keep worrying about with him is whether its just a speech and language delay or something more to it. He was also a late walker and late in his motor development like crawling and pulling to stand, but not extremely extremely late - crawling and pulling to stand at 1 yr, started walking at 18.5 months but not properly walking until 20 months, ie before that he would fall after however many steps and was not able to stand up again so he had to go back to crawling. I'm not sure if those are considered late or just at the late end of normal, so not important? He now does walk okay even though I thought he wouldnt be able to do it without help (he had a pshyio referal but it did not come through in time anyway) because he was not able to put his feet flat he used to cruise around on tiptoes, but he eventually got it.

Even with eating food he was late, at 7 months he still used to have the tongue thrust and gagging thing, but again after that he was fine and now he eats totally normal

Its just niggling in the back of my mind that with him developing slower in all these areas is there some reason for it.

I have had him seen informally by a couple of different special needs people, in childrens centre environments and the 1st one said his understanding and cognitive skills was all absolutely fine. 2nd one said she could not engage or connect with him at all and could not assertain whether he can understand anything or not, and that he had no concentration span and no ability to play. she basically ranked him right at the bottom of the pyramid thing she had.. the first one was done in a place he was very comfortable with and 2nd in a new environment with all staff and children he did not know, which maybe accounts for the differences but still confusing to be told very conflicting views like this, both by professionals

The 2nd one also refered him to the child development centre, im not exactly sure what that is for maybe to assess him more or just check him out? but there was info missing from referral so that was sent back, and i had to resubmit it so who knows how long that will take before he actually gets the appointment..

I have done the asd chat thing and that came back low and also professional that knows him really well has said its not likely to be asd as his personality does not show any signs, but i can't help think that there is something - but i just dont know what? then at other times i just say to myself maybe it will just be his hearing and once he has that test he might start to talk and then he will be fine.. i just dont know :( its possible i am just a bit neurotic and worry too much, like with the walking he sorted himself out eventually but i am worried so much about the speech that this will cause him to fall so behind his age group. he behaves overall like younger than his age and always has seemed like that, but i dont know if thats just an impression that comes from not being able to talk like others his age and previously not being able to walk and move like others of his age..

sorry this is really long! but any thoughts?? and thanks if anyone replies

OP posts:
IndigoBell · 20/03/2012 08:28

How very worrying for you :(

When you (finally) get seen, I'd ask about dyspraxia.

Id certainly want that tested for with all those late physical milestones.

EllenJaneisnotmyname · 20/03/2012 08:40

That's what I was thinking, too. You can get verbal dyspraxia also which gives problems physically producing words. I'm no expert, and wouldn't want to DX by internet, though. Just because two of us say it's worth reading up on dyspraxia, doesn't mean that's what it is. Smile

Firawla · 20/03/2012 09:39

thanks both of you, its good to atleast have some ideas what it could be, i dont really know about dyspraxia so off to google it

OP posts:
willowthecat · 20/03/2012 10:46

I'm sorry that you are getting such conflicting advice and opinions about your ds - this really is not what you need at a time like this. However if your own honest assessment ( and also taking CHAT into account) is that there may be more to it than a delay that will self resolve then it's probably best to go with the view that you need help now - You need help on how to get your ds communicating more effectively and you need advice on signing or maybe PECS to kick start the process. Make sure you are in the system for an appointment at the child development centre and ask when you can expect to be seen.

latedeveloper · 20/03/2012 14:28

Ask about portage. we missed out as were fobbed off until ds was too old (over 3) but by all accounts it is a good thing. A qualified person comes to your house to help you and your child learn through play. They provide support and information for you too. You can self refer to portage - ask for details at the children centres you go to. DON'T let them tell you portage only see "severe" children - it is not their place to ration access but unfortunately I've heard of that happening.

Perhaps buy this book - it is not for any specific dx - I didn;t read it for ages as i didn't like to think of ds as having special needs Confused Blush: Stanley Greenspan

Firawla · 20/03/2012 14:44

Thanks, have called the child development centre to try & find out more about when he will be seen so hopefully they will get bck to me soon.
The signing & pictures sounds like it could help, so will try to look more into those, i appreciate all the advice & suggestions

OP posts:
Firawla · 20/03/2012 14:50

oh thanks i have heard of the word portage but never really knew what it was, that sounds good.
will have a look at the book, dont know what dh will think if i come with a book about special needs cos i think like you he doesnt want to think of him that way but to me if im honest i think he does. but at times if u mention it u get the reaction of oh they all do everything in their own type dont make a fuss about these things, as if im trying to make him have a problem where there isnt one

OP posts:
latedeveloper · 20/03/2012 22:45

Firawala - denial is common and quite often there really is nothing wrong - the child develops later but does catch uo. but equally sometimes it is really difficult for a child to learn without a lot of input.

keep it light with your dh and be gentle with each other. Often the dads just dont spend so much time in play groups and even stay at home dad mostly (quite rightly) don't go in for the sorts of comparative discussions many mums have all the time about what their little Jack is doing now.

FiveHoursSleep · 28/03/2012 21:09

Hiya. We've already made contact but just thought I'd reply here in case anyone in Hillingdon is looking for advice about the way ST seems to operate in this borough. It's a good borough to have a child with SN's compared to some others but it does take some time for the wheels to start turning and get in the system

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