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I cant take much more.......... sorry for the rant in advance

6 replies

XxAlisonxX · 19/03/2012 20:26

My head feels like is going to explode, i keep breaking out in hives ( im convinced there stress related). All i want is a nice peacefull weekend without me feeling like im banging my head against the wall. sorry it goes a bit like this....

DD1 10yrs ( severe SLI and possible HF ASD) spent the weekend on yet another meltdown, due to her carrying on that she has noone to play with, nowwhere to play or go, everytime she goes outside the local kids do nothing but bully her and then she screams even more.....

DS1 13yrs ( ODD, CD and possible Aspbergers) who will not come out of his bedroom, and looses his rag everytime one of the littles 1, go in the bedroom, then kicked off cause DD1 was screaming the house down, he cant do with the noise. He hates any of them going into his space but DS2 likes to play in his bedroom as well.

Then the dreaded bed time came, DS1 is asked to come down at 8pm so that DS2 can go to bed, this then causes another issue cause DS1 doesnt want to, and then ends up upsetting DS2, DS2 has this thing where he rocks in bed when he is falling/ awakening to/from sleep and this is now starting to do DS1 head in, Im stressing out cause i really dont know how to make any of this better for any of them and im ending up making my self ill over the stress, DS1 has been kicked out of ms school and is currently in a PRU, I cant get any help form any of the services for all i keep getting told is that we dont meet the criteria, and here i am yet again sat here listening to DS1 kicking off at DS2 cause he wants to go to bed, DD1 kicking off at DD2 cause she has gone to bed and wants a differant tv channel on,

OP posts:
saladsandwich · 19/03/2012 22:54

you have all my sympathy been having a tough time of late myself with just the 1 ds... i've taken to caffinated drinks lately to keep me going, hope tomorrow is a better day X

wasuup3000 · 19/03/2012 23:15

It is late so this is short? Have you hear of direct payments? Does your son (ds1) have a statement?

3 of my 4 children have differing needs and on bad days it can feel so hard to cope. You are not alone.

Perhaps try a timetable for bedtimes and routines which is stuck to the fridge so they all know that these are the rules of the house?

Make it clear to the other children that they are not allowed to go into ds1's bedroom perhaps a no entry to and a photo of whoever he doesn't want in there on the door?

Try parent partnership for the school issues also have a look at the IPSEA and contact a family websites?
Have a look out for ASD groups or carer support groups in your local area?

SallyBear · 20/03/2012 08:36

I have 4 kids too, and I know only too well how hard it can be, as DD struggled witha potentially life limiting condition. We live in a 4 bed house. DD deaf, DS1 Aspergers, DS2 shared a room with DS3 who is deaf and severely ASD. We couldn't afford to move, found that DS3's night time wakings were disturbing DS2 and affecting his normally sunny disposition, so we took the plunge and built a loft conversion. The twins are upstairs (DD & DS1) and DS2 & 3 have their own Rooms and can play without killing each other. Happier kids all round. It doesn't stop the night time activities of DS3, but it's contained in a room without disturbing his brother. We were lucky that we could just about afford it. Best £45k spent IMO. We couldn't afford the extra £150k+ on our mortgage to get the same thing.

I agree with the timetable and no entry ideas. Think that I may do something similar here!

XxAlisonxX · 20/03/2012 08:50

DS1 isnt statemented, at the moment he is in a PRU unit cause he was kicked out of mainstream school. I dont get anything like direct payments cause social services dont want to know. Iv have tried the bedtime routine but its easier said than done, I cant just let DS1 have the room to his self due to be being in a 3 bedroom house for both the boys are in 1 bed room and the girls in another. I wish we could have a loft conversion but im in a rented property and we simply can not get enough money together to cover it

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wasuup3000 · 20/03/2012 11:54

We are in a 3 bed to. Can you apply for a statement yourself? Did you ask SS to do a carers assessment?

XxAlisonxX · 20/03/2012 12:28

I have a meeting on friday regarding DS1 and i think the PRU is going to be looking at a statement, cause CHAMS have requested that it is done aswell. I have tried SS and im now getting sick of being told someone will phone me back, iv asked about a carers assessment and aparently we cant have one cause we dont care for an adult, but acording to some woman from SS we had 1 done and dont meet the criteria ( what a load of tosh) I have phoned my local MP today cause im sick of being sent round the houses as to put it. My head is still pounding

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