"I also think you should stop looking 4 the causes of autism leave it to the proffesionals thats what they are their for"... Nicolajc, i disagree with this wholeheartedly. I dont know exactly what a "professional" autism researcher is to begin with. Similarly "professionals" and "experts" are not who i have turned to, to help my son, in fact they have on the whole, been unhelpful, obstreperous (sp) and downright insulting to my attempts to help my child.
I really do think its going to be a parent who discovers the "cause" of autism, and even the means to "recover" from it. There is no political "will" to find out a cause for autism, not yet anyway. There is certainly very little support mirrored in the community, eg social services, educational bodies, etc. Its a struggle and a battle the whole way along. There is an entrenched belief that autism is genetic (despite the fact no gene has been found!) Just like ABA being viewed as voodoo (at least in my part of the world) Autism is still viewed as a "mystery" rather than a puzzle. Our kids are sick because they "have" autism. My child dosent "have" autism, yet doctors still allude to autism as a malady, as a "sickness". Thus, in terms of leaving it to the professionals, well, many "professionals" have attempted to ameliorate the effects of autism and study it, and have even come up with direct correlations between toxic levels and autism. What happens to these "professionals"? Andrew Wakefield was ostracised, castigated, etc. A doctor who used to work for Westminster University in the 80's who was helping autistic children with vitamins had his clinic unceremoniously pulled from under him. There are doctors who you will never know the names of, who have tried within the NHS to help children via biomedical intervention. They have been sued and ridiculed. I know of at least one, and that particular person knows of five others.
I have a DAN doctor (Defeat Autism Now) in the U.S. and i also have a DAN nutritionist in the U.K. Both of these professionals have been ridiculed in a roundabout way by my son's paediatrician (who thinks he knows it all) and my sons GP who knows absolutely nothing about ASD. So, in terms of "professionals" shedding some light on autism, i wouldnt hold my breath.
I do want to find out what caused my son's autism, i want to know very badly. Because when i find out, then maybe i will have some road to take to recovering him. If you get cancer from asbestos, well then you stay away from asbestos in the future. If you are killing your liver from too much alcohol, you should stay away from alcohol. No one can PROVE without a doubt that autism is UNCURABLE. We just dont have the data. We dont have hundreds and thousands of adult autists to base any thing on. where are all the special schools that these adults would have gone to school at? Why are our schools now folding due to pressure from special needs kids?? Something is happening today, causing our kids to develop autism. If I have more children, i CERTAINLY want to know what caused autism in my first child to prevent it happening in another child.
Mostly, it blinds me with tears to know that during the time it took to write this, 2 more children were diagnosed with autism. Two more parents being hurled into a world they didnt choose. Of COURSE we need to know where autism is coming from. Globally its the top priority. Personally, we can work on recovering our kids, but finding the cause deserves all we can give it. Its parents who are left to deal with the aftermath of diagnosis and severe lack of research or even blind studies on autism and non autistic kids makes me believe that it will be a parent who discovers what is really going on. We are at the front line, not the doctors, who really dont give a damn in my estimation.