app brought forward....not by us!!!!

[angeLstillchasingDXpeacock]

Ok quick background...
DS is 8..i have been trying to get someone to listen to me since he was 5.
We have been under the Pead since age 5, finally been seen by OT and SALT in past 6 months, OT since discharged since he is "boarderline" and im STILL waiting for any further app from SALT (he is 2 1/2 years behind with expressive lang)
I know he is ASD...aspergers....whatever they want to call it, he is on the spectrum....i just know it!! (DH brother is aspie too)

At the last Pead app, i recalled ALL the info from SALT and OT since it hadnt filtered through to pead , and i all but demanded to be refered to camhs.

pead said that camhs would only refer to this BSCIP, so it would be better to be refered direct to them anyway.....

BCSIP are a panel of pead/ot/salt/outreach etc who look at case files, and decide what to do with the child.
they met in jan, looked at DS case and decided they wanted outreach to visit him at school......
I had requested that 6 months prior!!! school said they didnt think it was needed at the time (DURRR)
anyway, the panel met again in feb with this info, and i have now recieved a pead app which has been brought forward by a full 2 months!!!!!

getting an app for our pead is like freekin gold dust....so for them to bring it forward.....?????!!!!!!!!!!!

Im being told off by my mother and DH, i have almost 2 weeks to think about this, and all i ever do is think about what MIGHT be.....will it be good...will they actually say "oh yes, we agree he needs to be assessed/looked at by a proff/refered to camhs...."
or is this an app to get rid of us, off the peads books.......to tell us to stop being such a paranoid parent, they cant see anything like what i can, and im just wishing this in DS
(that is , as many of you know and have experienced, how i feel almost every day with other people and school etc)

anyway...sorry this is so long....but i suppose i just need people to tell me im being stupid, stop thinking about it, and tell me off like my mum and DH...
:( hurry up 14th........

When a Paed has been faffing about for the last 3 years without forming a diagnosis, it is time to look elsewhere - so you were totally correct in asking to be referred to someone who can diagnose.

Good luck.

I agree, our faffing paed moved to another area[luckily], forcing the powers that be to refer Dd3 on to CAMHS. She was Dx'ed 10 months later.

The wheels turn very slowly when it comes to Dx'ing ASD, you have to keep at it. Don't give up you are your Ds's advocate.

If he needs a Dx, he needs it before he goes to secondary.

Good luck.

Thanks....I am just so sick of being ignored, and made to feel so bad...

I needalife, I know that the DX needs to be done before secondry, but at the same time i have seen so many people saying it wasnt UNTILL secondry that they finally got listened to and helpped etc.....its just horrible that people treat us this way :(

I will NEVER give up fighting, and i have already joked that if they try to get rid of us, then heads WILL roll!!! hahaha

seriously though, eve the peads secretary knows im a mithering, loud mouthed mother f**r who will never stop pushing hahahaha

Do you keep a diary angeL, I found this got more attention from the proffs than much that I said.

I kept a record of any unusaul/quirky behaviours, what caused them and how I dealt with them.

It showed that is was often sensory issues or change in routine that upsets Dd3 and more importantly it showed that I was consistant, they were no longer able to blame my parenting.

I also told them in writing that seeking a dx was never about her behaviour, it was about her anxiety and inability to cope with some every day situations.

Obviously I don't know your Ds but hope some of this helps.

Also I told my GP only about 12 months ago, that I was never going to give up trying to get Dd3 the help that she needs. He just smiled vaguely and said "I know".

LOL!! i bet the GP's and Peads meet some very determined parents hahaha....
I was at my GP on monday to try to get them to prescribe DS's Melatonin instead of having to keep going back to the pead (GP refuses on the grounds that he doesnt want to take responsability as its unlicenced for use in children grrrr!) and DS threw up in his office hahahahaha :D i was laughing when i got home...not at DS obv...but at the fact the DR was being such as ASS and he got his just deserts hahahaha

I find it hard to keep a diary, every time i try it goes wonky hahaha....i will try again though coz i know it will help.
Thankyou xxxx

I use a diary on the computer Angel, I could just sit down quickly after Dd3 had gone to bed and make notes about the incidents that had happened that day, I did'nt do it every day just when something I considered major or upsetting happened [so every day then] LOL.

Funny about your Ds throwing up in the GP's room.

The horrible HT from Dd3's old school phoned me once and said in a really snotty posh voice "Mrs Ineedalife, Dd3 has just vomitted on our new carpet!!" She was not amused [I was though]. Poor Dd3 was suffereing from separation anxiety at the time. I was glad she was sick on the new sodding carpet not the playground.

hahahaha....always makes it better if they do it somewhere that "deserves" it lol

Hmmm....just a plain word document as a diary....sounds like a plan..! thanks xxx

Have to agree on the diary. I've even had the CP say how it's come in useful. Always worries me that they'll think I'm a bit obsessive. Well they could have a point but I'm not giving up now!

I liked the diary because when i was trying to explain Dd3 to the proffs, they would say, give me an example and my mind would just go blank.

Once i had the diary i could refer to it and give the proff a copy to browse in their own time.

Thanks girls...ill try to stick to writing it all down from now on...its just so hard when its "normal" to us...to realise whats extra and different behaviour sometimes...IYGWIM lol