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Worrying about 3yo DS2 night and day, what to do next?

4 replies

Needahaircutnow · 01/03/2012 10:57

to say I'm worried is an understatement, I just worry all the time. DS2 is 3, 4 soon and at school in September. my concerns about him are below

Behind his peers in everything and always has been, only slightly though.
Demand avoidant, used to be horrendous but has improved but he refuses to do anything he finds challenging so no counting or drawing.
Sensory issues, noise and food mainly.
Bad behaviour, used to have tantrums where he would pass out, this has not happened for a while but he is often rude and whiney.
Focused on details rather than the big picture - in stories, films etc.
Obsesssions, they are quite varied fortunately - pirates, knights, superheroes, but are getting increasingly violent - guns etc. he is never actually violent, just pretend.
Finds adults difficult and often won't speak to them, even those he knows fairly well, like grandparents.
Seems often anxious and sort of frozen looking, especially around transitions.
Literal thinking, things have to be a certain way.
Absence seizure type episodes. To be honest when these started happening I was relieved because it gave me something concrete to investigate. They are improving and are mild. They have got us more medical attention than anything else (we have video) even though they worry me less than all the above!

Initially the HV/GP fobbed us off but we've now had an assessment by a paed and a child development team. They wrote a report which makes him sound like a bit of a nutter, but also categorically says he is not autistic because he has good eye contact and can develop quite a rapport with people if it is on his own terms. it says he had a 'lack of expression' initially but became 'directive' as he got more confidence. They think he has issues with anxiety and we have been referred to CAHMS. That was some months ago and I have n't heard anything.

Preschool have no concerns about him and have said to me that he is 'well within the parameters of normal'. But they are taking my concerns seriously, espeically about his difficulties talking to adults, and have given him a key worker who is like Mr Tumble in female form, so I'm happy with that.

I'm becoming concerned about school and wondering if I should apply for a statement. I'm not even clear if we have an official diagnosis or not. I assume not, but the report was quite negative.

Please help! I'd be really grateful to hear about anybody else who has children with similar issues and what has helped them, espeically practical things you can do at home.

TIA

OP posts:
shoppingbagsundereyes · 05/03/2012 16:39

My ds has totally 'normal' eye contact but has a diagnosis of aspergers. A person doesn't need to fit every single descriptor for aspergers to have it. Your ds sounds very like mine. I would press for a clearer diagnosis

shoppingbagsundereyes · 05/03/2012 16:42

P.s I think the gun and superhero play is very 'normal'. Ds plays pirates, star wars Lego and Harry potter Lego obsessively with lots of pretend shooting. So do his NT friends.
I'm getting a lot out of tony attwood's complete guide to aspergers. It's a huge book but very clear and interesting with suggestions for schools and parents on things like social stories that work brilliantly with my ds.

MrsMagnolia · 05/03/2012 16:44

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LeninGrad · 05/03/2012 16:50

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