LEA have a right to not recognise a condition diagnosed in another Borough?

[Jerbil]

Though I'm hoping we're not going to have too many problems with this I have been forewarned over the last couple of days that despite getting a diagnosis or Meares-Irlen Syndrome/Visual Stress, DS1 may still struggle for help.

Our Borough does not have an SPLD clinic, yet he was referred via an NHS Optician and the GP to another Borough. Because they do not have an SPLD clinic in our area then a few people have warned me our LEA may not support the condition.

Is this true?

It seems no matter what we do to get to the bottom of DS1s issues, someone is always trying oppose whatever is said.

Help / support should be dx independant.

They should identify the difficullties that he displays and provide support for the diffiiculties - not for any particular dx.

That's what to focus on - the actual difficulties.

I do appreciate that. however I have a problem in that the CT disputes he has this problem! They have no other reasoning for his difficulties and lack of progress.
He's so quiet and shy that he would barely tell them if he knew he had a problem. The Opt could tell he had the problem by his body language. CT to my knowledge do not get taught to look for this.

Thanks Imogen.. Yes think we might bet getting this way if things don't change. Problem is he hides so much of his typical behaviour at school, and manages not to rock many boats. If they could only look at the little boy sitting on his own in the playground instead of playing with others!

Glad it's not just ours then. Was quite paranoid about that. Has made me feel like I'm imagining everything. I've even thought he's been soo clever he's managed to dupe the NHS professionals too!!! lol

god how these people make our children feel, they dont understand how frustrated they get.

always remember folks, even when they tell us they have large classes other pupils to think about or have no time etc, remember they have a legal obligation to give all our kids an education, and we have a right to complain if this does not happen.

this is why we must keep on about it. simple changes can make a difference to our kids, and its not costing them anything, simple changes like coloured paper, lower lighting in classrooms, changing white board and computer backgrounds, longer time to finish class work and exams can make subnificant differences and dont take a lot to do and dont cost, keep at them folks it is frustrating for us too but will be worth it one day, they will eventually have to recognise it.

thank god for these forums let us get our rants out and find out valuable info from each other, thanks all great support

imogen wow - all sounds so familiar. I've been fortunate in that we have a CP in CAMHS who is at least tactful. but yes we're being sent on a course to learn how to deal with intense behaviour - his or ours? we've had all the wait and see, but i went on that much that the CP eventually said would we like a 2nd opinion? she has supported us with this which makes us feel better, and that process has now started. He's now had his 2nd ADOS. Going to have a school visit in a couple of weeks then we find out in May what the next verdict is. I think they are only assessing for ASD right now but if that's negative I suspect they'll start assessing for ADHD as that has been mentioned by the other CP but said they wouldn't start assessing till he's 6. He's 6 now.

maggy9 - we do keep on. the problem being others are so lacking in understanding. I even have nearly lost a friend recently (my choice) as they have been so lacking in the tact department, and very critical of me to others. Fact is she could look at her own and discover a few issues she needs to help with but head stuck firmly in the sand! I'd rather be on my side of the fence - at least I'm helping my child!