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Auditory Processing disorder and dyslexia, how will dd cope at school? Also small Head question

6 replies

mummytopebs · 18/02/2012 21:03

DD has just had an unofficial diagnosis of auditory processing disorder and dyslexia. She is struggling at school and myself and her teacher are giving lots of extra support. She is in y2 but is around 18 month to 2 year behind academically, and emotionally and also in some physical aspects. I am really worried that she will really struggle when she goes up to Juniors and she will get bullied for being behind her peers. Any advice, support, suggestions.

Also her head is the same size as a 2-3 year old, the doc said this could be due to some scarring on her brain. Anyone any experience of this?

Thanks

OP posts:
dolfrog · 19/02/2012 04:24

Auditory Processing Disorder (APD) is a listening disability, or about having problems process what you hear. There a range of issues which can cause auditory processing disorders which is why the assessment and diagnostic process consists of a battery of tests. And each individual who has a diagnosis of APD will have different auditory processing issues, different severity of problems, and different alternative compensating skills and abilities. Can make life difficult and interesting when you are part of a family who all have APD.

APD is one of the underlying cognitive causes of developmental dyslexia. Those who have APD have problems identifying or processing the gaps between sounds, especially the gaps between sounds that can make up a word, or the gaps between words in rapid speech. This make learning to say new words difficult as we can not sound them out phonetically, we have to learn the whole sound of a new word. So When we learn to read we can only match the whole sound of a word to the whole graphic representation of the word. So we can not use phonics. We need an alternative such as whole word or even a kineasthetic approach to the teaching of reading. This a life long issue, I still have problems with new words, and APD can have problems with new forms of vocabulary, say when going to college, university or when starting a new job or new activity.

APDs who may be good at sport may have problems with team games such as soccer as we can have problems understanding the on field communications during a game from a coach or team mates, but sports such as athletics can more beneficial.

Those who have APD tend to have to approach or understand a topic from different perspective to understand it, especially those who are or become Visual spatial learners and think in pictures, we need to see the whole picture, and are not very good with a step by step approach to learning. So yes it takes longer but eventually we tend to have a better in depth knowledge of a subject or topic, than most others who grasped the basics quite quickly.

Bullying can be a problem, those who have APD need to be understood and be supported by their peers, it is a life long issue. We are not very good at self advocacy, and there will always be others who are better verbal advocates and we always loose a a debate no mater how good our case, because in a debate we have problems processing what is being said, the same applies to online chat rooms.

You might find the UK APD and APDUK links lists provides some more information. The teachers and support teams, etc they may find the CiteULike research paper sharing Group Audiology and Auditory Processing Disorder library currently 480 articles provides a great deal of research based information.

All of my family have a clinical diagnosis of APD, 3 DSs my DW, and me.

IndigoBell · 19/02/2012 08:48

Besides 'over learning' (ie extra teaching of phonics) what are you and school doing?

Here are the things I've tried over the last 2 years: www.dyslexiaadvice.co.uk/

Most of them have worked, and I'm gradually getting there. But it'll probably take 3 years of daily therapy to really 'get there'

Overlearning has not worked at all, and has been the thing I regret wasting time on.

On the plus side, I can say that there has been absolutely no bullying of my DD in juniors.

IndigoBell · 19/02/2012 08:49

Also my DD didn't struggle anymore in the juniors than in the infants. I was really worried about this. But work was provided at her level in both the infants and the juniors.

nothinginthefridge · 19/02/2012 17:30

None of the reports that I have for my DS2 mention that he has APD.

However, the latest speech and language report that I have, states that they need work to "reduce auditory processing memory demands" and "to support auditory memory and processing through visual information, memory aids, plans and checklists".

I notice that the OP also has an 'informal diagnosis'.

Is it worth both OP and myself getting a formal diagnosis of APD for DC? Will this help? Where do we go to get this diagnosis?

Thanks in advance.

mummytopebs · 19/02/2012 22:14

Thanks for the replies very informative as always.

DD teacher does not know the unofficial diagnosis yet as dd had her development check from the development paed in the hols. We are doing a bit of extra work with her but not bombarding, only about 20 mins couple of times a week. Her teacher has bought her some different books to read and some spelling games that she thought may help. She has also made her a special work book to try and help dd with the blends of words, as she struggles with these. She has also bought her an aid to help her when reading it is card that only allows her to see one word at a time, and it has red colouring over it so the words look red.

Nothinginthefridge I am hoping to get a diagnosis at some point they are sending her for some special hearing tests.

Anybody any thoughts on the small head? I have measured her head circumference again today and it is the same size as her 2 year old sister.

OP posts:
dolfrog · 20/02/2012 17:33

nothinginthefridge

"However, the latest speech and language report that I have, states that they need work to "reduce auditory processing memory demands" and "to support auditory memory and processing through visual information, memory aids, plans and checklists"."

Your story really exposes the lack of qualifications UK speech and language professionals have regarding a topic which should be one of their key areas of knowledge. I had to research APD from USA sources back in 1999 for very similar reasons, and things do not seem to have improved very much generally. Have a look at CiteULike Group: Speech and Language Pathology - library 342 articles and the Wikipedia Speech and language pathology article (especially the National approaches to speech and language pathology section and US requirements)

Back to APD. APD is a life long disability for which there is no cure, and a full diagnosis will highlight the areas of deficit you may not as yet be aware of or not realise the depth of severity of the problem. I know that this was the case when I was diagnosed back in 2003. Still learning about APD, and how it affects me, pity no one knew about it when i was at school, would have helped select my what are now called GCSE options, and A'level choices, which lead on ot career options. So yes a diagnosis is veruy important as it informs you of the limitations the disability imposes on you while at the same time you can begin to understand how you work around these problems, and develop the alternative skills and abilities and make use of these abilities which others tend not to need or have. It also helps others understand your communication issues and how they can best help, as we will need life long support, especially from family and friends.
So I wish I was diagnosed at 6 years of age and not 49.
APD has only been officially, Medical Research Council, recognised in the UK since 2004, so it is very new in comparison to other related issues. Hopefully there will be more regional APD assessment centres in the near future. More information in the UK APD links list

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