Any good advice for applying for mobility component?

[mamadadawahwah]

I know that in filling out my son's application for the mobility, that i will have to use phrases and key words "recognised" by the DLA.

Can anyone impart their experience to me as to what to say, or how to describe typical ASD type mobility problems? My son has low muscle tone, and is a "bolter", will run away at first chance and has NO sense of danger and trips constantly.

many thanks

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Thanks toby. Just made the mistake of going to the health food store with my little guy. He got down on the floor, put his fingers through the man's letter box and a customer came in and could have easily taken his finger off.

then he swiped all the tablets off of the countertop leaving the poor shopkeeper totally flustered and me ready to scream.

thanks for your response.

I think , from what I remember, there is some fairly good pointers on the Downs Syndrome Assoc website. Amelia has DS, low muscle tone, no awareness of danger, reduced communication...she qualified for mobility last November.

I'll see if I can find it for you.

look here
you can download a free doc. "benefits of DLA 3-8" and it gives you advice on both the care component and mobility.

It may come up with password needed just click on OK until the doc opens!

HTH, might give you a few ideas.

good luck, i am still working thro dd2 forms, possible ASD, also a bolter and low muscle tone). she is 3.5yrs old. have put down what makes her run in some instances (seeing someone with balloons, the sea, a loud noise, just bolting), also put that she exhaust easily, she is also clumsey and falls often, wont hold hands and has to be restrained at all times (usually i have one hand on the back of her coat, or i get her to hold the buggy and place my hand over hers), falls over when standing still, lacks spcial awarnesswalks into stationary objects. cannot move herself around safely. she has a higher pain threshold and doesnt notice if she injures herself so requires constant suopervision when moving about.

any of that any help?

Misdee, i thought my son was the only one like that (holding by the back of the coat) - all his coats are stretched out of shape by my pulling, or rather his pulling!

Its so hard!!

thanks for all the really great tips people.

some kind soul pointed out to me that coats with buttons rather than zips are better if u need to keep hold of them that way.