Amazing video all service providers should see.

[keepingupwiththejoneses]

I was shown by a friend. It had me crying. It is so true.

so much of it is so true.

lots of things - some little, some big, some absolutely humungous - which all add up to 'today'

I rememebr going to an audiology appointment for dd1. we had waited for 10 months for the specialist referral.

it was 5 days after I had dd2. by c section.

the doctor got annoyed with me because I couldn't sit and restrain dd1 (then a large 2.6 year old) on my lap when she struggled, due to my section wound.

I cried. dd2 cried. dd1 didn't get her ears checked properly.

and I felt like a failure.

looking back now (dd2 is 5 later this week), I can only think what utter madness it was to even attempt it.

but what choice did I have?

Thanks for that link keeping.

I am currently taking part in a project about the day to day impact of having a disabled child on family life. This will focus my mind and help me think of the small things that have a huge impact on just getting through the day.

Very moving and so true

Just cried thorugh this as well. It is of course all true.

Tears for me too.

Your welcome bigbluebus. There is so much I can relate to now, with ds3 being 5, and more I am convinced I will relate to in the not so distant future. Funny thing is this was sent to me by a 'professional' of sorts, she is a parent carer advocate at a local charity. There are some good ones out there although trying to find them is like trying to find a needle in a haystack.
silverfrog I remember taking ds2 for him ADHD review with the paed, ds3 hadn't slept in 2 weeks and I was a walking zombie, I must have been mad. Pead asked me if there was anything else she could help with and I said yes could you please help me get ds3 to sleep, she turned to her computer asked his name and gave me a prescription for melatonin after seeing he was also on the clinic books!
Audiologist do seem to be the worst. DS3 has had 2 hearing tests, first one was horrendous, he screamed all the way through it and the doc just looked at me and said 'you will just have to deal with him'. Second one was good though, let him sit in his major with a bag of crisps and waited for the inbetween bits to do the sounds

Brill !

Tears from me too.

A real hanky job that one. I need to forward it to the paediatrician that we have for all 3 DS. Anything that could get her to think about who she is talking to.
I do remember the DSs paediatric gastroenterologist telling me that I was brilliant and deserved a medal. He said that about a year ago - but I still remember it, particularly when I've spent hours in the kitchen baking all the things they need and am left with the hugest pile of washing up you've ever seen (like this afternoon ) . That 1 comment will keep me going for years.

DS3's gastro was the opposite, he turned round to me before I had even sit down and 'I will tell you right now that I don't believe any of this stuff about a connection between autism and gastro problems so don't expect me to take the autism into account as it means nothing to me' lovely man, not!

I wondered why all the tears and then watched.... and cried my eyes out. Thanks keeping

It's so powerful because it's so simple.