Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Just got back from the GP and he is fairly certain that DS is dyspraxic...

19 replies

OracleInaCoracle · 13/02/2012 10:36

which, tbh, I expected. he was very nice, and said he was dyspraxic himself. but some of DS's obsessive behaviours and paranoia's needing watching (esp with family history of mental illness and ED's) so he has been referred to the family team. what do I expect now? anyone want to hold my hand and tell me its not a big deal (I know its not, and this is fairly minor, but Im a bit scared and feel guilty)

OP posts:
OracleInaCoracle · 13/02/2012 11:51

bump

OP posts:
SallyBear · 13/02/2012 11:55

You probably feel a bit mixed up about it. Relieved that you are not going mad with your worries for him, and terribly sad as he is not a "normal developing child". Give yourself some time to think about it and then when you are ready start on the referral path. I have been there twice. Smile

OracleInaCoracle · 13/02/2012 11:59

I started crying in the doctors office. I was so depressed when he was younger and dont remember much at all about his formative years. I couldnt remember when he started walking/crawling/sitting up/grabbing things. and now he is nearly 7 and its as if a lightbulb has gone on. these little quirks of his arent just Noahism's. they could signify something else. why didnt I notice earlier? what kind of mother does that make me?

OP posts:
EllenJaneisnotmyname · 13/02/2012 12:03

Don't forget that is hasn't actually changed him, he's still your lovely boy. Hopefully this will open doors to support for you both. What's the family team? Is it like camhs? Are you getting any OT for him?

Perfectly normal to feel a bit shit and to grieve but don't feel guilty, it's no-ones fault, certainly not yours. And you are allowed to be upset.

EllenJaneisnotmyname · 13/02/2012 12:06

Cross posted. Your depression didn't cause his problems and 7 isn't that old to be DXed, especially for things like dyspraxia or AS. Don't beat yourself up. Concentrate on moving forwards. ((((hugs))))

SallyBear · 13/02/2012 12:08

Sweetie. I was the same with my DS1. Nursery suggested that his deep love of plastic reptiles etc was a bit Aspergers like, and his overdeveloped use of language etc. I was devastated and chose to ignore it. He was given a Dx of Aspergers at 8. I wish that I had listened, but I was in denial. DS3 is Deaf and Autistic. I realised at 10mos that he wasn't developing properly and took him to see the Paed then. She observed him and finally Dx him as ASD at 2.5yrs. Follow it up when you are ready, and then you can get the proper help for him at school and home. ((hugs))

OracleInaCoracle · 13/02/2012 12:10

yes, I think so. we are getting a referral to an OT alongside assessment via his school. it all seems to be happening at once. I knew his handwriting was bad, but put that down to him being in a hurry. ditto his fine motor skills. he doesnt ride a bike because he doesnt like it (but he cant pedal) and his speech is a funny one. he has an excellent vocabulary, but his word formation is very poor. but I understand him and when he says cerpent instead of percent, its cute. but now its all adding up.

he gets very anxious about things. we have to check that doors are locked and everything is turned off before leaving the house. if the alarm goes off he becomes hysterical and is a nervous wreck for days. he cant have a clock in his bedroom.

OP posts:
auntevil · 13/02/2012 14:49

Make sure that SALT and OT are involved. Don't get fobbed off and taken off lists - I made those mistakes - and it takes ages to get back on them.

OracleInaCoracle · 13/02/2012 16:04

Thanks, duly noted.

I was actually the one who raised dyspraxia with his teacher. she had said that she was concerned about his fine motor skills, his speech and his immaturity, I did a spot of reading and came up with this.

so, I dont know why I have reacted like this to the doctor agreeing that it looks likely.

OP posts:
outofbodyexperience · 13/02/2012 16:52

because you are entirely normal. Smile

take a couple of days and be kind to yourself, then take a deep breath and get stuck into what's next. waiting lists for ot etc are likely to be reasonably long, but there are lots of things you can be doing in the meantime. lots of stuff on the dyspraxia foundation website etc, and then when the appointments start coming in you won't feel lost. what handwriting interventions are they doing at school? look on here for mrz's great list of fine motor stuff and try and incorporate some of it. (the ot will do the same)

he's still the same boy. you are exactly the same mum. you are just moving into a new place where some other people can give you both some support to help him reach his potential. Smile

wine, tea and choc are all great ways to get through the first days of dx. as is locking yourself in the bathroom and bawling. but chin up, it just proves that your instincts were right. and this is pretty much average for dx, so you haven't been at all neglectful. get rid of that thought immediately.

deep breath x

OracleInaCoracle · 13/02/2012 17:00

he does these sheets with shapes on, Im not sure what they are called but he has to follow the pattern around. the problem is, he doesnt want to (he has lost a lot of confidence) and I dont want to push him too hard. he had a spelling test last week though, he knew every word and when he spelt it orally, it was perfect. when he tried to write it down it was illegible.

we have contacted the local dyspraxia foundation for advice and I have downloaded a few books about it. but I feel utterly wretched. he is still wonderful, he still makes me laugh, and he is still v clever. but he will find things harder, and I dont want him to.

OP posts:
EllenJaneisnotmyname · 13/02/2012 17:13

I have mrz's notes on my phone, they're very long but so great they were worth copying. I'll did them out and repost them here.

EllenJaneisnotmyname · 13/02/2012 17:16

Fine Motor Skills
Things to remember:
Upright working surfaces promote fine motor skills. Examples of these are: vertical
chalkboards; easels for painting; flannel boards; lite bright; magnet boards (or
fridge); windows and mirrors; white boards, etc. Children can also make sticker
pictures; do rubber ink-stamping; use reuseable stickers to make pictures; complete
puzzles with thick knobs; use magna-doodle and etch-a-sketch as well. The benefits
for these include: having the child's wrist positioned to develop good thumb
movements; they help develop good fine motor muscles; the child is using the arm
and shoulder muscles.
Fine Motor Activities
Moulding and rolling play dough into balls - using the palms of the
hands facing each other and with fingers curled slightly towards the palm.
Rolling play dough into tiny balls (peas) using only the finger tips.
Using pegs or toothpicks to make designs in play dough.
Cutting play dough with a plastic knife or with a pizza wheel by holding
the implement in a diagonal volar grasp.
Tearing newspaper into strips and then crumpling them into balls. Use
to stuff scarecrow or other art creation.
Scrunching up 1 sheet of newspaper in one hand. This is a super
strength builder.
Using a plant sprayer to spray plants, (indoors, outdoors) to spray snow
(mix food colouring with water so that the snow can be painted), or melt
"monsters". (Draw monster pictures with markers and the colours will run
when sprayed.)
Primary
Picking up objects using large tweezers such as those found in the
"Bedbugs" game. This can be adapted by picking up Cheerios, small cubes,
small marshmallows, pennies, etc., in counting games.
Shaking dice by cupping the hands together, forming an empty air space
between the palms.
Using small-sized screwdrivers like those found in an erector set.
Lacing and sewing activities such as stringing beads, Cheerios,
macaroni, etc.
Using eye droppers to "pick up" coloured water for colour mixing or
to make artistic designs on paper.
Rolling small balls out of tissue paper, then gluing the balls onto
construction paper to form pictures or designs.
Turning over cards, coins, checkers, or buttons, without bringing them to
the edge of the table.
Making pictures using stickers or self-sticking paper reinforcements.
Playing games with the "puppet fingers" -the thumb, index, and middle
fingers. At circle time have each child's puppet fingers tell about what
happened over the weekend, or use them in songs and finger plays.
Place a variety of forms (eg. blocks, felt, paper, string, yarn, cereal,
cotton) on outlines
Match shapes, colour, or pictures to a page and paste them within the
outlines
Primary
Self-Care Skills
Buttoning
Lacing
Tying
Fastening Snaps
Zipping
Carrying
Using a screwdriver
Locking and unlocking a door
Winding a clock
Opening and closing jars
Rolling out dough or other simple cooking activities
Washing plastic dishes
Primary
Sweeping the floor
Dressing
Scissor Activities
When scissors are held correctly, and when they fit a child's hand well, cutting
activities will exercise the very same muscles which are needed to manipulate a pencil
in a mature tripod grasp. The correct scissor position is with the thumb and middle
finger in the handles of the scissors, the index finger on the outside of the handle to
stabilize, with fingers four and five curled into the palm.
Cutting junk mail, particularly the kind of paper used in magazine
subscription cards.
Making fringe on the edge of a piece of construction paper.
Cutting play dough or clay with scissors.
Cutting straws or shredded paper.
Cutting
Use a thick black line to guide cutting the following:
A fringe from a piece of paper
Cut off corners of a piece of paper
Cut along curved lines
Cut lines with a variety of angles
Primary
Cut figures with curves and angles
Sensory Activities
The following activities ought to be done frequently to increase postural muscle
strength and endurance. These activities also strengthen the child's awareness of
his/her hands.
Wheelbarrow walking, crab walking
Clapping games (loud/quiet, on knees together, etc.)
Catching (clapping) bubbles between hands
Pulling off pieces of thera-putty with individual fingers and thumb
Drawing in a tactile medium such as wet sand, salt, rice, or "goop".
Make "goop" by adding water to cornstarch until you have a mixture similar
in consistency to toothpaste. The "drag" of this mixture provides feedback to
the muscle and joint receptors, thus facilitating visual motor control.
Picking out small objects like pegs, beads, coins, etc., from a tray of salt,
sand, rice, or putty. Try it with eyes closed too. This helps develop sensory
awareness in the hands.
Midline Crossing
Establishment of hand dominance is still developing at this point. The following
activities will facilitate midline crossing:
Encourage reaching across the body for materials with each hand. It
may be necessary to engage the other hand in an activity to prevent
switching hands at midline.
Primary
Refrain specifically from discouraging a child from using the left hand
for any activity. Allow for the natural development of hand dominance by
presenting activities at midline, and allowing the child to choose freely.
Start making the child aware of the left and right sides of his body
through spontaneous comments like, "kick the ball with your right leg." Play
imitation posture games like "Simon Says" with across the body movements.
When painting at easel, encourage the child to paint a continuous line
across the entire paper- also from diagonal to diagonal.

I also have a busy finger box basically one of those plastic fold out workboxes for craft with lots of compartments

  1. Pegs ?
You need pegs of different sizes, clothes pegs, small bulldog clips, stationery clips etc. Get the children to use one hand only at a time. I usually get them to peg about 10 pegs of different sizes onto the sides of a gift bag. They might put them on with their left hand and take them off with their right. They can also try squeezing the pegs between the first finger and thumb (on each hand) then the middle finger and thumb and so on.
  1. Elastic bands ?
Elastic gymnastics! ? Start by putting 2 elastic bands (the same size) around the thumb, first and middle fingers, ask the child to open and close the fingers. Then add another 2 elastic bands and so on. The more you have on, the harder it is to move your fingers. These exercises help to develop the muscles which make the web space when writing.
  1. Beads ?
Get beads of different sizes and thread. Ask the children to thread some beads onto their string. The smaller the hole obviously the harder it is to thread. Develops hand/eye coordination.
  1. Ball bearings and tweezers ?
Put the ball bearings in one little box and ask the child to try and pick one ball bearing up at a time with the tweezers and place in a second small box. If this is too tricky try using Hama beads and tweezers.
  1. Floam / Playdough ?
These products are great for squeezing and rolling which provides necessary sensory feedback and helps to develop hand strength. Ask the children to squeeze the dough and roll it with the palm of their hand.
  1. Doodle board ?
The Doodleboard is just a way of children practising handwriting patterns or letters without having to commit them to paper. Provide some patterns and shapes to copy.
  1. Gummed Shapes ?
Give the children a sheet of plain paper and ask them to make patterns or pictures with the gummed shapes. Just picking up on shape at a time, licking it and then sticking it down all help to develop hand/eye coordination and the pincer grip.
  1. Hama Beads ?
Hama beads are good for pincer grip and hand/eye coordination. The children have patterned sheets to copy and peg boards to put them on.
  1. Lacing cards ?
Also good for hand/eye coordination. Just give each child one card to lace.
  1. Bean bags ?
    Give a child 4-5 bean bags and place a container about 3 feet infront of them. Ask the child to try and get as many beanbags in the container as possible. (Hand/eye coordination)

  2. Chalk and blackboard ?
    If you can, try and wedge the blackboard between two tables and provide the child with a piece of chalk in each hand. Ask them to draw the same pattern with both hands at the same time on both sides of the board. This helps develop bilateral movement.
    Allow the children to draw patterns, shapes and letter shapes on the blackboard. The chalk gives sensory feedback and sound simultaneously.

  3. Stencils ?
    Children can use the stencils to make a picture. Helps develop pencil control and special awareness among other things.

  4. Feathers ?
    Ask the children to try and balance a feather on different parts of their body. This helps to develop balance and coordination.

  5. Handhugger pens ?
    Hand hugger pens are the triangular shaped pens. These help the children to establish a better pencil grip.

  6. Tissue paper strips ?
    Place the child?s palm (at the wrist) on the end of a strip of tissue paper. Ask them to only use their middle finger to get the paper to scrunch up under their hand.
    Repeat, but this time place the side of the child?s hand on one end of the tissue strip and ask them to only use their thumb to scrunch up the paper and bring it under their hand.
    These activities really help to develop the hand arch, web space and muscle tone of the hand.

  7. Stickers ?
    Children love stickers. Just peeling them off provides an opportunity to develop fine motor skills and hand/eye coordination.

  8. Peg boards ?
    These can be peg boards where the child has to place pegs in the holes, maybe copying patterns.
    They can be the boards with plastic pegs already on where they have to stretch elastic bands between them to make patterns.

EllenJaneisnotmyname · 13/02/2012 17:20

mrz is a teacher from the primary ed board who works in the LA where Madelaine Portwood works. Don't be overwhelmed by the info, just find something your DS might enjoy. Smile

OracleInaCoracle · 13/02/2012 17:24

wow, thank you so much! we do some of those already (stickers, playdough, pegs) but I will go through some more bits tomorrow.

OP posts:
EllenJaneisnotmyname · 13/02/2012 17:38

She's a marvel, that mrz!

auntevil · 13/02/2012 21:58

I have a copy of that list from mrz too - wonder if she knows how many copies of that are doing the rounds Grin

Ixia · 14/02/2012 13:01

DD benefited hugely from Mrz' list. We were waiting for a diagnosis of dyspraxia,turns out she's hypermobile, but we did lots of activities from that list and it really helped - she is even writing really well now.
DD also has speech therapy as she had some difficulty with the muscles in her face/mouth, Mrz had some really good suggestions for that too - Blowing ping pong balls with a straw etc

OracleInaCoracle · 17/02/2012 18:11

Ive taken a book out of the library today and have been practising with a fork. he is trying so hard, bless him.

OP posts:
New posts on this thread. Refresh page