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SN children

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Original poster

Mums of children with CP

19 replies

jenk1 · 23/01/2006 22:48

DD had an appointment with the dietician at the hospital this morning.

"how often does she move her bowels"?

"Maybe 2/3 times a week"?

"Thats not enough are you giving her enough fibre"?

"She has CP"?

she totally disregarded what we said and gave me a leaflet on how to feed your child fibre, i said to her "all of those things we do give dd to eat-she has CP in her left hand side and its affecting her bowels-the paed said so"

Right well just get her to eat some more wholemeal bread then".....

[head banging emotion]

What i wanted to ask was have you found a way or medication which helps your child, we have tried lactulose,senokat and are now on Movicol but she wont drink it, she wont drink any juice at all, she prefers water and movicol has a lemon flavour and she can taste it and wont have it at any cost.

TIA

OP posts:

misdee · 23/01/2006 22:49

peter says movical is foul.

chonky · 23/01/2006 22:55

Have you tried Paediasure with Fibre? It's a complete food as a milkshake, but has a substantial amount of fibre added. It worked for my dd. Comes in several flavours, she guzzles the vanilla one L)

chonky · 23/01/2006 22:55

I meant

dizzy34 · 23/01/2006 23:00

lactolose never worked for ds. We use dulcolax supposotries now, they can be bought over the counter in chemists and they tend to work within 5 mins, but its not healthy to use long term and if your paed is happy i would check what the dietician said with him.

buzylizy · 23/01/2006 23:16

Oh god I know this problem been living it for 10 years!!
My dd has lactulose and senna daily. We also use "trigger" foods. Orange squash. Rhubarb crumble which she loves(works too well) spaggetti(tinned) these things really help. also try to see your gp or nurse as you can get stuff on prescription so you don't have to pay.

buzylizy · 24/01/2006 15:21

bump

Original poster

jenk1 · 24/01/2006 20:14

will have to try rhubarb, its getting desperate now, she hasnt been for a week and if she doesnt go tomorrow im taking her to A and E and asking them to do an enema for her, we have been giving her sennokat and lactulose but still nothing, porr thing

OP posts:

buzylizy · 24/01/2006 22:11

In the past this has happened with my dd. I really think the only answer is to get some pesarys.do you give seena everyday?

chonky · 24/01/2006 22:16

Jenk1 - in our area we have a team of community paediatric nurses who advise on constipation. I was wondering whether there might be the equivalent near to you? Our nurse is wonderful, as well as helping with the constipation issues she's been a great support to us.
Maybe worth asking your GP?

Original poster

jenk1 · 24/01/2006 22:28

will ask about that chonky thanks, yes buzylizy we have been giving her senno every day and today also gave her lactulose but still nothing, we have given up the movicol as she just refuses to drink it

OP posts:

buzylizy · 24/01/2006 22:48

I remeber when we went on holiday when dd was small she didn't go for a week(pre senna0 we got a purge from the chemist.
I think chonky is so right you really need the help of a nurse.

Original poster

jenk1 · 25/01/2006 10:06

DH took her to A and E last night as she was screaming in pain, they gave her a pessary and it worked, they have given us a couple as well, can you get them on prescription?

OP posts:

buzylizy · 25/01/2006 11:51

glad you got it sorted. I would advise going to the doctor/nurse though to see if you can get something that will stop it buiding up. is your dd able to take herself to the loo. Mine isn't so we have to put her on a special seat. we then leave her there for quite a while as it takes a long time to go.

Potty1 · 25/01/2006 12:14

Jenk - no experience of CP but yes you can get the pessarys on prescription. Also Movicol paed is available in 'Plain', is that the one you have?. Dd says it doesn't taste of anything (she hates anything fruit flavoured). We give it in as little water as possible and follow it down with a big glass of water.

Glad it's sorted for now.

Original poster

jenk1 · 25/01/2006 17:24

No she cant go to the toilet herself, she doesnt even acknowledge when she has a full nappy because as well as having CP she has Development Delay, shes about 10months in her development.

I didnt know there was a plain movicol i shall ask my GP about that and also ask for info re paediatric nurse etc, but we also use lactulose and senna daily and that doesnt seem to be working.

OP posts:

buzylizy · 25/01/2006 18:14

what is movical. I haven't heard of it?

Original poster

jenk1 · 25/01/2006 19:57

its a powder that you dissolve in water to help with constipation, but dd wont entertain it at any rate

OP posts:

SweetPotato · 25/01/2006 22:31

Sorry if this sounds obvious, but have you tried massaging her tummy? My dd has similar problems but often massaging and then standing her up really helps. Plus a hefty dose of Califig.

buzylizy · 25/01/2006 22:41

weight bearing heilps my dd she has a stander and when she was younger(too big for home now..the stander not dd lol) used to find just standing helped thanks for reminding me swwet potato

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