i could do with your opinions here

[saladsandwich]

ds (3) has been making quite abit of progress again, i have noticed he is sitting beside children and playing alongside them, i havent really seen him interact with other children, maybe once or twice, the only game he will play is chasing.

he is still not playing with figure's, he does lay with his cars and will talk with them, i think hes recreating tv programmes with them but i can't be 100% i've heard him with his die cat disney cars saying "sound the octo alert" :o

i know i probably sound paranoid/over anxious but i've had that gut feeling for so long with ds definitely before 12months, worried so much about him at times, the thing is no one seems to want to tell me anything, ds is 12months behind but no ones said what this means? the progress ds makes although im happy he is doing wonderful i'm not sure if he is remaining 12months behind even with improvements? my thoughts where that he was somewhere on the spectrum but i keep doubting myself.

ds's speech is peculiar, im from yorkshire and his accent is southern? he repeats from films and when he does speak i can't describe it but the way he constructs sentences just doesn't sound right because he will copy what i've said and just add words in, hard to explain...

i need opinions i feel like im going mad especialy with his speech, he does the lining up of things and likes things to be perfect, no broken food ect, his reactions to pain are OTT he use to be the opposite, could bang his own head against a wall and not flinch, hes OTT with loud noises, petrifed of big round things (gym balls, hahoos, ect) OTT if kids take things from him he is inconsolable. stops breathing when crying, picks at himself, toes, fingers and nose, theres loads more but this post is getting long!.

sorry its long just having a hard week x

Can you speak to gp and get referred to a developmental neurologist ?

I would certainly be seeking a referral to a developmental pead via GP. Go with your gut feelings when it comes to your kids, it's rarely wrong ime

heis seeing a development paed but he just keeps saying hes delayed in social skills, language skills, self help skills and play skills... and fine motor skills but he just wont say anything else, hes said its not autism but i just cant shake that feeling... health visitor is coming out soon, i think i need to speak to her about that paed, he yawns through the appointment and laughed when i said how difficult his behaviour can be soo i end up doubting myself.

ask to change paed - he sounds awful

do you get portage?

ask to see a different pead.

You need to see a community paed rather than a clinical paed. Our clinical paed laughs and yawns at us too, but community paed is assessing ds for Asd.

Hi, I agree on trying to get a second opinion - easier said than done I know! Have you tried ringing the National Autistic Society helpline and asking for their advice? A woman I know had been languishing on the very long waiting list for her son to be assessed and she rang the NAS and somehow they intervened and wrote a letter for her or something and as if by magic, an appointment came up very quickly.
I didn't feel confident to contact them until we had our dx, and I realise now that they could have been helpful pre-diagnosis even though I just suspected ASD and had no professionals agreeing at the time.
Not saying I think it is ASD by the way, but if you have concerns over this they may be able to help?

thanks for the replies

just had a truly awful day wth ds its days like these that make me know something is not right... his speech coming along was suppose to improve his social skills, today a lady sat beside him (not close) and he said "mummy lady sat on the chair, don't want her sat next to me" - from a child who can hardly put words together too i actually think in my heart he has maybe mild asd? it is in the family and tbh since coming on here i think i probably fit on the spectrum somewhere, i was very much like my ds but we had different quirky behaviour

i think i may ring the health visitor monday or the GP see if i can have him refered to a place my friends child goes, its an assessment centre, not sure how to get refered though??? if anyone knows???

Ask your GP or Health Visitor to refer to a Speech & Language Therapist. There is probably a waiting list though! GP should be able to refer your child to the Assessment Centre. You could ring the Assessment Centre and ask them direct how they receive their Referrals. ICAN communication charity have a parent's helpline who may be able to support you in the meantime.