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Videofluoroscopy finally have appointment through - now I am panicking about it!

26 replies

hazeyjane · 01/02/2012 11:37

Ds has finally got his videofluoroscopy booked, after 6 months of it being marked urgent, being sent to the hospital and being mysteriously cancelled. In all the faff of trying to get it sorted i haven't really thought about the actual procedure. Can anyone give me some heads-up on what will happen, and also any tips on ways to make it better,I know that sometimes, depending on how the child eats it can be inconclusive.

Ds (19 months) is going through an amazingly fussy phase food wise. His paed thinks he is possibly aspirating saliva, so how will they test for that? He is also very clingy under usual circumstances, but since his some horrendous blood tests and a hospital stay at Christmas, he is particularly bad in medical environments, so i'm not sure how we are going to even persuade him to eat!

Any advice would be appreciated - thankyou.Smile

OP posts:
bigbluebus · 29/02/2012 08:37

Hazey, that wasn't really the news that you wanted!
My DD had a gastro after the results of her videofluroscopy (although she was not maintaining her weight in addition to the aspiration difficulties).
I was terrified of making the decision to put her through the op - but in all honesty, she sailed through it (she only ended up in hospital for the day) in spite of all her many and varied difficulties. It has been a life saver for her - but hers will be there forever.
With your DS it will buy him time to 'learn' to eat safely, without the pressure of having to eat enough to gain weight as well. It just seems such a big decision to make, but it sounds as though you have supportive professionals to help you with that decision.

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