reviews on tinsley house clinic anyone?....

[crazygal]

hi everyone
i know there are people on here that have been to this clinic,
the guy who runs it is ringing me this week,we are going to give it a go,and hopefully he can get us in,in the holiday times,
it is a 5 hr drive for us to go there,
can anyone give me a review on this clinic,cost,ish,and what exactly he will do?
i know he is ringing me this week and i can ask all these questions,
but am just interested in others experience....
thank you,x

The whole treatment takes about a year.

Stage 1 involves (First visit is £250)

• Multivitamins (Omega, zinc, magnesium)
• Healthy eating (High protein, low sugar....)
• Physical exercises 3 times a day - which take about 2 minutes to complete.

At this first visit he also checks your child's vision and hearing.

This initial set of exercises are for the cerebellum (which controls the body).

Then you go back in 8 weeks (£150), and he adds vision therapy (£150) if you need it, and changes the physical exercises if your DC is ready.

After that I think you see him every 8 weeks (£75), and you can do it by skype.

We have only been doing it for 3 months so far, but the results for both DS and DD have been absolutely unbelievable.

DD (Dyslexia) has:

• learnt to read!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (Aged 9)
• spelling has improved
• stopped having word finding problems (She can now learn new words)
• felt anger and sad for the first time!
• improved at her sport, and she now wins every week
• no longer has memory problems
• no longer has 'slow processing'

DS (Aspergers, Dyspraxia) has:

• learnt empathy!!
• made friends
• learnt to swim
• improved at his sport, and he now is in the A team.
• spelling has improved
• Written work has improved.

I don't think he has dyspraxia any more.

wow! omg thats unreal....
every 8 weeks! wondering if he has clinic else where in the uk?
although we could do it,we want to do it,
my ds is adhd and aspergers.
cant wait to show dh your post......
thank you!

how long is the 1st visit? hr? all day?

1st visit is 2 hours.

There are other UK clinics here

wow Indigo that's amazing progress

i have bought Robin Pauc's book on Indigo's recommendation and we have started the 'brain food diet plan' today - well me, DH and DS1 (dyspraxia) have. Ds2 (severe ASD) is doing it to a certain extent in that I'm trying to increase his protein intake and cut carbs, but it's too difficult to change his diet completely (which is what this would entail) whereas its not too far away from what the rest of us eat normally anyway. Did the initial stair walking exercise with Ds1 yesterday ( he could do it but was a bit wobbly) and also the convergence test for vision ( he definitely has a problem here). Both boys already take omega 3 but once current stocks run out I'm going to change to Vegepa, which is what Pauc recommends. Ds2 also takes magnesium, but I want to try adding zinc too. Will maybe try both boys on a mag/zinc supplement - am interested in Osteocare ( thanks again Indigo!) as it has calcium, which Ds2 is lacking as he's on a dairy free diet.

I would love to take DS1 to the clinic - we can get there in 2 hrs and have friends living nearby - but have absolutely no spare money atm. Ds1 is improving all the time - made huge leaps when he did an INPP programme last year - but I still feel he could do with an extra boost and have always felt he may benefit from vision therapy.
Will be very interested to hear how everyone gets on and will also report back on our ' amateur' version!

sphil - for the first 2 months all we did was what was in that book. ie the vitamins, diet and stairs exercises.

So keep it up for at least 2 months.

If you still can't afford to visit him in 2 months time, message me and I'll tell you what we did next.

And please, report here if you notice any improvements.....

I will do - thanks Indigo

Indigo re the diet how "personalised" is it REALLY?

Asking cos DS has a genetic dairy intolerance so although I agree with a lot of the GAPS theory, I've not yet worked out how to account for that total intolerance with the GAPS book alone.

My DS was under an amazing NHS dietician for 1st 4 years and tbh I'm REALLY pleased with the support given then, just can't shake the feeling his regimen needs an "update" now he's 7 as all our needs change as we mature. We struck lucky there but lightening doesn't strike twice so I'd never get access to her again : ( I'm actually totally convinced he's not as far along the spectrum as his half-bro due to my getting the right dietry advice at the right stage of his brain development, but of course I'd never be able to prove it scientifcally iykwm. (His Brother got amazing aba therapy from 2 due to living overseas, but didn't get the dietry advice).

He's had such a positive response to the amateur adaptations to the original 0-4 dietry regimen I had him on last year that I can't shake the gut feeling that I'm missing a simple trick or 2 to achieve a real "breakthrough" somewhere. It's been bugging me summat chronic for months!

It's the kind of thing that needs personalised advice from someone who really knows their stuff - do you think Tinsley House has that level of child specific expertise or is it a generic programme dressed up to look personalised iykwim?

I'm also really interested after finally getting the NHS OT report - my normally unflappable Mum threw up her hands in despair as it was so sloppily written.

I'm about to apply to Caudwell for funding for AIT+ Tinsley House (prob the London Clinic though) as this is beginning to look like the most cost effective way to try and really make headway on DS's issues now Tribunal and statement are behind us. Is this a combo you'd reccomend?

bochead- im also looking forward to the response on your post,
the guy from tinsley house emailed me yesterday,he said he will ring me today!,
i would also love to know if the diet is personalised to your child x

No, the diet is not personalised to the child.

He just advocates really simple healthy eating - cut out sugar and poisons additives type stuff.

He agreed that GF/DF (and GAPS) can be good for kids with ASD, and to keep it up with DS, but that I didn't need to bother with it for DD.

(Although, having said that, he is amazingly knowledgeable- I didn't ask specific questions about dairy intolerance - so I don't know what he does know about it....)

AIT is the one thing I think is missing from Tinsley House. With my youngest DS I'm still trying to decide which order to do them in. Whether to start with AIT or to start with TH.

However, I won't be doing retained reflex therapy with my youngest. TH is far more effective than that.

Thanks Indigo - The diet thang is frustrating me no end at the moment as I feel like I'm missing some critical but seemingly insignificant detail that'll make all the difference.

DS's dairy intolerance and the AS/ASD traits run down the same family line (4 generations back as far as our research has uncovered so far) so I really feel there's something significant there. I'm determined to get to the bottom of it before the next generation is born if we can.

(DSS is 22 so maybe not as far off as we'd all like lol!).

Bochead - I can so identify with your feeling that there's some critical detail that would make all the difference, as I feel exactly the same about Ds2. He is on a gf/cf diet, but recently has had a few gluten infringements which have caused a temporary and dramatic alleviation of his autistic traits - he has been calm, no stimming, no babbling, no sensory defensiveness. His learning difficulties remain - but his autism is lessened, if that makes sense. And then after a couple of days he gradually reverts back again. The same happens if he's ill and doesnt eat for a few days. So what he puts into his mouth obviously has a huge impact - I just wish I knew why and what to do about it. So frustrating!

sphil, have you added or tested for zinc? despite good diet, your ds nutrients might still need tweaking? how long has your ds been gf? takes a long while, mine went in steps (upwards :))

How long to go gf night cat? DS has been since beg od nov and I was told to give it 6 months as that's how long it takes for the gluten to leave the body, casein was only 3 weeks.

DS tested with issues in the digestive tract and the gaps diet was suggested, only I can't implement it while he in school as I can't send him off with soup for lunch. But have noticed his stomach is not bloated any longer, no other changes.

A child from DS school, asd and no speech at 6 has made a significant progress by going gf/cf and supplements, iwas amaze she he said hello tome, had eye contact and spoke in single words, being only 2 mo Tyson the diet.

Ignore spelling pls, holding baby in my lap Andes also fights I'm way in

DS can now tolerate gluten and dairy!

He went GF/DF in Sep. Although we didn't realise he had any problems with gluten, previously once he cut it out, if he had it again he noticed. It gave him very bad stomach cramps and toilet problems.

He's been totally GF for about 4 months, and has just now started to have a bit of it - and it no longer causes him any problems at all!

So I'm assuming that his stomach has healed. Very pleased :)

Wow indigo, that's amazing!

Ds has been g/f for 5 years, so a long time. But his bowels are now normal, which is why I think he can now tolerate at least small amounts and possibly more. Nightcat, I am pondering zinc. What kind of test do you ( or others) recommend? It seems that zinc is one that needs to be tested for ( Robin Pauc says so anyway!)

My ds has now been gf for over 6 years. AFter 2 years I was very confident that he would be fine, as we dont even do much in a way of substitute carbs.

But when he had liver enzymes tests I was quite shocked to see that he was actually deficient in some enzymes. At the same time, he had very high copper. I didn't twig for a while, as these are not things that you can easily fix unless you know what to do, ie can't just take an enzyme tablet to increase liver enzymes (you can take enzymes to help digest food but this is not the same). Kept reading and discovered that copper and zinc have to be in a certain ratio and if coppper is too high then zinc will be deficient and only supplementing zinc will push out copper. His hair test was also v high in copper, sort of ok that he was excreting it that way, but clearly he had way too much, so wasn't stable in that way.

Adding zinc has actully given us another step upwards, particularly in flexibility of thinking and better reactions, clearer speech. Zinc is a catalyst for numerous processes in the body, I never do excessive supplements as I feel that it isn't a natural way for body to be overloaded and it could create an imbalance elsewhere.

But the improvement is not usually instant, for us it was I would say around 2 months mark when it became consistently obvious that he has changed for the better yet again.

That's very interesting Nightcat. Where did you go for testing?

bloods locally, hair at Foresight lab in Sussex, Biolab in London also do them.

Nd when you say locally, do you mean at a GPs?

We asked our paed and he was willing to help, it's not hard to get liver enzyme tests, but I found it harder to get a good interpretation of it, always ask for a copy as supposedly normal results often can have borderline or deficient readings, but have been told that drs are more concerned about high readings that deficiencies
Zinc is not stored, so you need a regular supply. Zinc also good for connective tissue.

Thanks nightcat