Parents with CP children

[sickbucket]

I have a 20months old dd with diplegic cp - was diagnoised at 13months old

i don't know any other parents with children who have cp - i have my dh and mum to talk to but my dh's side of family aren't very supportive

so would love to hear from other mum's or dads

Hi I have two children with diplegia CP, Ds was dxd at 2 1/2yrs and DD1 was dxd at 13 months

how r they both doing?

ok
Connor has botox injections with has really helped
Bethan started walking about a year and 1/2 ago, at 26 months, but they thought she wouldn't walk at all, so she is doing great.
If you have MSN messager my user name is mieow79, bit easier to chat on it

hi i have a dd who was 3 in august with diplegia cp she was only diagnosed last december but is walking with the use of a kaye walker and attends a main stream nursery.
where in the uk are you based?

I have 4 kids, the youngest is 2y 8m and has spastic diplegia cp (dx @ 18m). We've just had a big specialist assessment done, so we are in the middle of getting the equipment they recommended. Hopefully it will make a big difference. He can sit, though I can't leave him, but can't stand or walk. He's having an op to straighten his squint next week.

I have 4 kids, the youngest is 2y 8m and has spastic diplegia cp (dx @ 18m). We've just had a big specialist assessment done, so we are in the middle of getting the equipment they recommended. Hopefully it will make a big difference. He can sit, though I can't leave him, but can't stand or walk. He's having an op to straighten his squint next week.

oops sorry

chatee - i'm in nottinghamshire -

lou33, nothing to do with cp, but will you let us know how the squint op goes? My dd has to have hers done after Christmas!

Yes Tissy I will. It's on Wednesday.

hi sickbucket do they do a school for parents in your area? May be worth finding out about it. They do it at my dd's sn nursery and it a really good scheme.

Fio you are in a frenzy of posting today .

lol lou I am going to post to you on another thread now!

fio2 - sorry to sound thick but what do u mean about a school for parents.

Hello sickbucket
a school for parents is an informal place where you and other mums go and learn how to teach your child some skills.ie massage, sit on a box, crawl, roll etc etc.
It is like a nursery for very young sn children. Ours was run by the hospital physio. It was a great couple of hours a week as we were all in the same boat, very happy, encouring and inspiring.
I think it helps the physios assess your child when they are ready for portage.
My ds was taught how to sit up there (we were told he would never sit up)he is 6 now and has severe developemental delay.

thanks for explaining for me doormat it is a really good scheme sickbucket. There is a section on school for parents on the scope site.

www.scope.org.uk

sorry cant do links!

here you go sickbucket
school for parents explained.
love fio and the doormat

thank you for the inoformation - unfortunatly the nearst one is in the other side of nottingham - which is quite a long bus journey way - but thank you anyway

Thanks fio and doormat - never heard of this before and there is one not too far away in Gloucester!

School for parents is a great idea, I wonder if it would work for other types of disabilit - I'm going to email the NAS. Thanks. Lou, hope the op goes well, everyone will be waiting to hear about it when you get time, we'll all be thinking of you.