Neuro paed recomendation

[feynman]

Hi folk, can anyone please recommend a good private paediatric neurologist? My son has horners syndrome (one pupils is larger than the other), and his uvula (thing that hangs down at the back of your throat) is pulled right over to one side. Additionally he cannot volutarily close his eyes. He can blink etc but cannot close his eyes through choice. He also has lots of speech issues which I;m sure are linked. He has had a mri scan which was normal, but I am convinced there is something neurological going on. I live near Hull in Yorkshire but will travel, I just really want someone to tell me what is going on, and more to the point whether there is anything I can do to help him?
Thanks

I don't know about paediatric neuro specifically but we have seen a great neuro in Sheffield, not paed as such, this was after seeing 2 paed neurologists who didnt have much to offer. You could maybe write in to Hallamshire neuro dept with some details and ask who to see, then get a referral? That's more or less what we did.
My ds also has uneven pupils tho no treatment for this. As we managed to fix a lot of his neuro symptoms using non-invasive treatment such as diet :) he is now having some physio to balance him out, I reckon it's helping.
We were also told that with a perm problem, you would be better off under a recurrent review within NHS, we also started privately but were transferred to NHS.

Thanks, that sounds good. Can I ask if you have the address/name of who you wrote to? Did you ask for a private appoint? Finally, did you get any advice on diet from anyone or is it what you've found out ifswim. When I mention diet to his paed she just sort of shrugs. Also can I ask what you are doing? I am sure diet plays a part for my son. He has lots of food allergies, and I'm sure his immune system is a bit compromised. Sorry for all the questions but very grateful for any help you can give.
Thanks