Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

begining to panic now

15 replies

beep · 20/01/2006 10:17

dd1 is having a big operation 2nd of feb, its coming up really fast now, it always seemed like so far in the future,begining to panic a bit now.It become more real this morning when they delivered a commode and over bed table this morning and phoned to ask if I can take delivery of a hospital bed today (no i can't I asked for notice as I will have to put the sofa in storage to make enough room in the lounge for it !)They are leaving the ramp at the front door a bit late I think as the ot technician is coming again on tuesday with head ot as there is not really enough room for one it will have to be quite steep.At least the house is very tidy as we had my sisters funeral here on tuesday.

OP posts:
Bethron · 20/01/2006 10:27

This reply has been deleted

Message withdrawn

beep · 20/01/2006 10:34

thanks Bethron it does seem pretty relentless at times,i am hoping it will go alright my nephew (21) is going to move back in for a month,when he gets back from Japan and before he goes to China.He will be able to be there for the other 2 kids so i can stay some of the time in Oxford with dd1, he used to live with us before so knows my children well.My ex will have them at half term so it should be ok.Not looking forward to the rehab though.

OP posts:
dizzy34 · 20/01/2006 14:02

It does sound like you have a lot on your plate. My sympathy for your loss. What op is your dd having? will the rehab be a long process?

beep · 21/01/2006 09:35

sorry dizzy I had to go out.DD1 is having multilevel surgery to help straighten her legs and make her walking more efficient (she has cp) they have to break and rotate her femurs,lengthen lots of her muscles and tendons graft some muscles into different posistions and put a bit of bone into the feet to help realign them, so quite a lot ! the rehab is long I have been told 6-9 months to get back to where she is now and then a year to see the full improvements.So not looking forward to it, but Ihave spokento 2 other mothers whose daughters have had it done and they both said it was worth it in the end.

OP posts:
dizzy34 · 21/01/2006 11:11

That is a lot of surgery isnt it? im not suprised your feeling nervous. Keep us informed how it goes

beep · 21/01/2006 11:53

yes will do

OP posts:
macwoozy · 21/01/2006 12:14

Poor little mite, it sounds like she'll be in a lot of pain. How old is your dd beep?

beep · 21/01/2006 14:44

macwoozy she is 11,hopefully they will be good at pain control, I know she will have an epidural in for the first few days.She is a crazy child and is really looking forward to it (that may change on the actual day, I am just thankful that she has not been worrying about it)for some strange reason she loves hospitals, probably all the attention!she has been told several times what they will be doing,when asked if she has any questions she comes up with things like;"will you take some photos of the blood and gore for my scrapbook" "can I have pink plaster casts?" and "will you teach me some greek?" (the consultant is greek).I am not looking forward to having to do lots of physio with her as I think she will be very stroppy with me,though she has been told enough times how much the results depend on her doing lots of hard work even when she doen't feel like it or it hurts.

OP posts:
Potty1 · 22/01/2006 10:07

beep - that does sound like a lot of surgery . My dd whose 12 has just had some growth plate surgery certainly no where near as extensive as your dd's.

I wasn't prepared for dd's reaction post-surgery when she was in pain and fed up. She went through a phase of wishing she hadn't had it done, blaming me (like you don't feel bad enough ). She said I had told her it wouldn't hurt - never do I say that to her. Your dd sounds very well prepared but just bear in mind that she may get a bit (!) hacked off with you despite that. She sounds feisty enough to battle through.

Will be thinking of you on the 2nd - hope it all goes swimmingly and that you get plenty of support when you get home.

beep · 22/01/2006 10:22

hi potty ,yes i'm expecting her to be very fed up with me at times,she has been told lots of times that it will be painful and lots of hard work but I don't think that she really takes it in too much.what did your daughters surgery entail,did it work well.I think that is my biggest fear that it doesn't work well.

OP posts:
my3kids · 22/01/2006 10:25

hey beep big hugs hon i know what your going through my dd has cp..and she had major sugery on her hip and pelvis (broken turned and reset in plaster for 7 weeks poor kiddy)

good luck and i really hoppe things work out hon...i have msn if you wnat to chat

[email protected]

take care and good luck...

my3kids · 22/01/2006 10:27

btw i recomend botox injections before the sugery this will stop the muscle spasms (very painfull)

beep · 22/01/2006 10:29

hi my3kids when did your daughter have surgery? was it successful?

OP posts:
Potty1 · 22/01/2006 12:07

Dd has had 5 pins put in the growth plates above and below her knee. The idea is to stop that leg growing and allow her other, shorter one to catch up. Won't know if it's worked for a few months yet. Her surgery was very simple in comparison to your dd's - just made a bit more difficult as she has cardiac/circulation/clotting issues. She still gets a murderous look in her eye when I mention physio though.

Milliways · 06/02/2006 22:45

How did it go Beep?

I had similar op as a child (breaking & rotating both femurs) - complete success! Alternative was life in a wheelchair. I also had to sleep in lounge for weeks as coudn't fit upstairs in plaster cast etc! I remember it all seemed to take forever to be walking again, but was well worth it as could then walk without falling over all the time.

Hope she is recovering well.

New posts on this thread. Refresh page