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Another thread about dyspraxia. It's a bit long, but I'd really appreciate your thoughts on this. Thank you.

10 replies

iamnamechangingforthis · 27/01/2012 10:44

My DS has an appointment at the doctors in a couple of weeks time.

It has been suggested to me by several people that he might have dyspraxia. I'm doubtful, but I feel I need to speak to someone about it so that I'm not letting him down if he has. He is 13 but these issues have been present for his whole life. There is nothing here that has just come about in the past couple of years so cannot be attributed to an unco-operative teen. He really does try.

He finds organising himself a bit difficult - but not chronically so. What does this look like in a child/person with dyspraxia?

His fine motor skills are ok, but gross motor skills are quite poor. Examples: it took him years to learn to ride a bike, he still can't do it very well and so chooses not to because he finds it difficult to pedal/not fall off or fly over the handlebars.

He did have swimming lessons and whilst he did learn, he really struggled and now we have stopped because he wasn't enjoying it, wasn't progressing and found it very difficult to just do it. It took him about 18 months to get his 10 metre badge. He did get to his 200m but his stroke was poor and he found it difficult to do the distance in the allocated time. The teacher did say he found coordination very difficult ? he could do arms (sort of) or legs (sort of) but really struggled trying to put the two together.

He had a fitness assessment at school recently and failed miserably. Not because he was unfit (as such, although he probably is because he finds physical things so difficult), he walks 2 miles to school and back but more because he couldn't follow the quite simple instructions that the others had no problem with. Eg crouch and jump up into a star jump. Even with it being demonstrated to him, he couldn't do it.

He falls over a lot, he has fallen down the stairs at secondary school a few times (not the whole flight, just the last few), fallen down the embankment, walked into walls damaging his clothes... all because he's "clumsy".

He has lost teeth through falling from a standing start and landing flat on his face. If he falls he doesn't put his hands out to protect himself, he just falls. He was permanently tripping and falling as a young child and now tends to avoid running because he falls. My mum thinks part of this is because I restricted his opportunity to run freely when he was younger, except that when I pointed out that I did so because we spent so much time applying cold compresses to split lips and grazed cheeks that it worried me. She agreed.

I put it down to just everyday children's bumps and accidents until I started comparing it with other parents and our second child and realised that he, not only had more accidents as a young child, but that he falls and trips and has poorer physical co-ordination than his much younger sister.

He has great trouble using swings - he can't really, and he can't use zip wires - a lot of them require a bit of a jump forward and grab with your legs action but he can't do it and ends up on the floor every time. The worst thing is, I know it's going to happen. I try and give him some tips and support but it happens every time without fail and he finds it embarrassing when his younger sister and other kids can do it so easily.

He finds cooking difficult because he needs to have every step spelt out to him. I can't just say "ok add the eggs" because he looks blankly at me. I have to say "take one of the eggs.... tap it on the side of the bowl... empty it into the bowl... but the egg shell down". I can't work out if he's just choosing to not think it for himself, or is unable to work out what to do next (even though he's done it many times before) would this even been due to dyspraxia? An example, I left him and his sister baking some biscuits a couple of weeks ago. I could hear all the "can you pass me the..." and instructions going between them and the all explanations/directions were coming from his 5 year old sister who explained (again) how to crack an egg, sieve the flour, roll out the dough... that sort of thing. She might need some support because she is 5 but she is still more capable than he is relatively.

He's been identified as G&T in music for his understanding, yet is struggling beyond belief with learning an instrument, trying to get his hands in the right position and do what they need to do. He hasn?t done grade 1 yet. His musicality is good, but he finds it hard to play an instrument.

He doesn't have dyslexia, his fine motor skills are ok and he draws perfectly well. Although he does find tying shoe laces very difficult. And brushing his teeth; that really worries me - he has been shown and shown and does try. I've watched him, but he just can't seem to do it.

Before he started school, I just assumed that the school would pick it up if there was anything wrong. I've since learned that this isn't the case - teachers aren't experts in all aspects of child development!! But I'm just not sure if he's "just a bit clumsy" or if it's something more.

I'm a bit nervous about going to the dr's, tbh. Are they going to take me seriously? Am I even highlighting a real issue? Is this just the way he is, but there's no diagnosable reason for it? There isn?t even a huge amount on his medical records (obviously for his teeth there is) but we have just dealt with the other things using basic first aid or it's not been necessary. He's not an ill child so hasn't been to the doctors for anything for about 6 years.

Academically he's doing fine so no issues there - he gets glowing reports from school so I've never really felt that he had any 'problems' as such and assumed that he was just a late developer physically and it would come. But a lot of it isn't. I don't want to give him a label, but I don't want him to feel that if there is a reason for his 'clumsiness', he's just 'rubbish' at doing stuff. He gets plenty of opportunities - has done archery with scouts etc but he is very aware that he finds things harder than his peers and is quite embarrassed about it. He knows I have the appointment and is pleased. He won't be coming with me for the appointment because I'd rather discuss it with the dr in private.

I don't want to look like I'm asking for my child to be diagnosed with something if he definitely doesn't have it, but I don't want to let him down if he does. I understand that, like most things, dyspraxia is a spectrum disorder and that there are different symptoms but is there anyone who can give me some gut responses to what I've written - any at all! I would really appreciate your input.

Thank you.

OP posts:
IndigoBell · 27/01/2012 12:24

Sounds like it could be dyspraxia (or technically DCD) to me.

He should be assessed by an OT, who can make loads of concrete recommendations.

coppertop · 27/01/2012 12:44

A lot of what you have written sounds familiar to me. My ds is 11 and has a diagnosis of autism but almost certainly has dyspraxia too.

He used to fall flat on his face (literally) because his hands were so hypersensitive that breaking a fall with his face was less painful than breaking a fall with his hands.

The clumsiness has also been due to difficulties with proprioception (sp?). Basically he can't always work out where he is in relation to potential obstacles - a bit like trying to park a vehicle in a car park when you have no idea how long or wide the vehicle is.

The OT recommended learning a keyboard instrument to help with motor skills and co-ordination. For the first couple of years ds found it very difficult but insisted he wanted to carry on. When it all eventually 'clicked' for him, he turned out to be very good at it. If your ds is learning a different instrument then it might be worth considering a switch to piano or keyboard.

Ds also needs very specific instructions for cookery, mainly because he has a tendency to take things literally. It helps that he understands why he finds it difficult and he now even looks out for anything that could be taken literally and finds it funny. "Put tin of fruit into pastry case" was a recent example that gave him the giggles. And we too have a 5yr-old younger sister who raises an eyebrow at such things. :)

WannabeMegMarch · 27/01/2012 13:40

OP I think your story is ticking a lot of boxes to investigate Dyspraxia. Praxis is the ability to form a plan of movement in your head and then carry it out. Most of us do it unconsciously.
People with Dyspraxia cannot- either due to a problem with planning the movement or with the co-ordination of the movement.
People with Dyspraxia will often find organising themselves; their homework; their bags; their timetables very difficult. Thet will often leave their space very messy. Of course all those things can be overcome by having strategies (rountines, checklists).
They are often highly intelligent...perhaps because they compensate by working hard at what they are good at, yet are often labelled 'clumsy' 'stupid' 'messy' 'lazy' 'unco-operative'.

Madelaine Portwood has written several books www.amazon.co.uk/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks&field-keywords=madelaine+portwood+&x=0&y=0 that are good for you to read (and are often available through the local library).
Occupational Therapy and Physiotherapy (especially to increase core strength) are successful.
It will always be part of him and a label may be useful to help him with accepting it and understanding that it's not within his control to change it.
Hope that helps

iamnamechangingforthis · 27/01/2012 18:27

Hi

Thank you all for your replies!

It is reassuring to hear parents with children with dx of DCD/Dyspraxia recognise some of what DS shows.

After I posted this I had a look at the dyspraxia foundation website and when I look at the dyspraxia at a glance checklist, he can certainly tick most of those. Same with the pre-school child.

So, now I feel a bit more confident that it merits some investigation. I take it the GP is the starting point? Should I just ask for an assessment? Can I?

I can definitely see DS in some of the extra details. Yes he does find organising difficult. And yes 'messy', 'lazy' and 'unco-operative' are definitely words that would apply to the way he presents himself. But seem so unfair because he isn't any of those things really, he just comes across like that at times!

He's learning the violin (his choice) but we do have a keyboard so maybe I'll look into that.

So thank you.

OP posts:
mrsbaffled · 27/01/2012 21:13

Yes, go to the GP as a first point of call. I would write down all your concerns (even print out what you have written above) so you don't forget what you want to say...i got q bit teary when I saw the GP so just thrust my list into his hands. He agreed there was cause for concern and referred onto a paediatrician. We were seen in 6 weeks. As it happened they don't think my DS has dyspraxia (though has some motor planning problems and fine motor problems), but I was glad to investigate.

Good luck :)

DebbieSolloway · 28/01/2012 06:42

I worry my son has dyapraxia too.

If he falls a lot could there be a problem with his balance?

When the therapist asked my son to close his eyes and stand still, he just toppled over - his balance was that bad. But I would never have guessed it , he is not particularly clumsy.

Can you son do the breast stroke? Mine is excellant at it but free style is impossible.

iamnamechangingforthis · 28/01/2012 09:24

Thanks.

MrsBaffled Yes I did think about taking a list with me. I know I'll forget otherwise! I told DS I had made an appointment and he was quite quivery lipped when he thanked me. So it is something that bothers him. I too just want it investigated.

Debbie I don't know about the balance. I suppose that's what an expert will be able to tell me! He struggles with all swimming tbh. He's ok in the water but doesn't swim any great distance. He will do breast stroke at a push. The first time we took him swimming after stopping his lessons (for something we thought would suit him more) he got in the water and started doing doggy paddle. He was 10 and had been having lessons since he was 6. When I asked him what on earth he thought he was doing, he said that he wasn't in lessons now so could swim however he wanted to and the reality was he found it easier to swim using the rather inefficient and immature doggy paddle than he did using breast stroke.

OP posts:
mrsjay · 28/01/2012 13:56

MY 13 year old dd has DCD [dyspraxia) your sons symptoms sound like a child with a co ordination problem speak to the gp , see what they say get a referral and put your mind at rest , MY dd was diagnosed at 6/7 and had therapy at school her school ran a pilot scheme it was great for her ,

flyingmum · 28/01/2012 18:28

Yup. Got one of these. Also can do amazing breast stroke but hasn't got the side to side thing enough for crawl. Did learn to ride a bike by sheer force of will and lots of falling off. Has no balance.

Go find a good OT to diagnose. You probablly won't get much out of the NHS and the waiting list will be imense.

Can highly recommend behavioural optometry. Started it before Christmas with DS1 - can see results already. Expensive but worth it.

Have to say - your son sounds very dyspraxic. Having a diagnosis will give him an explanation and some strategies and make it clear to him that it isn't 'him' it is his difficulty.

iamnamechangingforthis · 29/01/2012 08:14

Thanks mrsjay and flyingmum.

I feel a bit like I've let him down and should have taken him sooner but until it became obvious that he wasn't just a 'late developer' physically I did just assume that because the school hadn't said anything, it couldn't be too out of the ordinary.

I will try the NHS first and see what happens then. Thank you. At least now I won't feel like the GP will laugh me out and make a mental note of a silly neurotic mother!

OP posts:
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