DS inherited hypermobility from me.

[Ihatecbeebies]

I was informed by the paediatrician a few weeks ago that my DS has hypermobility (amongst a few other possible things, asd, ADHD, dyspraxia...) and was surprised that I hadn't noticed it. The tests she done on him and showed me tbh didn't look too different from anything any other normal person could do and I tried out a few of the tests on myself and was able to do it so wondered if the paediatrician was maybe mistaken.

I then had an OT appointment yesterday for myself for hand pain and was told that I am very hypermobile and what I thought was 'normal' wasn't actually. So after my embarrassment I've had a look online but it's all a bit vague, what should I be concerned about?

Does anyone know much about hypermobility?

did the paediatrician not give you any advice on it at all?

i don't know a huge amount myself unfortunately, but I am certain there are other people on here dealing with it

Ihatecbeebies

I have been researching hypermobility since i found out that one of my DN has a DX. It is strange how we all consider ourselves to be "Normal" until our differences are identified and explained. I was in my 40s with my APD.
Have a look at
CiteULike Group Hypermobility library
Joint Hypermobility Syndrome
Ehlers-Danlos syndrome (EDS)
Marfan Syndrome

it is a variable ondtion i have 4dc with it 2 not really affected one affected gut wise and one very very severley affected

my son gets terrible pains in his legs after any exercise and he clunks and clicks in different joints when he moves. Is this a sign of hypermobility and if it is, should I get it diagnosed? We will be back to see the paediatrician in a couple of months, will she be able to diagnose it? We saw the OT a couple of months ago, she diagnosed dyspraxia but then closed DS case (he is 11).

My Dd3 is Hypermobile in all her joints. She was initially diagnosed by OT in a couple of joints but after one visit to the physio they said it is all her joints. Her motor skills are pretty poor only 16th percentile, although this is not bad enough for OT apparently.

She twists her ankles and knees regularly and her joints are very susceptable to injury.

She has orthotics in her shoes now and that has made a lot of difference to her walking/tripping up.

She does physio every day at home and school and swims once a week. The physio is really helping to strengthen her joints and improve her muscle tone.

We have been told to discourage her from doing handstands and bendy tricks and also no "W" sitting.

Hypermobility syndrome runs in our family.

My gran had trouble with her knees but otherwise lived a normal life (housewife and teacher)- her only difficulty being that she could never kneel down to scrub the floor.

My mum had various trouble with joints- could not kneel or carry anything heavy but otherwise normal life (housewife and teacher).

I have always had trouble with my wrists and found it difficult to write as a child (problem solved with the coming of pcs). Otherwise fine, used to do manual work as a young adult, using my stronger joints to compensate for weaker ones. Am beginning to have trouble with my knee now in my late forties.

Dd (15) is badly affected: chronic back pain, various trouble with knees and ankles, has spent long periods in wheelchair and sometimes unable to get out of bed at all. Has also developed anxiety disorder and depression.

Ds (11) has had some pain episodes when unable to walk or sit upright but not for a long time. Has difficulty writing though and appears very dyspraxic. Struggles with school work. But can do PE.

apparently hypermobility can cause bad period pain. I used to get terrible period pain before I had the ds's and ds2 is hypermobile (probably ds1 as well).