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claiming DLA

7 replies

bethylou · 26/01/2012 19:35

My health visitor has recommended that I should be claiming DLA for my ds. This came as a surprise to me as I am usually the one suggesting it to parents of children with whom I work. Before I start to go through the massive form, can you tell me if you think I should bother? Ds has dietary issues. We have heard today that he does not have Coeliac disease, following endoscopy etc.. but he definitely can not tolerate gluten or dairy products. We spend a lot of time making different meals and travelling to our regional hospital. The ingredients for his meals and high calorie snacks, as he struggles to maintain his weight, cost us quite a lot of money. However, without a specific diagnosis, I'm not convinced we really have a case. Any thoughts would be gratefully received.

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jandymaccomesback · 26/01/2012 19:46

I'm no expert (although we do get DLA for DS who has Aspergers) but if your Health Visitor suggested it presumably she will back your application. As far as I know some people do get it for their children without a diagnosis.
Cerebra do a good guide which helped us with our application.

bethylou · 26/01/2012 19:51

Thanks. She did say she will back it. I will look at the Cerebra stuff before delving in!

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Gottalovecosta · 26/01/2012 19:51

We recently got DLA awarded to us, without a diagnosis.

StarlightMcKenzie · 27/01/2012 08:14

Well you don't need a diagnosis, but I'd say you need to have a lot more need than that.

Lougle · 27/01/2012 09:31

Hi Bethylou, the test for children with DLA is whether your child needs "Substantially more care, attention or supervision than a child of the same age without disability".

Low Rate Care is awarded when the Decision Maker is satisfied that the child needs at least an hour per day of additional care, attention or supervision.

The fact that the diet is expensive is irrelevant, as is the cost of the appointments you take your DS to. However, the time that it takes would not be irrelevant.

It is crucial to realise that it is the impact and consequence of his dietary needs that would be relevant to a DLA claim, not the dietary needs themselves. So what you need to consider is whether the combined care your child needs is over 1 hour per day on most days.

To be successful in a DLA claim for him, I would imagine he would have to be quite severely and chronically affected by his intolerances with lots of time consuming preventative measures.

The closest example that springs to mind is eczema. One child could be eligible for DLA if their eczema weeps, needs extensive regimes for prevention and treatment, such as wet wrapping of bandages 6 times per day, or 3 baths a day, etc. Another child would not qualify if their child was sufficiently managed by wearing cotton clothing and having cream applied for 20 minutes once a day, even if they both have the same diagnosis.

MummyPocPoc · 27/01/2012 09:58

Cerebra guide here:
www.cerebra.org.uk/SiteCollectionDocuments/Books/dla_guide.pdf

bethylou · 27/01/2012 18:14

Thanks. I'll review what I've written this p.m and see if it is at an hour. If not, I won't waste their time.

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