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Help needed from parents/carers of children with autism spectrum conditions

36 replies

TomMuskett · 26/01/2012 10:40

Hi there-

My name is Tom Muskett and I work at the University of Sheffield, where I teach and do research on the subject of communication difficulties. You can see my staff profile here - www.shef.ac.uk/hcs/staff/muskett - and more about the department where I work here - www.shef.ac.uk/hcs/.

I am posting this message today because I am looking for advice and assistance from carers/parents of children with a diagnosis of an autism spectrum condition. I am currently developing a research project about play in autism. I would like to discuss my ideas for this project with carers/parents to see how its findings and approach could be useful for them in their everyday lives. To clarify, I am not looking for children to participate in this project - but instead to work with a small number of carers/parents to identify ways in which the project could be improved.

If anyone is interested in discussing this further and has the time to do so, then please do let me know, either by sending a message on here or emailing me directly at [email protected].

Thanks for reading this far!

Tom.

OP posts:
LeninGrad · 26/01/2012 19:52

This reply has been deleted

Message withdrawn at poster's request.

Catsdontcare · 26/01/2012 21:53

Have just been reading about Lego therapy. Very interesting.

Ineedalife · 26/01/2012 22:01

Oh no I couldn't cope with Lego therapy, we have to match up all the colours to the little picture before we are allowed to build anything, sends me barmyGrin.

insanityscratching · 27/01/2012 09:47

Ds's independent special school does Lego Therapy. It's not something he has ever been interested in before but appears to enjoy it there.

StarlightMcKenzie · 27/01/2012 10:51

As with anything Lego Therapy is brilliant if you have a structured session with expected and me outcomes with the impact measured.

If the children are motivated you can improve teamwork, conversation skills, focus, shared attention, understanding of others motivation etc. You need lots and lots of pieces for just one model, and each piece represents an opportunity for interaction.

tryingtokeepintune · 27/01/2012 11:10

Am happy to help too. Have pmed you.

Lego therapy sounds interesting. A new lego club has just started near where I live but I think it is going to be somewhere for children to go and build things and not at all like the structured session that is discussed here.

Where do I get more information on how a structered session is run?

TomMuskett · 27/01/2012 11:28

Hello everyone,

Firstly - thank you all so much for all of your responses. I will endeavour to get back to all of you over the next week or so.

Secondly - for the person who asked about what the following actually means:

'I am particularly interested in the use of multimodal and eclectic approaches to examine the `value´ of interventions and/or care pathways for children and adolescents with complex needs.'

Basically, one of the things I am interested in is how best to find out if a therapy has 'worked'. The obvious response to that might be, 'well, a therapy works if it improves a problem'. This then raises two points: (a) how do you judge if a problem has 'improved'?; and (b) can a therapy still be valuable even if it doesn't really 'improve' the problem, but has other impacts on someone's life instead?

Both of these issues are really important when thinking about any kind of intervention for children with very complex profiles of strengths and difficulties, and their families. My belief is that we have to think of very creative and diverse ways to judge what impact a therapy has made on real people's lives - and it might not just be about measuring whether one 'problem' has improved in a simple way.

There is a drive across many professions and services to be able to demonstrate that your approaches 'really work' - and this can lead to a drive to reduce very complex circumstances to a range of (usually numerical) 'outcomes' that can then be measured, in the same way that you could see if a medical treatment for blood pressure has 'worked' by taking a patient's blood pressure after the treatment and checking that it has dropped. But I'm not comfortable about this approach when working with issues such as those experienced by children with a diagnosis of autism and their families.

So by 'multimodal and eclectic', I mean that I am interested thinking about how to use multiple ways of examining the effects of therapy that bring in more than just this - including capturing the significance of the therapy and its consequences for the actual children and families that services are working with themselves. This, for me, involves using a wider range of methods than just 'measuring' something. Hope this makes sense?

... but also, I should point out that the project we are discussing on this thread isn't really relevant to all of this. The project is more about play in autism, rather than therapy for play in autism. But I do think that the project could ultimately help people (families, practitioners) think about how best to share 'play' experiences (depending on your definition of 'play') with children with autism. :)

OP posts:
creatovator · 28/01/2012 15:04

Lenin Play is a huge topic. NT children learn mega amounts about life through play, particularly social things. If play is structured in some way for those on the autistic spectrum, then they too can learn from it.

Starlight has given a good description of the Lego Therapeutic Approach. The thing about this intervention is that the kids are able to use what they learn in everyday life. I've seen some amazing results in quite a short time Grin. I really like it as an intervention, though you need to be prepared to challenge the DCs and cope with meltdowns as a result.

StarlightMcKenzie · 28/01/2012 16:01

Thank you Tom. I'd be happy to help with your research.

kenhallroad · 28/01/2012 16:12

This reply has been deleted

Message withdrawn at poster's request.

richmond44 · 28/01/2012 17:50

Hi i would be interested. I have a 3 year old son with Asd and he is non verbal.
Regards richmond

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